Maryanne87
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Maryanne87 got a reaction from Tom Galli in NSCLC Stage 4 with Met 14 Skipping Gene
Hi -
I was diagnosed with Stage 4 NSCLC with Met 14 Skipping Gene in November 2022. I have METS to the bones and liver. I started on Tabrecta (Capmatanib) in December. My February scans showed shrinkage in my lung tumor and decreased lesions on my liver. We were thrilled!
However, my most recent scans this week; showed increased lesions on my liver; destructive lesion on my sacrum with possible fracture. It also showed new peritoneal metastasis. A new area of bone cancer in my right rib. All other bone metastasis showed improvement.
My chest CT scan results are not in at this time. However; I am really worried and scared that this level of progression in a short amount of time means a poor prognosis. I meet with my oncologist next week however; she is out this week and I cannot message her.
I would appreciate any advice you can give me.
Thank you.
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Maryanne87 got a reaction from LouT in NSCLC Stage 4 with Met 14 Skipping Gene
Hi -
I was diagnosed with Stage 4 NSCLC with Met 14 Skipping Gene in November 2022. I have METS to the bones and liver. I started on Tabrecta (Capmatanib) in December. My February scans showed shrinkage in my lung tumor and decreased lesions on my liver. We were thrilled!
However, my most recent scans this week; showed increased lesions on my liver; destructive lesion on my sacrum with possible fracture. It also showed new peritoneal metastasis. A new area of bone cancer in my right rib. All other bone metastasis showed improvement.
My chest CT scan results are not in at this time. However; I am really worried and scared that this level of progression in a short amount of time means a poor prognosis. I meet with my oncologist next week however; she is out this week and I cannot message her.
I would appreciate any advice you can give me.
Thank you.