Bri Hin

Thanks Lily. I don't know if they tested it for mutations but I'm sure I could ask my surgeon or oncologist and find out.  They did do all of the genetic testing though (my mother also had breast cancer at a young age)  and I was negative for all of them.  
As for walking,  I'm walking about 10,000-12,000 steps a day.  I teach kindergarten. I find myself extremely exhausted daily.  I'm definitely not who I used to be and I'm just having trouble coping. I also have a 9 year old and 13 year old.  
I didn't have any types of therapy.  They said because of the size of the tumor and the staging, that I didn't need it. They never even offered it.  They said the standard treatment plan is what they follow (they gave me a sheet that showed each path)  and told me it wasn't necessary. I'm scared of it recurring.  The Dr also told me I have inflammatory bronchialitis but I have been extremely ill since surgery (had bronchitis twice and possibly pneumonia)... it's my students getting me sick! 

On August 25, 2022, I was diagnosed with nsclc. I am only 37 years old and a non-smoker. As you can imagine,  I was a bit blindsided. I definitely didn't expect it to be cancer.  October 12th I had a RATS Lobectomy. Today, I am 6 months out from surgery and already in remission (it was stage 1).  People keep wanting to celebrate that I made it 6 months cancer free but it doesn't feel like a celebration.  I'm trying to stay positive and look at the bright side of things but I'm having a hard time.  I'm hoping to talk to people who get it.  I also don't know what environmental factor caused my cancer and its driving me crazy.  I keep wondering if I'm still doing the same thing that caused it in the first place... I'm also having issues still with numbness across my stomach,  a lingering cough,  and get winded so easily.  All of the doctors keep saying I need to lose weight... but how?! Seriously! Lmk if you relate.  
-Bri

I was 36 years old in March 2022 when I had an mri for an unrelated issue on my neck (a hunch back? They were checking for a mass in my neck). They called me to say my neck was fine but they saw a 1.6 cm nodule in my upper right lobe.  They wanted to do a CT. To be honest I didn't take it seriously and life is busy... I didn't get the CT until May 2022. The CT showed a 1.6 cm mass that had lobulated edges.  The Dr said we should move forward with a biopsy. I had issues with insurance referrals... August 16, 2022 I had a biopsy. I had a hard time with the biopsy. I was taken aback when I began coughing up a pillowcase full of blood. August 25th the Dr told me over the phone that the tumor tested positive for cancer.  I felt like I was being watched over,  it was the grace of God that my tumor was even found. I had zero symptoms when I was diagnosed. By the time I had surgery on October 12th, the tumor had grown to 2.4 cm. I had the RATS Lobectomy and was released after 3 nights. The worst part was the chest tube.  I was in so much pain they kept giving me pain medication but then I'd throw up all my food. Once they removed the chest tube I got significantly better.  I expected to not be able to do anything for myself after surgery but recovery was better than I expected.  My husband was able to take off 5 weeks of work to be with me. I was out of work for 2 months.  Today,  I am 6 months out and still trying to heal and adjust to the fact that this is my new life.  I'm in search of a local support group if anyone knows of one in so cal. Thank you! 

On August 25, 2022, I was diagnosed with nsclc. I am only 37 years old and a non-smoker. As you can imagine,  I was a bit blindsided. I definitely didn't expect it to be cancer.  October 12th I had a RATS Lobectomy. Today, I am 6 months out from surgery and already in remission (it was stage 1).  People keep wanting to celebrate that I made it 6 months cancer free but it doesn't feel like a celebration.  I'm trying to stay positive and look at the bright side of things but I'm having a hard time.  I'm hoping to talk to people who get it.  I also don't know what environmental factor caused my cancer and its driving me crazy.  I keep wondering if I'm still doing the same thing that caused it in the first place... I'm also having issues still with numbness across my stomach,  a lingering cough,  and get winded so easily.  All of the doctors keep saying I need to lose weight... but how?! Seriously! Lmk if you relate.  
-Bri

I have stage 4 lung cancer. I survived stage 3 non Hopkins lymphoma. I was told my cancer is treatable, not curable. The cancer is in my right lung, pleura and bones. I have 40% of my normal lung capacity which was already compromised by other medical issues. I have scleroderma, a auto immune disease that affects the skin and connective tissue. I have it systemically, in my lungs and gi system. Because of my underlying diseases I am unable to do any radiation, take any immunotherapy meds and participate in any trials. I have had 3 of 4 chemo treatments, carboplatin, avastin and pemetrexed. After my 2nd round the PetScan showed some reduction of the cancer. After my 4th round we will repeat the scans. Then I go to “maintenance “, where they remove the carboplatin, the “big gun” and I go forward with treatments for every 3 weeks for the foreseeable future. I am really nervous about them taking away the carboplatin and just being on maintenance. I feel like I’d just be waiting for the cancer to increase. My Dr says the research has shown that the benefits don’t our the risks of continuing with the carboplatin. Last week a good friend of mine that is usually really positive called my cancer “terminal”. Hearing that freaked me out. I don’t think of myself as terminal even though I know it’s not curable. My mother died of lung cancer, she lasted 9 miserable months after diagnosis and a good friend of mine’s husband died of lung cancer, he lasted 2 years. I have not asked for a prognosis. I feel it’s still too early as I’m hopeful my next scan will show further reduction of the cancer. 
So now all I can think about is “terminal”. At what point are you terminal? Anyone on the same cocktail as I’m taking? How have others response to chemo been? Is there hope to lasting more then a couple of years?