kathe2024

Congrats on your 20 years! I just read your book  "Scanziety".  From the bottom of my heart, thank you for sharing your story. I got several treasures from it, particularly about the gift of extended life. "God's Will is for me to live, share my story, and never give up."  God willing, I will do the same. Thank you for all that you do and for all the hope you bring. We are all here to help each other. And you and your wife are living proof of this. 

I can relate so much. Petrified of being stuck in closed places or drowning. I too have to belightly medicated for scans

Hello Kathy, I will pray for positive results for you. Stay strong and as hard as it is to imagine try to stay positive. Your system can use positive thoughts at this point. There may not seem to be much to be positive about everyday I am alive to be with my family is the focus I use to give thanks daily. Please keep me updated and thankyou for the interest in y story.

Waiting truly does just suck.  Not like the hurry up and wait of boot camp. More like waiting in a hospital for word on a loved ones condition. Just it's you.
They are most likely waiting on genomic testing results.  This will guide their treatment. Normally 2 to 4 weeks. Hopefully you've had an MRI by  now and are fully staged. 
Know this.  Lung cancer is not an automatic death sentence.  I was diagnosed stage IV with Mets to my liver, skin ,and brain July 2020.  The next month I developed a whole new stage 3 head and neck cancer. I've been in full remission since March 2021.   
If you read the statistics just use them as a guide to treatment. Don't trust them as a guide to life.  Trust that you can be treated.   

You don't have to wait to be contacted. I urge YOU call the oncology center (assuming that's where you were referred-- I was.) Tell them you've been referred by Dr. Pulmonology and ask for an appointment with a lung cancer specialist. Even better, go to the cancer center where Dr. Pulmonology has referred you, read  about the oncologists there, and see who the lung doctor(s) are. If there isn't a lung doctor, it would be best to find one. Lungevity can help with that.
If Dr. Pulmonology has referred you to a specific oncologist, call them directly. If they are a generalist, you can go ahead and meet with them, but lung cancer research is progressing so rapidly you really need someone who follows it.
I'd also urge you to call your pulmonologist, or contact her/him thru MyChart, to be sure s/he has sent the tissue for biomarker testing. Lungevity has info about that at https://www.lungevity.org/for-patients-caregivers/navigating-your-diagnosis/biomarker-testing  
It's so hard to wait. Try to breathe deeply and slowly. And please keep us posted. If you want, you may find you receive more responses if you post in the forums.