hollyanne
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Posts posted by hollyanne
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I think today was the day they went back to the oncologist. Has anyone heard from her?
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Joanie -
Wish I could tell you something about post traumatic stress - I can't. But, I do have a lot of experience with anti-depressants -- you have to give them a chance to help you out. Biochemical changes take a minimum of 7-10 days with most of the medications. I just went back on Prozac myself....Maybe you could try another one? At least then you would be physically able to deal with whatever is going on...
Lots of love and well wishes,
Holly
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HOORAY. That is great news..... I am so glad you found the cause and it isn't LC related. HOORAY for bad wisdom teeth and cavities.
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All -
Thank you for all the advice...I have a bit of a "pass" for a week or so. My husband (Patrick) has to be away on business til next Tuesday and then is going to fly back to Utah to be with us for a few days...at that point, I will start making some decisions. I will definitely ask my dad to come visit --- he would never ask me to stay here, although he keeps telling me how grateful he is that Caroline and I are here.
It just sucks as all of you know.
Love,
Holly
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Karen -
My mom had some of the same symptoms - we had a brain scan which was clear, but it was caused by a tumor growing on the neck and putting pressure on the spinal cord -- we were able to radiate it the first time and the symptoms went away. Prayers that it is something treatable...and quickly.
Love to you,
Holly
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Hi,
Everyone knows the scan fear...everyone. Unfortunately it is part of the roller coaster. We will all be thinking about you. Know that the radiation starting next week will really help with the pain and will shrink those areas radiated.
Keep us posted. Prayers for peace for all of you regardless of the results.
Holly
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My concern is that it has only been three weeks, two weeks since her memorial......maybe I am not ready to leave "her" house either. Hell, I don't know. I just know that it sucks.
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No but I road a roller coaster in a swimming suit. (Don't ask.)
Have you ever called sick into work to go shopping?
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Hi -
It has been three weeks since my mom died --and some days it feels impossible to go on, and other days I am o.k. Having Caroline is such a blessing as she forces me to keep going every day. I know I will be o.k. -- my mom is at peace, I just miss her so much.
I moved to Utah to be with my parents in September. I have been home to San Francisco two times since then (mostly because I couldn't bear to leave my mom, but also as I got more pregnant it was tougher to travel.) Anyway, I am still here with my Dad, and I need to go back to my life at some point.
My mom and dad were soul mates; she was the hyper social one and he is more reserved. He is absolutely lost without her and it breaks my heart. I just can't imagine taking the baby and leaving him in this big house alone. I went from taking care of my mom to feeling like I need to watch over him.
I could use some prayers and advice. My husband is very understanding, but he can only come "visit" so often, and he misses his baby. Yet, I figure that in the grand scheme of things staying here another month is such a small scarifice. We have no other family in the area....and he has people who will support him, but he isn't ready for that yet.
I pray I will know when the time is right to go.....
Thoughts?
Thanks,
Holly
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HOORAY. Some good news! I am thrilled and relieved for you. Go do something dangerous...like a major shopping spree!
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Hi Kimberly -
After a lot of thought, I quit my job to be with my mom...and I will never regret that -- yet, wait til you see how he does with more chemo. I agree with Lori, the hardest thing is to know when you really have to be there -- but you will know, it became very clear to me one morning.
I am thrilled for your dad -- that is such fantastic news.
Holly
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Hi -
My mom's was covered my insurance if it was given at the same time as chemo (in the actual IV) -- ask about that. What type of insurance is she on?
As far as the doctor's go -- can you make a separate appointment and take in all your questions? Or does the doctor have a patient advocate who can help with questions/answers? If you are not finding out what you need to make your comfortable, you may want to look into another onc. Ours was great, and always spent the time to explain the pros/cons of everything.
Hang in there. You are doing a great job.
Holly
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Dear Karen -
I am so sorry that it looks like the end of treatment may be coming. I hope they can keep him in the trial. I understand how strange it is that he has lung cancer with everything being in the liver. The same was true with my mom, except she had everything in the bones...the spot in the lung never grew larger than the size of a dime.
You have been so amazing -- the last thing you have done is let him down! My gosh, you have been the greatest advocate anyone could want -- and such a loving partner.
If treatment is coming to end, please, please know that hospice will be a great relief for you. They will treat every symptom, and you can be sure he will not be in any pain.
I will pray for peace and strength for both of you on Thursday -- and that you will have God's grace to deal with whatever you hear whether it is good or bad news. As you know, everyone is here for you -- whatever you need.
All my love,
Holly
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Hi -
There are chemos which are less toxic like Gemzar/Carbo and are very effective for many people. June is not that far away. Focusing on the baby as a goal is great idea. I am so thankful that my mom made it to see her first grandchild - my daughter. The look on her face when she saw the baby is worth everything my family went through prior to the date.
Lots of love,
Holly
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Oh Tami -
My heart aches for you. No not beat yourself up for being depressed -- you have every right to be depressed, to even feel sorry for yourself...yet it appears from you post that you don't want to...having gone through a major depression a few years ago, I know it can take dedication to find the right anti-depressant... you want to get to the point where you are physically CAPABLE of feeling better...
I wish I has magic advice for you, I don't. But I can tell you that you will be in a lot of peoples' prayers tonight -- including mine.
With Love,
Holly
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Paula -
Congrats on your baby! I hope that the cancer is contained to the one lung and that agrressive chemo can knock it out....On the baby front, I too was about 4 months pregnant when my mom was diagnosed - I am proof that a beautiful, happy and healthy baby can come out of the most stressful situation.
Please keep us posted and know that many, many people will be here for you whenenevr you need support or input.
Welcome.
Holly
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Oh Sue -
You guys have been through so much. I hope you get some good news this week. I will add you to my prayers tonight that you recieve God's comfort and peace. It has been such a terribly tough month.
Holly
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Linda -
You are doing everything right....hoping this week goes as well as can be expected for you. Becky is right on...do see if you can meet with the doctor separately. There were many questions we didn't want to ask in front of my mom...and that I think my mom didn't really want to know the answers to.
And BTW, crying is good. I just realized today that I haven't worn mascara in 6 months.
Holly
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Please. please do not second guess what you did. You did the single most important thing... you loved you dad and di whatever you could to be with him. That is all that matters. My mom and I talked alot about Heaven, the fact that she didn't want to leave us but that she wasn't scared... my mom was a talker, as am I. If this had happened to my dad, it would have been a completely different story! I am sure your dad is so proud of you and is smiling as he soars around Heaven. You were his loving daughter, he could not have wanted more..., May God give you peace during this tough time.
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Hi -
I know the jaw complications can happen with Avastin -- see below. Looking for info on the Alimta as I have not seen that.
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Amen.
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Hi Sandra -
I can't help you with either question...but welcome. I am sorry that you had to find us, but I assure you now that you have spoken up you will get tons of support and love. As you know, the journey is full of ups and downs...I am sure the last six months have shown you that.
I am unsure as to why they can not radiate, unless they think the side effects would be greater than the payoff (since he is having good response with the chemo) -- yet someone on the board will have an educated answer. You will start getting lots of answers/input pretty quickly.
Welcome. We are here for you!
Holly
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Hi Paula -
Welcome asn as everyone else has said //I am sorry you have to be here. I can certainly relate to the pain of having a mom diagnosed. I didn't think I was going to make it through anything the day I found out...yet you will have more strength than you ever imagined. I can't give you any advice better than what everyone has already said...yet now that there is a group of us who have either lost moms or are fighting the battle with them right now...you will receive a ton of support throughout your journey -- which will be marked with good and bad...be thankful for the good times and KNOW that you will make it through the bad ones.
Holly
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Master P kills me. I can't see how they even allowed him on...I know that his son was supposed to do it and backed out. Ashley his partner is a sweet girl from Utah...I do feel for her. Did you hear when they say the average coupld has practiced 130 hours...and P practiced less than 30!!!
Small update on Mike-updated 2-4
in NSCLC GROUP
Posted
What great news!!