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LUNGevity Social Media Summary 5/7 - 5/31

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LUNGevity Social Media Summary

May 7, 2012-May 31, 2012

Here is a review of some key stories and links that were featured on our social media sites:

• Breathe Deep event attracts over 1000! http://ow.ly/bhlTP

• Great article about the Breathe Deep Birmingham Michigan walk. http://ow.ly/bhlZI

• Susan Davis chaired today's inaugural LUNGevity Foundation Breathe Deep DC Golf Classic during Lung Cancer Hope Month. This event raised critical funds for lifesaving lung cancer research. The event's honorary event committee members included Speaker John A. Boehner, The Honorable Roy D. Blunt, The Honorable James E. Clyburn, and former Congressman Michael G. Oxley, a lung cancer survivor. http://ow.ly/bhm64

• Panel Discussions on Molecular Markers in Advanced Lung Cancer: Check them out! http://ow.ly/bhm9u

• Thank you to our Featured Food Sponsor Kevin Grevey and Grevey's Restaurant & Sports Bar for providing wonderful food for the closing ceremony of the very first 3-day walk in the nation- Breathe Deep 3 Day benefiting LUNGevity Foundation!

• Great article from Breathe Deep 3 Day: http://ow.ly/bhmkN

• [This is the Sara Ratzenberger Resolution. It's happening today at 10am on the senate floor in Kansas. CONGRATULATIONS to Sara and John!]


By Senator V. Schmidt

A RESOLUTION recognizing the efforts of John and Sara Ratzenberger and the LUNGevity

Foundation for increasing awareness about lung cancer.

WHEREAS, John and Sara Ratzenberger are active members of their Topeka community. In 2010, Sara was diagnosed with stage IV non-small cell lung cancer, when she was only 31 years old.

Sara has always lived a very healthy lifestyle as a runner and non-smoker. The cancer diagnosis was made after nearly six months of misdiagnosis and lack of diagnosis during a surgery to remove the lower lobe of her right lung. It became apparent to both John and Sara Ratzenberger that the stigma of lung cancer as strictly a "smoker's disease" prevented proper and timely screening for Sara; and

WHEREAS, John and Sara Ratzenberger have become heavily involved in advocacy for lung

cancer patients, and they are fighting to address the stigma of lung cancer as a type of cancer that only

afflicts people that smoke; and

WHEREAS, The LUNGevity Foundation strives to have a meaningful impact on improving lung cancer survival rates, ensure a higher quality of life for lung cancer patients and provide a

community for those impacted by lung cancer. The organization was founded in 2001 by seven lung cancer survivors, and tens of thousands of others affected by lung cancer have joined in the years since; and

WHEREAS, The LUNGevity Foundation is the largest private funder of lung cancer research in

the United States and granted $2 million to outstanding researchers in 2011. The LUNGevity

Foundation works with top lung cancer experts to identify and fund promising and innovative research

into the early detection and targeted treatment of lung cancer; and

WHEREAS, Lung cancer is the leading cause of cancer death for both men and women in

Kansas, the United States and the world, this year killing more Americans than breast, prostate, colon, liver and kidney cancers combined; and

WHEREAS, In the United States in 2011, an estimated 221,130 people were diagnosed with lung cancer and an estimated 156,940 people died from lung cancer, accounting for 28% of all

cancer deaths; and

WHEREAS, While tobacco accounts for 87% of lung cancer deaths, there are 16,000 to 24,000

Americans that die of lung cancer every year even though they were non-smokers; and

WHEREAS, If lung cancer in "never smokers" (defined by researchers as people who have smoked fewer than 100 cigarettes in their lifetime) had its own category separate from lung cancer in smokers, it would rank among the top 10 fatal cancers in the United States. Approximately 55% of all

new lung cancer diagnoses are among people who have never smoked or are former smokers; and

WHEREAS, Two-thirds of nonsmokers now battling lung cancer are women, despite the fact that women in the general population smoke less than men and would probably represent the majority

of any group of nonsmokers, including those with cancer; and

WHEREAS, Lung cancer in people that have never smoked is an important public health issue, and further exploration of its incidence patterns, etiology, and biology is needed. Increased awareness and coordination among all stakeholders, including federal and state governments, providers,

patient groups, medical researchers, community leaders and organizations, the public and businesses,is critical to promote the prevention, diagnosis and treatment of lung cancer; and

WHEREAS, With lung cancer persisting as the leading cause of cancer mortality in the United States, research into the epidemiology of lung cancer in never-smokers should be an important public health priority: Now, therefore,

Be it resolved by the Senate of the State of Kansas: That we recognize the efforts of John and Sara Ratzenberger and the LUNGevity Foundation for increasing awareness about lung cancer as a disease that afflicts both smokers and nonsmokers alike, advocating on behalf of lung cancer patients and survivors and taking action to raise awareness about lung cancer nationwide; and

Be it further resolved: That the Secretary of the Senate shall send five enrolled copies of this resolution to Senator V. Schmidt.

• Hope Summit 2012 Photos: http://ow.ly/bhmt0

• Cancer is Not the Same as the Flu, by Megan Giblin http://ow.ly/bhmG8

• Nuances in Which Patients Should Receive Adjuvant Chemotherapy for Node-Negative Resected NSCLC http://ow.ly/bhmK6

• "Let's Make it Old News!" by Juhi Kunde http://ow.ly/bhmNx

• May is LUNGevity's Lung Cancer Hope Month. Join us in congratulating AlisaB. 12 year stage 3 lung cancer survivor. Today she celebrates 11 years, No Evidence of Disease! = HOPE

• May is LUNGevity's Hope Month: Join us in congratulating Linda!! She sent us this message this morning = HOPE!

My name is Linda B. and in September 2012 I will be a 7 year survivor of Small Cell Lung Cancer. I wake up every day smiling!

• Join us Saturday June 2, Grand Blanc MI: 7th Annual LUNGevity Charity Golf Event http://ow.ly/aV0nc

• During the entire month of May, Lung Cancer Hope Month, Miner Family Winery will donate 15% of the proceeds from their Spring release wines to LUNGevity Foundation! Check them out!


• May is LUNGevity's Hope Month. This month only: Independant Scentsy consultant will donate a portion of proceeds to LUNGevity until the end of May. Order yours today.

Scentsy is a Wickless candle alternative using a low watt light bulb and high quality wax to scent your home rather than an open flame. http://ow.ly/bhmYR

• Lung Cancer Survivors Unite! by Lynne Eldridge, MD http://ow.ly/bhn3q

• Barb was dx with lung cancer in 2007. She posted this message of HOPE today:

"Today is a big day for me.



• RIP Donna Summer, died after battle with Lung Cancer .

• Leading Researchers Address Hope for Early Detection and Treatments for Lung Cancer http://ow.ly/bhncn

• Happy 8th Birthday to the Livestrong Wristband! We are happy to have a referral partnership with this great organization!

• May is LUNGevity's HOPE Month- let's hit 10K likes before the end of the month. SHARE this link on your page and ask your friends to click the link and "LIKE" the page too and join us in the fight against lung cancer.

• Refining Risk of Recurrence of a Resected NSCLC: The Importance of Tumor Size http://ow.ly/bhnmz

• Donna Summer and I Have Something in Common, by Jon Filbert http://ow.ly/bhnpH

• America's Charities: Featured Charity is LUNGevity! http://ow.ly/bhnt3

• LUNGevity will raise awareness about lung cancer at the Indianapolis 500 to over 1.5 million viewers!!! WOW! http://ow.ly/bhnwj

• What Do You Do Different After Cancer? http://ow.ly/bhnA9

• Join us at Breathe Deep NEPA June 9, 2012: This event honors Allan Makowski: an artist, poet, outdoorsman, and modern Renaissance man. http://ow.ly/bhnE7

• How cool is this!??! Spin NYC ! Come out and join us! http://ow.ly/bhnQ0

• Nashville Lung Cancer Screening Trial

You may be able to join a lung cancer screening study- click link to read more. http://ow.ly/bho1g

• The importance of Tumor Size: http://ow.ly/bho7s

• HOPE. Get yours today. http://ow.ly/bhod1

• All We Have Is Right Now http://ow.ly/bhogc

• “Lung cancer patients rely on the hope that we will live long enough to allow for the development of a new treatment that will extend our lives. Thanks to funding and grants from organizations like LUNGevity, cancer research has made some great strides in the last five years.” ~Matt Ellefson (read more) http://ow.ly/bhojc

• New event: Breathe Deep Lake Arlington

Mark your calendars for September 30, 2012. http://ow.ly/bhoov

• In honor of the month of May, Lung Cancer Hope Month, Miner Family Winery has partnered with LUNGevity to help raise awareness and money for the research into the early detection and successful treatment of lung cancer. 4 selections- get your today! http://ow.ly/bhoAX

• Old Guy Walk

I'm an old guy - in my fifties to be exact. But I'm an old guy with a goal in mind -- to walk across the state of Wisconsin in an effort to raise money to fight lung cancer.


• Top Anticipated Lung Cancer Presentations at ASCO 2012 http://ow.ly/bhoOy

• Rehabilitation After Lung Cancer Treatment http://ow.ly/bhoUv

• This Saturday June 2 Deerfield Beach FL: Join us for Paddle for Humanity benefiting LUNGEvity Foundation #lung cancer research.http://ow.ly/be5RW

• LUNGevity has funded 87 research projects at 52 institutions in 22 states focusing on early detection as well as more effective treatments of lung cancer. http://ow.ly/bhp04

• Thank you to The @Safeway Foundation for their support of the @LUNGevity Caregiver Resource Center http://ow.ly/bfaL4

• Do you know what is and isn’t legal about balancing work & cancer? LUNGevity is proud to support Cancer and Careers 2012 National Conference. Register for this conference today:


• Did you miss a webinar? Download the podcast here

Our popular "Ask the Experts" webinars are available for download as podcasts, complete with written transcripts and full illustrations. Check out our extensive library of discussions on issues related to lung cancer. http://ow.ly/bhp8F

• Taste Changes During Chemotherapy for Lung Cancer http://ow.ly/bhpb9

Find us on Facebook http://www.facebook.com/lungevity

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