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Spagano5

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  1. Like
    Spagano5 got a reaction from Tylalla in Introduction and gratitude - looking for keytruda users   
    She was majorly dehydrated and had high levels of calcium - ONC thinks these were making her feel so bad/confused. Got fluids and zometa today. Hoping it will help


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  2. Like
    Spagano5 reacted to Susan Cornett in Mantra   
    We've all experienced that sucker punch to the gut when we, or a loved one, are diagnosed.  But several physicians have told me and others on this forum that a positive attitude is so important in this fight.  There are so many wonderful survivors on this forum that gave me, and continue to give me, hope.  
    I read this today and think it applies to all of us on this forum: Don't die before you are dead. So, I move on with life and have decided not to die before I'm dead.  Cancer be damned - I'm going to Hawaii in 4 months.
  3. Like
    Spagano5 got a reaction from Jennifer.LP in From Nothing to IV in one day   
    My mom also received what they considered palliative radiation on her lung mass (10 days as well) This procedure helped her pain tremendously. I am hopeful it will do the same for your brother. Keep us posted


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  4. Like
    Spagano5 reacted to Woodburn9 in Introduction and gratitude - looking for keytruda users   
    Hi, I have no treatable mutations. 
    Your mothers sweating may be due to the morphine. Alot of pain meds can cause sweating.
  5. Like
    Spagano5 got a reaction from Jennifer.LP in From Nothing to IV in one day   
    I understand that feeling of being punched in the gut with each test result and doctor visit. The dread is the hardest part for me. My mother was diagnosed in June with the same disease. Words matter and the doctor's approach to delivering this information seems so unfair. He is young and strong and otherwise healthy. It's very possible that he will have a mutation, in which case there is a lot of hope. I will pray for him and your family. No matter what there is always a plan. Keep us posted


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  6. Like
    Spagano5 got a reaction from Tylalla in Introduction and gratitude - looking for keytruda users   
    Thank you and I wish you the very very best. My mom is sleeping pretty much all day long. We had to increase her morphine to 180mg per day recently. So unclear if this is related to meds, the disease or the keytruda. Likely a combination. She's also sweating a lot. I just hope we can get in three infusions to see if it's actually working. Sending you my best energy.


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  7. Like
    Spagano5 reacted to LaurenH in Introduction and gratitude - looking for keytruda users   
    Hi, Stephanie,
    Welcome to LCSC. My name is Lauren and I am the Digital Community Manager for LUNGevity. I'm glad that you've joined this community and hope that you can make many meaningful connections with other caregivers and survivors. I'll encourage our members who have experience with Keytruda to respond to your post. In the meantime, please feel free to explore the discussion boards and blogs. Everyone LCSC member's story is different, but this is a great place to find inspiration and hope! 
    With gratitude,
    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation
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