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Ellen B.

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Posts posted by Ellen B.

  1. Thank you all for posting! You're so supportive, we are very happy to 'be' here!

    Henk has an appointment to see a pulmonary doctor (in stead of an oncologist???) next Monday and a second opinion doctor on Tuesday!

    Leslie, the website you found was a hit! It was exactly the right website on the right time! Wow, thanks!

    I'll keep you posted!

    Ellen.

  2. I'm 'new' here and I think this is a wonderfull support group!

    I've visited several other support groups (including Dutch and German support groups) as well.

    I was allready sad when I started visiting these groups, but was still more sad after visiting them.

    But this group is different. It has a very positive attitude and, sometimes, a 'laugh' or a 'fun' subject. I LIKE IT A LOT! I agree with Jamie, it's good the way it is right now!

    Ellen

  3. Thank you all for your support! You are wonderfull!

    Frank, I don't think Henk has a good team of doctors.

    This afternoon, he had an appointment to see a radiologist and an oncologist for the first time.

    Well, the radiologist was present, but not the oncologist.

    And the radiologist said that he needed the assistance of the oncologist to decide on the chemo+radiation.

    Henk doesn't have the name of the onco. The radiologist called the pulmonary doctor who made the appointment, but the man was on a vacation.

    So, Henk didn't see the oncologist and we have to wait....! What do you think of that?(':roll:')

    Ellen

  4. Wow!

    Thanks for your replies!

    Henk isn't able to 'write' himself, he is having a lot of pain in his shoulder due to the tumor. He's on oxycontin for the pain. But he also wants to thank you for the replies.

    Donna, Henks heart and condition are good and his PFS's are oke. He has some Emphesema, but not severe. The 'only' reasons they don't want to operate are the location of the tumor and the fact that the border of the tumor is laying against the vertebra.

    Kasey, I don't know if there are many differences between the treatment in Europe and in the USA.

    Thanks all of you, I'll keep you posted!

    Ellen.

  5. Hi all,

    My name is Ellen, I'm Dutch.

    My friend, Henk (71), is diagnosed 9/14 having NSCLC, stage III (we don't know about A of B), a pancoast tumor.

    Dr. (a lung-specialist) says the tumor isn't operable, due to location and growth onto (or into???) the vertebra.

    Henk will be seeing an onc. tomorrow, to decide what to do next: chemo, radiation or both.

    We are very upset that there is no possibility of an operation. Looks like a death sentence to me!

    I hate the LC, but I like this board very much. We also have a 'board' in Holland, but Holland is a small country and there are only a few people writing in that board.

    So, thank you for 'listening'! I'll be back!

    Ellen.

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