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I wish the world was a better place


LilyMir

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The home phone suddenly rings startling me and causing quite a bit of alarm; we never use our land line, I don’t even remember our home phone number! My husband answers and the caller asks for me. I nervously pick up the almost archaic wired phone intrigued. Hi, the caller says, this is Astra Zeneca! My heart races and I ask, how can I help? The nice agent tells me that my Canadian province does not cover my (already approved!) targeted adjuvant therapy so far and thus I have to apply for their company’s compassionate use program. They want to see see if I am eligible.

My heart, already racing from all the shocks of surgery and adjuvant chemo sessions, races even faster. I ask with a nervous laugh, how much is it? She says about $10K/month. Ten thousand dollars. Per month. For a pill-a-day that can save your life. My hands start shaking a bit, this flimsy stupid coil phone handle is so hard to use. The agent asks me if I have insurance. Luckily I do, through my work but I am not sure they cover this, so she gets busy taking all my info to chase up my insurance. My scientist brain immediately starts to think. Huh, even if insurances pays, if Tagrisso is actually good, and I live long, soon enough I will have to start worrying about my life maximum coverage. I tell my brain to settle down, that if I do live long, that this would be a good bridge to cross.  Let me see if I survive first.

That night I could not sleep. I kept thinking of all those in the world who are told they cannot get their life-saving drug, or that they have to pay a horrendously large amount to stay healthy. I recoiled in horror as I remembered how my kid’s school is now refusing our request for him to remain masked in school. We want to protect him (as we did for almost 3 years now) from a terrible virus that killed many of our family members, that could cause him much short and long term harms, and that has the potential to cause his mommy who is formally designated Clinically Extremely Vulnerable untold harms, not only through infection, but also disruption of active treatment and more. The school thinks the pandemic is over and that it is time to get going with "normal life". To them and many in our increasingly ableist society, the school is telling my kid that his mommy is now expendable (to be clear, we never asked anyone to mask, just that we be given our own right to do so, and the administrators know all about my lung cancer situation).

As the night went and my insomnia lingered, I recoiled even more remembering the news of the night before. A shameful milestone for Canada. Euthanasia is now the 6th cause of death in my country. SIXTH. There are Canadians who were approved for euthanasia for having hearing loss. Literally, hearing loss was the only listed reason for one poor soul that was put down! I weep in disbelief how of little value human life has become, and how now, as a lung cancer survivor, I am part of the underclass, the immuno-suppressed, the vulnerable, those who are told to watch out for themselves, to stay at home, to consider that life is not worth living. 

I wish the world was a better place.

P.S. I have yet to get confirmation of my drug coverage. It sounds the chances are high I will get the drug either through my insurance or from Astra Zeneca as they encourage our government to publicly cover the drug.

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Lily,

Well said!

The admixture of scientific knowledge, belief systems, and profit is not well settled. I cringe every time I hear someone cry: "follow the science." These words translate to "do what I tell you to do because I know absolute truth!" Well, let's review absolute truth as it applies to human life because there are only two absolutes: I am born and I die! Just two but these are undeniable, incapable of scientific alteration, and the most perfect system to model. Indeed, these two align perfectly with the binary (base two) mathematical system that underpins all computer-based data processing. More interestingly, and in perfect concert with metaphysics, I do not have nor will I ever have any conscious awareness of time before birth or after death. So, that is it! I know with certainty I am born and I will die. Everything else is subject to a large margin of statistical uncertainty including "the science" everyone screams about!

It follows that if there are only two absolutes in life, then it should follow that these must be the most significant events of humanity: birth and death. And yet it seems we've gotten these two absolutes screwed up!

Most of us, regardless of nationstate affiliation, are an underclass. There is now and has always been an elite slice of society that operates well apart from the rest of us. The elites say we ought to be grateful their largess has produced an exorbitantly priced elixir that may extend our time by some forecasted amount. We ought to gratefully hand over our ten thousand dollars and "follow the science." Just "stay at home" and "consider that [our] life is not worth living." What was the name of that courageous Indian Maiden in the iconic film "Dances With Wolves?" Stands With A Fist! That is what we need to do much more of, especially to those that scream--follow the science!

Stay the course.

Tom

 

 

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