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blaze100

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Posts posted by blaze100

    Question?

    in HOPE

    Posted

    That was great. Of course, every time I go to that youtube I spend two hours exploring. The Peter Paul and Mary videos are a real treat too. :)

    Barb

    tarceva and peripheral vision

    in GENERAL

    Posted

    Hey Don, did these flashy lights look kinda zig zaggy like lightening bolts? I've had those once in a while after doing lots of reading/driving. My eye doc says they are eye migraines - they don't hurt.

    Good luck with the itchy hair. :)

    Barb

    Even doctors make it about being a smokers disease

    in GENERAL

    Posted

    If it helps - I recently had a treadmill test. They had an "assembly line" mentality at this place and I had to stop at several stations with various techs/ nurses/docs. At each stop, they asked about my health history. Nobody asked me if I smoked. They just congratulated me on being 7 years out. A first for me I think. :)

    Everyday for the last year or so, I've heard at least one commercial about a non-smoker getting LC- either on the radio or TV. More and more Californians understand that never smokers can get LC too. This is one of the reasons California (and recently other states) passed smoking laws.

    No one deserves LC, but most LC is caused by tobacco. We should focus our anger on our government that looks the other way because of big tobacco $$$. If asbestos is illegal, then why isn't tobacco?

    Barb

    High pulse rate after surgery? Beta blockers?

    in LC SURVIVORS

    Posted

    Thanks for the info, it helps to see I am not alone on this. No I don't take steroids, but sometimes wish I did...Look what it did for our Governor. :)

    I did some searching on-line and found an article that measured rest and exercise pulse rates before and after lobectomy. For a small sample the average rest pulse increased from 70 before lobectomy to 85 after, and the exercise pulse rate increased as well. See Table 2 in http://www.pubmedcentral.nih.gov/articl ... id=1420974

    So it looks like increase in heart rate after lobectomy is to be expected. Still not sure if Beta blocker is good idea. Lilly, my BP is can go down to 100/60 after exercise...Do you think the Beta Blocker caused your AFIB?

    I have a question in to Dr. West's site on this,but have not checked back. Barb

    tarceva

    in MEMBER UPDATES

    Posted

    Don, there was a very wicked pneumonia in Northern CA/Southern OR hitting just a few of my students and my husband in November and December.

    One of my big young guys in class said it almost killed him and it lasted about 6 weeks.

    My very healthy hubby had it for a month and was actually thinking about going to ER a few nights over X-mas. Really bad cough. Thank God it missed me - so far.

    Barb

    tarceva

    in MEMBER UPDATES

    Posted

    Hi Don, Looks like CAT got the answer above. I am so sorry you have to move to Tarceva. I know you've been having some gurgling sounds.

    Some of my students and my husband have had a really awful respiratory illness/pneumonia that lasted about 3 weeks...I was hoping this was all you had, but sounds like your doc decided otherwise?

    How did they decide this was progression? Was your breathing just getting worse instead of better?

    Barb

    High pulse rate after surgery? Beta blockers?

    in LC SURVIVORS

    Posted

    Thanks Welthy, I am very grateful for any info on this. Yes, I think the clogged RCA came from some radiaton scarring on the heart.

    I just logged 5000 miles on my stationary bike before it broke in December. :) That's from an hour on the bike almost every day since May 06.

    But all this exercise has not lowered my pulse rate. My cardiologist says my EF is in normal range, my blood pressure is great, and my stress EKG is superb, but my pulse rate runs high.

    So I'm interested if this is normal. Do other surgery survivors make it the full 12 minutes on stress test? Does anyone else have elevated pulse rate too? Are there any survivors out there taking beta blocker?

    Barb

    High pulse rate after surgery? Beta blockers?

    in LC SURVIVORS

    Posted

    Does anyone else have an elevated pulse after LC surgery or treatment?

    My pulse runs around 20% more than it should all the time now. The first time I noticed was in the hospital after lung surgery (7 years ago). Then last year the nurses noticed my pulse was consistently high in cardiac rehab classes.

    Yesterday I had the treadmill/nuclear stress test. I have to do this every year now after the stents.

    I have a new cardiac doc. He said my pulse went up too high too fast on the treadmill (162 by 6 minute mark). He wants to put me on beta blocker. He mentioned that beta blocker is bad for lungs, so we need to talk.....

    Does anyone else do the treadmill test? Do you think it is harder due to loss of lung tissue? Anyone else with high pulse after LC surgery/treatment?

    Thanks.

    Barb

    We need info from those of you that have had lobectomies

    in NSCLC GROUP

    Posted

    Good Luck Kelly.

    It sounds like you will have lots of people helping out, and it is important in the hospital to have help. You just never know what kind of situation will come up - when it will help to have family advocate for you....if you need special food or extra pain meds.

    My Mom used to say "It will be hard, but you can do it.", maybe your Mom did too.

    Prayers,

    Barb

    chemo vs radiation

    in CAREGIVER RESOURCE CENTER

    Posted

    I had chemo and radiation concurrently. I thought the radiation was easier than chemo, and a lot less scary. Radiation was like going in for a quick x-ray everyday, but chemo...too many needles and lots of preparation drugs too.

    Plus the people in radiation waiting room seemed much more energetic than the folks in the chemo waiting room. Maybe that was my imagination though, but people in chemo seemed weaker. Only a few of my cohort were doing both.

    I think it depends on where the radiation field is - too close to throat can give sun burn inside the throat. You do have to go in 5 days a week and they get mad if you miss a day. But I would much rather do radiation than chemo.

    I hope your Mom does better with the radiation.

    Barb

    fruit and veggie drinks on Montel

    in GENERAL

    Posted

    As far as getting the fruit and veggie servings, did anyone see Montel Show the other day? He was throwing apples, oranges, veggies etc right in the blender with some ice cubes and water for fruit/veg drinks.

    They were having such a great time, I decided to try it. I sliced an apple, tossed in in my crummy old blender with some ice cubes and a cup of water. It worked great! OK, I cheated and added some splenda, but still great way to get your daily servings.

    The ice was real cooling on my throat too. Wish I'd known about this when I was in radiation.

    Barb

    Nutrition Suggestions or recomendations

    in HEALTHY LIVING / RECIPES

    Posted

    Hi Dick, You are in luck, because gaining weight is my specialty. :)

    Not sure if you are still in radiation, it can do a number on the throat. Here are the things I can guarantee will cause weight gain, but not sure if you like or can eat any of these. :)

    1. 2-3 sliced bananas covered with whipped cream

    2. marshmallow fluff straight from the jar (just half a jar of this stuff per day is all it takes)

    3. Twinkies or donuts(about 4 per day)

    4. large serving of scalloped potatoes made with mushroom soup & chopped ham

    5. 3-4 large muffins per day

    6. 3-4 hot chocolates with whipped cream & marshmallows

    7. 10 Lindt chocolate truffle balls

    8. peanut butter

    9. large softserve ice cream cone from DQ or MacD's.

    OK. Health food it is not. If I ate "healthy" and just augmented my diet with ONE or TWO of the items below every day I would gain weight. I hope something on this list will work for you. Barb

    The stigma of lung cancer

    in GENERAL

    Posted

    I tried to keep quiet, but here goes....At the bottom of this post is what I pulled from the CDC site. Smokers are about 20 times more likely to get LC than non-smokers. That's a pretty strong relationship.

    Consider too that so many non-smokers with allergies, asthma, other breathing problems have been forced to tolerate smoking in restaurants, theaters, airplanes and work place for many years. I think the new smoking laws make it pretty clear that non-smokers want to avoid second hand smoke.

    Given the strong relationship between smoking and LC, and the years of being offended by second hand smoke, it is natural there is a certain amount of resentment and "told you so" from the non-smokers.

    I think we can place the blame on the tobacco $$$$ and the US government for keeping tobacco legal. Asbestos isn't legal, so why is tobacco?

    Barb

    2004 Surgeon General’s Report—The Health Consequences of Smoking

    Smoking Among Adults in the United States: Cancer

    Disclaimer

    Highlights

    Cancer is the second leading cause of death and was among the first diseases causally linked to smoking. (p. 39)

    Lung cancer is the leading cause of cancer death, and cigarette smoking causes most cases. (p. 61)

    Compared to nonsmokers, men who smoke are about 23 times more likely to develop lung cancer and women who smoke are about 13 times more likely. Smoking causes about 90% of lung cancer deaths in men and almost 80% in women. (p. 39)

    In 2003, an estimated 171,900 new cases of lung cancer occurred and approximately 157,200 people died from lung cancer. (p. 42)

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