Johnny
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Posts posted by Johnny
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Hi Karen,
I'm assuming the needle biopsy I mentioned and the tissue biopsy you mentioned are the same.
I start Carboplatin/Pembrolizumab/Pemetrexed treatment on Wednesday. I have it again 3 weeks after then a CT to see if the tumor shrinks.
J
- LouT, tgif i guess and RJN
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No implications at all. Just a point of interest.
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Hi Karen. I talked to Houston and they did confirm what I was told.
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Hi all!
After needle biopsy, PET, and CT scan my oncologist at Fred Hutch Cancer center told me today I have stage 4 LC. He's now trying to determine if it is smoking related or genetic. They took some blood for the Guardant360 genetic test and is getting PD-L1 information as well.
He says the treatment will vary according to what these tests say. If genetic, treatment can be oral meds, until they stop working.... those dang tumors can be tricky.
He says the PD-L1 will determine if I can just go the immunotherapy route, combine with chemo, or just chemo. Since I have very mild MS he said immunotherapy could possibly turn that mild MS into something ugly but will cross that bridge when we get there.
I have had pain in my back and when breathing deep and sleeping isn't easy. He said the best thing for the pain would be opioids. I resisted but he told me they won't award me any medals for suffering and to just give them a try. I hate opiods for many reasons but one side effect I noticed in the past is constipation.
If I can answer any questions about my journey so far, ask away!
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Hello all!
I have been told that the Arizona MD Anderson uses the name and the protocol but are not affiliated with Houston.
Does anyone have any knowledge of this?
Be Well
J
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I had the meeting with the pulmonologist today. He says from what he can see it looks like lung cancer probably stage 3. His plan is get me in for a needle biopsy, PET scan, and MRI of my hard head.
. I'm trying to figure out if the needle biopsy is the best option or should I push for a Bronchoscopy. I should probably just stay out of the way and let him and the other doc's that will be coming at me do their job.
The other thing is when to share this with the family. My wife and I are separated, live in different states, but are on good terms. One of my kids lives abroad and the other in a different state. We were all planning on meeting at my wife's house next week for 10 days but these up coming appointments that are being scheduled might change that for me. I could just get everything scheduled for when I return but the doc says we need to act now.
I know sharing this info with them is going to be devastating. I believe it will be the hardest thing I will do on this journey. I'm not shedding tears for me, I'm shedding tears for them. Anyone else feel or felt like me?
Hugs to all going through this.
J
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Diagnosis
in MEMBER UPDATES
Posted
Hi tgif,
Thank you so much for responding!
I had a bag of Pemetrexed followed by the Pembrolizumab and finally the Carboplatin. It took about 90 minutes.
I go again in 3 weeks for the same.
I’m taking folic acid and ferrous sulfate, since the are telling me I’m anemic. I also need to take steroids the day before and after treatment. they also give it to me by IV the day of. I also am getting the b12. The team has been really good about explaining my blood work and your links are great!
It’s been 6 days and I feel blessed because so far I am doing ok. A bit more tired than usual but I think that is the way this works. I did wake the day after treatment with crazy chills, but they subsided in about 2 hours. No nausea so far but I sure am constipated and nothing I’ve tried so far is working. . I am losing weight like crazy but appetite is good and I’m eating everything. :)
Thank you again for sharing your journey and your well wishes, it certainly made my day.