[FDA Approves new ALK treatment - Please read]

I am one of those patients with the ALK mutation, and have been taking Xalkori (crizintonib)for the past 9 months - exceeding the predicted time before resistance sets in. 

Currently in complete remission....... watch this space.

 

Its so good to know there are second and third line defenses after this one stops working.......

[stage 3b non small cell/ my story]

Hi there 

I am a two year survivor having been diagnose stage IIIB in July 2013.

Chemo and radiation - no surgery - had positive response but it came back in January 2015.

I am now taking Xalkori, which, fingers crossed, is working.

In fact my last scan, a month ago, showed a complete response ie no evidence of disease at all!!!!!!

 

Hang in there - there are so many treatment options available now, and the targeted therapies are so positive, with more and more being approved each year.

 

The statistics are just that. 20% means some people live for 20 years some for 10 years a few (very few) do not live more than 5 years. Don't get hung up on those numbers, live and love what you have, your grandchildren and children.

AND - read up on it - those numbers are mostly 10 years old......

 

lots of love

T

[New to the forum here]

Hi

I was diagnosed with stage IIIB NSCLC in July of 2013.

I have the ALK mutation, went through chemo and radiation therapy that summer. Some success but had a recurrence in January 2015.

I have been taking Xalkori since March 2015 and am now in complete remission, so as they say - keep taking the 'drugs'.

I have no one I now who knows anything about lung cancer, I live alone, and basically just get on with the stuff of living. I expect folks are tired of hearing about my scans and medication and side effects....

 

I am planning on attending the Hope Summit in DC in April - and am looking forward to meeting other survivors there.

 

But I am feeling pretty good -