Thesenora

First time here for me...I too am on gilotrif...my oncologist was happy as well to share the news with me...side effects starting to subside a bit...went from 40 to 30mg...trying to cope...trying to enjoy...
sites like these are very inspirational and comforting....
not easy to find a fellow "gilotrifer" around town...but, at least these sites allow us to find one...
regards, 
jayjay

Thank you, Tom...
first time for me on this site...you have a great attitude and I love how you share your wisdom...oh my...yes...a rollercoaster indeed...
jayjay

Martin,
Unfortunately, the emotional roller coaster continues for me also despite more than 9 years of NED.  I still see my oncologist twice a year and knowing that and how persistent lung cancer can be keeps me on the roller coaster, disease-wise.
The road I choose is to realize that I can't get off the roller coaster (fear of recurrence) so I just try and find something in each day that brings me joy.  Joy is beyond happiness and it is the little things that bring the most.  Recent examples are: looking at the stars on a cloudless sky; watching my cat chase on a phantom chase through the house; admiring the wonderful produce at our town's farmer's market; and having a totally decadent and cholesterol-breaking hot wings and fries dinner.  I look for little things each day and when I realize I found one, I revel in it.
Thinking about my uncertain future, years ago, brought depression because of vast uncertainty.  My solution was to avoid thinking about it.  I can't control it, can't influence outcomes, and can't avoid consequences.  So, unless it is deliberate planning for a trip or a vacation, I don't think about what may happen next week, next month, or next year.  I don't always succeed but when I do, and I am getting better at it, and when I find something in the day that is joyful, I realize I am living the good life.
No one of us is alone.  Despite differences in our lung cancer recipe, we all travel nearly the same path.  There is treatment and then there is living.  Treatment is a living enabler and my challenge is to seek life meaningful to me despite treatment or fear of recurrence. 
Stay the course.
Tom