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About Suzanna

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  • City
    Estes Park
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  • Country
    United States
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    Not a patient
  • Interests
    Caregiver support, survivor stories, patient resources

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  1. Thank you so much for this!!! These kinds of discussions are exactly why this forum is so valuable. I appreciate your advice more than you know!
  2. Good news! Yesterday's scan revealed no nodules, masses or pleural effusions! He did have some groundglass opacity which we are sorting through, but the team assures us this is not related to cancer and often presents with any number of respiratory ailments. He just had his first dose of vaccine, so I'm wondering if that has any impact. I appreciate you all reassuring me (time and time again, and many more to come...) that I am not overreacting here.
  3. Thanks, Tom! Always appreciate your insights. I purchased Scanziety and have it on my Kindle. Now would be a great time to start reading it, because this will definitely be our life for (hopefully) many years!
  4. Thanks, Lou. I think you are absolutely right about the benefits of this group! Take care!
  5. If it feels this way for me as a caregiver, my heart just aches for the patients and survivors like you and my husband. Wishing continued good news and good scans for you!
  6. Thank you Judy! I appreciate the support!
  7. LexieCat, I have played over in my mind every physical activity he's done from bringing in wood to shoveling snow. I am very glad to hear your aches and pains were just those and nothing more!
  8. Very sorry to hear about your father, but as others have stated, you are in the right place. My husband used to always say that he would never put himself through chemo, until he was faced with his own stage IV diagnosis in September. He had 8 tumors that were spread from his spine to his hip. He went on the "triplet" and had minimal side effects. In fact, I think radiation might have been the hardest thing for him as it absolutely knocked him out. He never lost his hair, never really lost his appetite, no skin issues... just fatigue and an occasional fever. He received the best possible diagn
  9. Hey fellow caregivers! I had a moment last night that I think you all are uniquely positioned to understand. Adam's journey began with a stage IV diagnosis Sept. 2 and by early January his post-treatment scans showed NED. What an incredible gift! Last night he shared with me that he's having some dull pain again near his rib cage that he can feel both in the front and back. I'm acutely aware that NED does not mean that he is cured or that cancer is out of our lives forever, but I was surprised by my reaction to this news. Fortunately, his next scans are on Tuesday of next week, so we don't hav
  10. I apologize for being late to respond, but would love to contribute if it is still applicable. Like everyone else, the news of my husband’s diagnosis was earth shattering. Further, when we learned it was stage 4 and began doing our own research in what that meant, it was even more terrifying. Finding Lungevity was a gift that I cannot describe. As the caregiver, it was a relief to see others in real time sharing advice - applicable advice - and offering words of support and encouragement. It is a unique and terrifying place to be and knowing there is a whole community out there who understands
  11. I am so grateful for your insights - they really help! A new twist has developed for us in that unfortunately, we were evacuated from our home because of the wildfire burning close by (about 5 miles right now) and our community is in imminent danger. Not at all what we need, but we are trying to make the best of it. Adam's next treatment is Monday, so we're hopeful that we can be home for that, but if not, we are safe and comfortable and will do the best we can. Adam is handing all of this incredibly well. As for me, this put me just a little over the edge. Good character building or something
  12. Thank you!! Fantastic advice and I really appreciate it, especially that last reminder. I’m tempted to print that out and tape it all over the house.
  13. Thank you both - these are helpful responses! I just want to be sure I'm doing the right thing and either not pushing too hard or not being too lax. It's encouraging to hear your experiences!
  14. Hello all, As you know, I'm completely new to this and haven't yet had a chance to participate in a Zoom meetup or other group discussion. Adam's first treatment was two weeks ago today, so in one week we go back for the next. The side effects have not hit him as hard as we expected, with the exception of fatigue. I recall early on in this journey that it was advised to try to continue hiking, though maybe smaller hikes (we usually put in 8-10 miles), and that remaining active would help him feel better. That thought just baffles me now as I cannot even imagine getting him to take a 30 mi
  15. Angel, I am so very sorry for your recent diagnosis and what you and your family are going through. My husband was just diagnosed in early September, and at 53, his kids are all grown. There is so much that does not make sense when we hear this news and the shock takes some time to settle in. The BEST thing that you can do is spend time on this forum, talking to people who are experiencing this first hand. It took me a few weeks to find it and I'm the researcher, so like your husband, I was the one spending miserable hours on Google, digesting way too many irrelevant statistics. I hope yo
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