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Dazy

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Posts posted by Dazy

    PET results

    in MEMBER UPDATES

    Posted

    Alfonse, and The Three Amigos!!!

    :lol::lol::lol::lol:

    I have often pictured mine as having a sort of 5-ring circus (or should I say 5 lobe...? :roll: )goin' on in there - ya know when they say "wait & watch"...? Heehee...what do they expect to see? Kidding.

    Aaron, I am so happy for your good report. As for the mandible thing? My last PET/CT showed uptake in the palate/tonsil/throat area (I have no tonsils) I kept joking that it was from talking too much. Actually, I have some weird, bony growth on my hard palate - still haven't determined the clinical significance of that, if any...

    Anyway - CONGRATS!!! Think I'll bake some brownies in your honor... 8)8) Again, kidding...(?)

    Yours in HOPE!!!

    Stacey

    P.S. Tell Alfonse and the "Amigos" it's time for them to go, now!!! :wink:

    Great news!

    in HOPE

    Posted

    WOOOOHOOOO!!!!! 8)8)8)8)

    What a wonderful gift to give yourself!!! It's been over 4 years for me...sometimes it is STILL hard! But, oh so worth it!!!!

    Keep chalking up those days!!! You can do it!!!

    Yours in HOPE!!

    Stacey

    Prayers for Kasey

    in GENERAL

    Posted

    TONS of hugs, Kasey! Here's to NOTHING but GOOD results, and answers, and better days ahead in the New Year, huh?

    We must've been hit around the same time...I've been on Prednisone, again, for the past week, and a half...STILL can hear me wheezing from across the room... :evil:

    When are your scans? I go for mine on the 8th. Holding you close in prayer, my friend!!! Feel better, soon!!!!!

    Yours in HOPE!!!

    Stacey

    Stayin' with the Plan

    in HOPE

    Posted

    Tracy, this news has made my day!!! Heck...it's made my MONTH!!!! I am SO HAPPY for you!! 8)8)8)

    Everyone join me at Cindi's for a round!! Tracy, we toast your excellent results, & your 40th, and wish you MANY, MANY, MANY, (MANY x 100) more!!!!!

    Thanks for putting a smile on my face!!!

    Yours in HOPE!!

    Stacey

    Xray NOT a good test for CANCER....

    in GENERAL

    Posted

    Mine were not seen on chest xray, taken only two weeks prior to my CT scan, which showed, at the time, 4 nodules. The largest was 1 x .7 cm.

    You may opt for CT w/o contrast. I have allergies to the iodinated contrast, so mine are done without. Personally, I wouldn't trust chest xray for lesions smaller than 1cm.

    Good Luck! Insist on what you KNOW is best for you!

    Yours in HOPE!!!

    Stacey

    Very Scared

    in INTRODUCE YOURSELF!

    Posted

    Hi Beth ~

    I am so sorry you find yourself here, but you will be grateful (under the circumstances, anyway... :( )you found this place. LOTS of support, and understanding, as well as valuable info can be found here.

    Know that your dear Mom, as well as ALL of your family have entered a powerful circle of prayer/positive thoughts (whichever you prefer :wink: ) - I'll start right now!

    I'm glad she has you two close by, and I agree, it IS helpful, to BOTH of you, I believe, if you are present at her appointments. You can "pitch" your presence to her as an "extra ear" since there will likely be a great deal of information for your mom to process, and she may miss something that you catch, etc. Most patients benefit from this, anyway. Hopefully, your mom will understand, too, that ignorance is NOT always bliss!! Especially in these circumstances, and the BEST way to reduce your worries is to let you be an ACTIVE participant & advocate on her behalf.

    I hope your Mom's docs will have the wisdom to guide her in the right path for a positive outcome. And peace, and strength to your Mom, (AND your family!!!) whatEVER path she chooses. (((HUGS)))

    Yours in HOPE!!

    Stacey

    Aloha

    in GENERAL

    Posted

    CHEERS...To Ohio, friends, and NEW BEGINNINGS! And the fine, warm, and loving family we have here!!!

    Cindi, I do hope that your new home brings you all the peace, and joy you SO richly deserve!!!

    Hugs!

    Stacey

    satellite walkers...

    in GENERAL

    Posted

    Me too... :(:? Ditto with the donation boxes. I had alot of initial interest (being polite perhaps???) But when it came time for placement, all I received was referrals to other corporate entities for authorization... As has been said...seed planting...maybe. :?

    I got sooo frustrated that I actually started another venture simply as a vehicle for LC fundraising! I've started a candle biz for the sole purpose of donating to LUNGevity - a year round fundraiser, so to speak. I'll post details & link in another post, after I've had a chance to run it by Katie, and get approval. In the meantime...anyone who would like info may PM me.

    Keep the faith, friends! In time, we WILL be the "mouse that roared"!!! Just "wait & see"...(Lord, I've heard THAT term enough in the past year & a half... :lol: :lol: )

    Yours in HOPE!!! (and frustration :shock: )

    Stacey

    Is it me?

    in LUNG CANCER IN THE NEWS

    Posted

    So to me, that would mean the ct scan may pick up something that the xray does not. They had mom get the ct scan after the chest xray. So maybe critics are sidestepping the real issue which is they wouldn't know what to do if something very small showed up. I guess they could keep an eye on it.

    Bingo!!! Xrays do not reliably show nodules smaller than 1cm...my xray showed nothing, and it was taken two weeks prior to my first CT which showed 4 nodules! However, no docs I've seen feel that my nodules are "resectable" or able to be biopsied, as yet. So, yes, they keep an eye on it.... :?

    Is it me?

    in LUNG CANCER IN THE NEWS

    Posted

    My personal take on the research, from my own experience, is that when everything is said and done it will be shown that spiral CT screening CAN detect more small/early LC's - however, it will not translate into a true change in survival rates until they have the technology to DO something about the findings. Unfortunately, even when small tumors/nodules are discovered, (peripherally - central tumors can be dx'd by bronchoscopy) they (supposedly) can currently do NOTHING with them, except wait & watch 'til they get large enough to biopsy. Until there are safer surgical biopsy alternatives available to sample sub-centimeter nodules, we will probably be stuck with simply watching these nodules, 'til they are of a more operable size, and subsequently, then visible on chest xray, anyway... :roll:

    Aaaargh!!! The above is simply my opinion based on frustrating experience... :shock: I'm still an advocate of spiral CT screening, though. 8)

    Yours in HOPE!!

    Stacey

    Skeletons in the Closet

    in NSCLC GROUP

    Posted

    One of our members has the wonderful saying on her profile about the proverbial "other shoe" - "So if we're waiting for the other shoe to drop, does that mean when it finally does, we have a matched pair?"

    Gotta love that!!! Go get 'em Debi! You can DO this!!! As for the flying thing....I like my feet on terra firma, too! I think I would have to take a Xanax...then I'd probably miss my flight, or try to get on the wrong one, or.... :roll:

    Congrats, and good luck!!

    ~ Stacey

    "New Normal"

    in GENERAL

    Posted

    Hey Don!

    Yeah...new normal BITES, and I haven't even received a dx yet :roll:

    What bites even more is that you felt hesitant to express that here, and carried it around inside for so long!! You have been a pillar for so many. Being a survivor doesn't mean you have to be Pollyanna, ya know??? So rant, scream, vent, whine, etc. ALL you want here!! Then we'll help you get back in the hunt again, okay? In the meantime, LOTS of prayers, and positive vibes for a fried tumor!!!

    Understanding ((((HUGS)))) headed your way. Maybe that Harley & sunshine ain't such a bad idea, either! :wink:

    Yours in HOPE!!

    Stacey

    good news, bad news, and then more good news

    in MEMBER UPDATES

    Posted

    Well, Joe, certainly NOT what we wanted to hear, but I am glad that they found it - with the lack of symptoms, it could've gone unchecked for some time longer - now you have options, and the ability to have it resected. I pray your surgery will go well, and that you will suffer NO long term effects! Your wonderful attitude is truly a testament to your strong faith - I just KNOW that strength of faith will bring you through this, too!

    Prayers for healing!!!

    Stacey

    nodules calcified and some aren't what am I to look forward

    in NSCLC GROUP

    Posted

    Hi there, Debbe!

    The first thing that popped to my mind, while reading your post, was Valley Fever, aka Coccidioidomycosis. It is very common in the Southwest. Have you been tested? When they biopsied your liver, did they say what type of "benign" entity it was? VF can attack the organs you've had affected. It can also calcify lesions. Histoplasmosis can do the same.

    In the meantime, welcome! These nodules are really nerve wracking, but, at least they seem to be keeping a good eye on whatever it is. Keep asking, and don't quit 'til you get the answers you need! I'll be praying that it isn't LC. Keep us posted!

    Yours in HOPE!!

    Stacey

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