I am an ALK mutant taking an inhibitor drug very similar to Tagrisso. We all learn to live with the uncertainty of what to do when our magic pills stop working which can be YEARS from today. So for now I live life everyday, laugh and try to do at least one fun thing each day. While I’m no longer working, my life as a continuous learner continues. I’m into tai chi ( but not very good at it yet so who cares? ) and learning this whole Food as Medicine thing in the hopes of increasing the length of the inhibitor ride.
Ask your onc what the Plan B is if it gives you some peace of mind. (sometimes EGFRs go onto a chemo cocktail successfully) like Carbo/Taxol. My onc gave me Plan B & C with the hope in another year or two there’s going to be a next gen inhibitor around
With all the EGFR research ongoing, clinical trial participation is a strong possibility. I’d like to think that when the time comes, there will likely be a new & better treatment even possibly a cure on the horizon.
Try not to let the black cloud take up too much space.
You might find some more specific answers on the EGFR Facebook page.
Michelle
Dear Michelle,
I realize this post is from April 26, 2019, but WOW! was it helpful for me TODAY! I am going to savor your supportive message and remember your words of wisdom! Thank-YOU! Susan
What happens when Tagrisso stops working?
in LUNG CANCER MUTATIONS
Posted
Dear Michelle,
I realize this post is from April 26, 2019, but WOW! was it helpful for me TODAY! I am going to savor your supportive message and remember your words of wisdom! Thank-YOU! Susan