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Everything posted by Appleneesy35

  1. Cindy, I have four adult coloring books and I can honestly say they help me a lot! You really should get into them. They are definitely therapy for me. Some of them are quite challenging. But, I like the fact that they offer a challenge and that they can be used as decor in my house (I am not a great knitter).
  2. Wow, BJ! We almost had our surgeries on the same day! Congratulations on quitting as well. I guess that is a good reason to quit lol.
  3. I too was recently diagnosed with Adenocarcinoma. I was diagnosed in September of 2015. I just got out of the hospital and found out that I have a 1 cm brain lesion that seems to be metastatic from my lung cancer. I agree, it is a very scary diagnosis. I have been battling with depression myself. This is an extremely tough battle, with which you are not alone. I am here if you ever need someone to talk too. I go to Cancer Treatment Centers of America and UT Southwest. Right now, I have not been given any treatment because I have been too sick to receive treatments, which as you can imagine is frustrating. We are also waiting until my lung nodules start growing. I can relate to your fear. It is very real. Please do not hesitate to seek comfort in any of us. We are here to help.
  4. I found out today that the reason I have not received treatment is because of the pulmonary fibrosis. They are trying to figure out a safe way of treating me without doing anymore damage to my lungs. I was told that the pulmonary fibrosis would keep causing more lung cancer because my lungs are weak from the scarring. I was also told that the PF would take my life in three years and that I would need a lung transplant in a year. However; I cannot have the lung transplant because of the cancer. This is so hard for me to understand. And of course, I am terrified because I have three children that need me. I am so glad I have all of you as another form of support. Thank you all for responding to me.
  5. Starkey, I am oxygen dependent and I totally understand your fears of becoming oxygen dependent. It sucks...to put it nicely.We are so glad you found us. I am so sorry the treatments are so rough. I was diagnosed in September as well with Stage IV Non Small Cell. Keep your faith...that is what will help you get through this. The Life Line program, as Cindy mentioned, sounds like it would be a great fit for you!
  6. Tess, Welcome to the Lung Cancer Support Community! I am so happy to hear that you responded so well to Xalkori. I didn't have the mutation and because I have pulmonary fibrosis, I am still waiting on treatments (diagnosed four months ago). I will pray for your continued healing! Actually, hearing about the scans, medications, and side effects is one of the reasons we are all here. We are all here because of the same reason; lung cancer. So, keep on telling your story.
  7. Sio- Welcome! Although I didn't have a VATS, I did have a wedge resection via open lung thoracotomy. I wish that I would have been able to get the VATS, but because of the area I live in, it was unavailable. My cardio-thoracic surgeon told me that down time for VATS is less than that of a thoracotomy. I was also a smoker and found it easy to quit once I found out I had lung cancer. I did find out that my lungs are what is causing my lung cancer because I have a condition called Pulmonary Fibrosis. But, even though smoking did not cause my cancer, I quit anyway. Congratulations on your HUGE accomplishment. I want to wish you luck on your surgery and I will be saying a prayer for you. We are all here for you! God Bless You!
  8. Thank you. I also think this is a long time to wait to do anything. We are seeking treatment at Cancer Treatment Centers of America on the 1st of February. I hope I can get started in the right direction.
  9. Welcome to LCSC! I am so sorry to hear about your condition. I will lift you up in prayer. There are so many great people here. I am so glad you are a part of the forums. Feel free to ask questions. We are all here for you! God Bless You!
  10. Excited to be a Social Media Ambassador for LUNGevity!

  11. I was diagnosed with Stage IV NSCLC in September and am still waiting for treatment. Is this normal? I have had Pneumonia several times since my diagnosis and now have pulmonary fibrosis as well. Don't get me wrong, I do not want to have chemo or radiation...just wondering if this is normal. Thank you!
  12. Is the LifeLine program still available? If so, I am interested in joining.
  13. I just signed up to go! I am so excited to be a part of my first HOPE Summit!
  14. Thank you Denzie!! I will definitely sign up! I want to make a difference and help others like me.
  15. Thank you, Tom! I try to stay as positive as I can because I have three children dependent on me to survive. I have my moments when I get depressed and down, but then I realize that I am still breathing (well sort of) and get right back up again. Thank you for allowing me to be a part of this group! http://appleneesyeyeswideopen.blogspot.com/
  16. Hi all! I was diagnosed with NSCLC malignant to the lung as well as pulmonary fibrosis, emphysema, and RBI-LD. I was given three years to live. How did I find out I had this living inside of me? My illness began in August of 2014. I began running a fever consistently (twice a day) and just generally feeling tired all of the time. My doctor's thought I had some form of vasculitis. I had a CT Scan of the Chest in September of 2014 which was clear. Then, in March of 2015, I was hospitalized for a severe kidney infection. They did another CT of the chest because I had been coughing up blood. At that time, they found 20 nodules on both lungs. They wanted me to have it biopsied to confirm Wegener's Granulomatosis. I had a bronchoscopy in May and a nasal endoscopy in June. Both, were negative. In July, I met with a cardio-thoracic surgeon who scheduled an open lung thoracotomy. Nobody suspected cancer. Nobody. After surgery, my surgeon spoke to my husband and my mother and told them that the pathologist had believed it was cancer. A few days later, I was all alone in my hospital room when my surgeon and a few nurses told me that I have cancer. So here I am, four months later, living on oxygen. I go to Cancer Treatment Centers of America and UT Southwestern in Dallas. Currently, I am not getting treatments because I have had pneumonia six times since my surgery. I am excited to get to know all of you!!
  17. Hi everyone! My name is Shanna and I was just recently diagnosed with Stage IV NSCLC (Adenocarcinoma, Bronchioaveolar, and Squamous Cell). I found out today that they think it is metastasizing to my spine and liver. I was diagnosed on September 22. I feel very isolated although I do have an AMAZING support system. I just want to connect with people I can relate to. Feel free to contact me and read my profile. I am looking forward to being apart of your lives!
  18. It's my hubby's last night off...so I am going to cuddle with him and watch TV. I will admit, I have been feeling down here lately. Being sick all of the time will do that to a person. I wish I still had my grandma to call at times like these...she always knew just what to say to make everything better. I absolutely hate everything that cancer has taken away from me. I know I have to stay positive...and hopeful, but when you are constantly sick and constantly reminded that you cann...

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