[MK]

Hi Karen,

     Thanks for reaching out. My genome sequencing showed L858R and also EGFR R836C. 
I have had a wonderful summer with no side effects affecting my life. In fact I think I have been even more active. I suppose it’s a subconscious reaction to having stage IV lung cancer…. Doing what I can while I have the energy. My scans have shown a good response to tagrisso in that the tumors have shrunk. I do get very frightened when I feel twinges in my lungs or back. 
It will be one year in early November that I have been on tagrisso. When I read the average is two years before one’s body builds up a resistance it’s scary. That said I am taking it a day at a time and I am grateful for the beautiful days I have had. 
    So you visited the cape from Portland Maine or Oregon? Hope you had a pleasant time and good weather. 
we keep on truckin’    Mary Kate 

[MK]

Hello,

   I am new to the forum. I have stage 4 NSCLC adenocarcinoma lung cancer. I had a lobe removed in July 2020. Cancer returned Oct 2021. I am grateful to have EGFR mutation so am being treated with Tagrisso since November 2021. So far minimal side effects and I am living much like I was before my diagnosis. It would be good for me to connect with others in similar situations. 
thanks, MK