edivebuddy

Unfortunately a PET sucks at seeing early cancers. AIS and MIA lung cancers normally show way less than an SUV of 2 . I'd continue to follow the doctor's advise. Continued good luck to you. AIS and MIA Lung cancers have a 100% 5 year survival. AIS. Has a 100% 10 year survival if treated.

I personally would not delay with a rescan or a separate biopsy. Even though not 100% odds are high of it being malignant. Stage 1a lung cancer stops at 10 mm your at 9 now. While it's not known how fast it's growing, every day you wait is a day closer to 1b. While that's still very wet early it's not 1a. 1a systemic (chemotherapy, immunotherapy, targeted treatment) are not even offered. While because of your history they would most likely recommend it if you were 1b. This is the very reason they no longer wait for 10 mm to do a biopsy and now do it at 8 mm Good luck to you. ROSE may come back benign.

https://pubs.rsna.org/doi/10.1148/radiol.231988

Still haven't found the study. Here's a story that referred to it. Not a 20 year study had 100% survival in part solid tumor and only. Only 80% for solid tumors less than 1 cm found with early screening. Part solid tumors point to faster not necessarily fast growing tumors while part solid or ground glass nodules are associated with slow growth and longer term survival. https://www.mountsinai.org/about/newsroom/2022/lung-cancer-screening-dramatically-increases-long-term-survival-rate

Being lungivity let me go find a 20 year study of early detection references solid vs part solid

@NYC GUY I personally would get a vats fine needle biopsy with a rapid in site evaluation ROSE. That way a positive finding gets you a resection right then and there. An early resection is your best chance for a cure. Good luck to you and sorry you're even faced with this decision.

I personally would feel comfortable waiting. Strange about your pulmonologist. You like a lifetime income stream 😁 ground glass is more likely to be malignant than a solid module. But a malignant solid module is way more dangerous. In my opinion multivocal has a very good chance of being the first lung cancer with a cure. A was having a problem with inspires AI pretending to have feelings. When it says it understood I lost it considering the site says peer support from People like me. Then the mod deleted a post and called me not supportive or nice. That was definitely the straw. They can keep their bot and definition of supportive. I will not aid in their success at the cost of my own mental health. Stress is bad. No point subjecting myself to more of it.

Sounds like multi focal lung cancer. Very slow growing. Are you on inspire? VanCoerte there has been dealing with this for a couple decades. Like 4 wedge resections and 1 SBRT treatment over the years. It's nearly impossible to biopsy a tumor with less than an 8 mm solid component. They used to wait till it was 10 mm but many will try a biopsy now at 8. There is of course a surgical biopsy but that's pretty extreme.

Sorry you're dealing with this and so very young. Too young to be giving up while therapy is working. The addition of chemotherapy to tagrisso reduces the risk of recurrence by 38%. For tagrisso that's huge. You have a very good chance of managing this disease for a long time. especially if you can get it into full remission. Chemotherapy is doing that for you. If you expect to have your blood numbers to be normal it's not realistic. The doctors are really good at figuring out your numbers and what they mean or if there's a problem. And if there is, stopping treatment is usually NOT the first or prudent choice. I did 7 rounds of chemo. My blood numbers were NEVER in the normal ranges. Twice we had to delay my infusions to take care of problems but we continued. I achieved a full remission over 3 years ago. Stage IV. END Stage presentation with cutaneous metastasis. Additional metastasis' to the brain neck and liver. Plus stage 3 poorly differentiated squamous cell carcinoma of the head and neck just because the lung cancer wasn't bad enough.

I've never used sun screen or tanning lotions. Believing since I've never burned I didn't need it. Now I find out that I can still get skin cancer and my mom who's spent way less time in the Sun than I has had spots cut out . Then somehow I missed I'm supposed to avoid sun exposure while on Avastin. Maybe selective memory. Kamoto 嘉本 can be a Japanese name.

Sorry you find yourself with this diagnosis. Nearly 4 years ago I was diagnosed with stage IV NSCLC spread to my brain neck liver and skin. Because of the skin Mets I was not given long even if treatments worked. I may be a tad Slower and a little worse for wear but I'm here. Living life and enjoying myself as before. A few extra appointments throughout the year nothing that interferes that much. You can read some of my story here. I have not finished catching up. But it will give you a good idea. This is by far from a death sentence . The goal is to manage it until the next treatment or cure becomes available.

Lymph nodes are not soft tissue. They are by far the most common metastasis sites. They are organs. Soft tissues are tissues other than bone that connect or surround the organs of the body not the organs themselves. https://www.cancer.org/cancer/understanding-cancer/anatomy-gallery/soft-tissue.html

It's impossible to say with certainty from just a PET scan, I too would be worried. But lymph nodes are routinely hypermetabolic. 10 seems high but still not certain for malignancy. I've personally had many hypermetabolic benign lymph nodes. Highest SUV of 6. One very telling sign that this is NOT progression is that the Imfinzi continues. It's generally stopped on progression. Your oncologist should be able to tell you why they don't feel it's progression.

QqIt's extremely rare for Cancer to metastasize to soft tissue. Generally solid tumors set up shop in organs. Most of mine were in lymph nodes but one was head and neck cancer That May have been soft tissue or a lymph node so overrun it was indiscernible as one. Both skin and bones are organs .

Yes they are rare but Axillary lymph node ( under arm) and cervical lymph node ( groin) fo happen. I've rarely heard of both I've even seen a metastasis to toe. Since all blood goes through the lungs, where ever it lows the cancer can follow. personally mine were 1 small met ton liver, Chest and neck too many to count. 1 skin met and 3 to the brain plus one that was probably a pineal cyst.

They may have already took biopsies of lymph nodes. During surgery they typically take lymph nodes and biopsy then. Treatment is usually dependant on those results. It's something you can discuss with the surgeon or oncologist if you have one

They've known histamines were associated with cancer for a long time but not real how. Turns out that the tumor micro environment pumps out histamines which triggers dysfunction in HRH1 activated macrophages. So even if the PD1 PD-L1 oath were blocked these macrophages still didn't kill the cancer. So the H1 blocking anthistamines are thought to stop this dysfunction.

<--Interim treatment I'm so tired all the time. Food taste off when I eat it. Not really hungry with all that's going on. Plastic soup spoons take the metal taste away. So chopsticks are Japanese soup spoons it is. Luckily my house is full of both. Pants don't fit but sweats are fine. Need button up shirts to get over this tumor on my neck. Sleeping is not happening for longer than a couple of hour or so. Have to have my dressings changed on my neck . 2 Abdominal dressings last about 2 hours then drain . I have a beach towel as back up. September 20 2020 the results are in. Finally. Genetic testing results are in. They're for my brain tumors. All targetable mutations are negative. But my PD-L1 is 100% . My oncologist's says I've won the lottery and it's not often to our see 100%. What happened to the other biopsies? Pembrolizumab( keytruda) is the standard of care. Keytruda, Carboplatin and Alimta every 3 weeks for 4 to 6 treatments (minimum of 4) Then Alimta and keytruda maintenance for 2 years. This is where it's nice to personally know your second, in this case third opinion. He tells me as long as everything is going okay and I'm on the standard of care, it's going to be way better being treated here then going the 6+ hours down there. In 3 1/2 years my wife has driven me back and forth over 150 times. Oncologist, radiation oncologist, neurologist, neurosurgeon, dermatologist , ophthalmologist, PET Scans, CT scans MRI, infusions, fluids. That was just for the cancer. Moffitt would have been an EXTRA 92,400 miles driven. If it would have cost it would have been worth every penny. take a multivitamin that contains vitamin e. I also take Claritin (loratadine) every day for my Florida induced allergies. So with the retirement to Florida came year long allergies. Something is always blooming. These would become important and may have helped my treatment. At the time I did not know. https://www.mdanderson.org/newsroom/antihistamines-may-improve-immunotherapy-responses-study-finds.h00-159465579.html https://www.mdanderson.org/newsroom/study-finds-vitamin-e-can-boost-immunotherapy-responses.h00-159538956.html Up next Keytruda the vanquishor

Sorry your facing this. Were any lymph nodes tested yet? I've had no experience with lung surgery but I've had plenty others and they were all not as bad as I had imagined. My nowel resection was probably the worse and brain surgery was the easiest and scariest by far. I'm sure you'll get a response from those that have had a wedge resection or lobectomy that can better guide any questions you may have. As far as the cancer. Lung cancer is not the death sentence it once seemed to be. Atypical carcinoid probably has the best prognosis as a type. With 5 and 10 year survival being so high, chemotherapy after surgery doesn't even have a consensus of the alphabet soups. Good luck to you. I'm sure it's not going to be a bad as you're imagining.

This right there is exactly the same problem everyone who tries to find this site has. There are ZERO easy ways to find this site. Even after I registered I had to go into history to ensure it was even the same domain. I can't imagine the too many in the average demographic of a lung cancer patient not giving up quickly.

All is great. No scans till May unless something comes up.

← Previous: A foul wind blows September 18th 2020 : Interim treatment Back home with Still no genetic results. Neighbor was kind enough to make the house safe. We have electricity and running water. I'm of no help whatsoever. I have so much cancer it's just hard to understand how it got this bad so quick. Carboplatin and Taxol CarboTax is a catch all lung cancer treatment. I keep wondering is it going to get me to Christmas. I can't see my tumors growing so I guess it's slowed them down. I so don't want a tracheotomy. Hopefully they find someone willing to do a gross dissection of my neck. I want this gone. We will do the gamma knife to the tumors resection bed in after my brain has had a little time to heal. As long as we don't go whole brain I'm good with it. If I need whole brain this chemo better work or they find something targetable because I honestly would just rather not. Here's a little about the interim treatment. Carboplatin is a derivative of cisplatin. Cisplatin was first discovered in 1845 by Michele Peyron and finally FDA approved 133 years later in 1978. Carboplatin was designed to have fewer side effects and FDA approved in 1989. It works from within cell inhibiting proper DNA replication. Taxol (paclitaxel) was originally made from the bark or the Pacific Yew tree(Taxaceae). Used for thousands of years to treat many things from tape worms to lung cancer. It was part of the original 1955 National Cancer institute plant search. Approved in 1992, this drug was developed by the American tax payer and would become the most profitable chemotherapy drug of all time. For Bristol Myer Squibb. It works my stabilizing the microtubules in cells preventing them from dividing. Microtubules do many things but here they give the cell structure. Gross dissection they will take all the lymph nodes, tumor, muscle and flesh on the right side of my neck. Gamma Knife is stereotactic radiosurgery to the brain or head and neck. It's the only radiation treatment I will do to the brain and one of the reasons I chose this cancer center. The Results are i-->

Welcome Dee. Hope all is still going well.

<-- Previous: Mind blown September 8th 2020 A Foul Wind blows Well so much for a simple outpatient procedure. 7 plus days in the ICU I'm going home without the chemo port and have a PICC line instead. I hate these things and we have to go back weekly to get it cleaned, flushed and dressing changed. It can't get wet and you have to keep it wrapped or it catches on everything. They say it's temporary and they're going to wait to see what my immune systems does. Um you just pumped me fool of chemo, how do you think my immune system is going to react? Still no genetic test results. The family is coming. Reno, Chicago, Louisville, Scranton, and Not the family reunion I wanted but still will be nice. I was lucky relatives from Japan were just here before cancer. Hair is starting to thin I'm not eating. Sleeping most of the day. I know what I'm in for and the dismissal odds of making it past Christmas. have I made a mistake, should I have just had the brain surgery and tried to have a 4 month long living wake? My brother doesn't like the idea of my second opinion coming from MD Anderson. My cancer center is an affiliate so what's the difference. I personally just want a second group of eyes. There's a national playbook for lung cancer and I figure everyone is going to follow it. One of his frat brothers is an oncologist at Moffitt and I agree to call him. It's been a month and still no genetic results. There's a tropical storm headed our way. Everyone wants to know if we're evacuating. Hummingbirds are still with me out back. If they're not afraid I'm not. The 15th and 16th September 2020 what was supposed to be a tropical depression quickly goes from tropical storm Sally to a full blown category 2 hurricane. Me and the hummingbirds watch it from the back porch as the house blocks the wind. Too late to go now. The Hummingbird warning system not too accurate. Next day fire and rescue pull up in a boat and evacuate us. Everything below 9 feet is just gone. All the work I've done is undone. 40 years of collecting tools , gone. My built jeep gone. Bar gone. Dock crushed by a runaway barge . But we made it just fine. Go to my parents until we can get power and water back and some transportation. I'm down almost 30 pounds since this started. These last 12 days have been tough. I better make it to Christmas. Up next the results are in.

Previous <<- The real new normal September 3 2020 PICC line installed last night . No genetic results yet so they start ed Carboplatin and taxol around 10 Pm lasting until 3 am or so. The on duty Oncologist discuss’ the days events. Apparently I'd already been the talk of the town. He tells me that while it's true no one has ever seen a tumor grow as fast as mine, he's seen many grow fast. An the fast growing ones if they respond, they then to respond just as fast. I'm hoping it responds because I do not want a tracheotomy! At sun up they took out the two largest Tumors in my brain. I was super apprehensive about this but when done it was nothing. No pain whatsoever. Apparently I was a little combative and woke in restraints. Back up to the ICU I hate the ICU even though the nurses are the best. I'm the only ambulatory patient and the resident neurosurgeon wants me to walk. So every hour I do laps around the floor. At first I can tell it's freaking the nurses out because to keep stopping me. I'm told not to use the public restroom. Yeah go ahead and mark me noncompliant. There's no bathroom in the ICU room. We work out a deal where my wife , my Essential Caregiver, goes with me. She's already been doing that. It's the hight of the covid pandemic. There are negative pressure rooms at the end of each hallway. They do not look or sound good. The two floors above me are all covid patients. The top floor I hear they're not expected to make it. This place looks like a movie and the news doesn't even come close.these people are literally dying by the hundreds right here right now. I feel guilty and helpless to do anything for them. We are told to stay on our own floor. I'm very good with that. Problem is I can't unsee or hear that. I used to associate the ICU with my abscessed bowel. You would think I'd now think of my craniotomy. Nope those dying,moaning covid patients will forever be what I think of when I see the ICU. 6 September. Neurosurgery released me from the ICU. Oncology initially refuses but relents. I get to the new room and the orderly tells us a joke. It was seriously funny and I'm laughing so hard hear a squirt in my head then it feels like the universe just squished my entire body followed by it exploding. I been hit by a car. Fallen off a mountain, had 3 holes in my gut and nothing came close to that pain. It wasn't my head. It was absolutely everything hurt. Doc is there right away. Mind you I've not asked for so much as N aspirin to this point and the nurse let's the doc know. He says he's not going to give me anything until after a head CT. Well doc. You're way dumber than you look if you think I can stay still go or a CT with any meds. You want a CT you're going to put some Dilaudid in that IV before we do anything. 30 minutes later we're ready. Off to get a CT down in the ER. Then back to the ICU. It's a parenchymal hemorrhage (brain bleed) causing moderate compression of the posterior body and significant compression of the atrium of the right lateral ventricle. ( it's squishing my brain. Brain CT every 12 hours for 4 days Before they release me. That joke just blew my mind. Too bad can't even remember it. Next A foul wind blows -->