Linda661
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Posts posted by Linda661
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Aaron and Bill (and Ernie too, actually):
You guys are just making my day -- I wish I had folks like you around me when I turn the computer screen off. (that actually goes for a whole host of people here and is probably everyone in reality....you all are terrific in my book).
Though Bill, us gals need to teach you about complimenting the fellow without the ensuing compliment to the lady too ....lol....even I figured you could be in trouble with Jen on that one
. You were right though, Jen's dad really does have a youthful sparkle about him (so do you Jen, by the way).Linda
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Eager (to play and....eat!)
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Absolutely will send prayers in support of Kelly and her family.
Linda
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Thank you for the time you put into this Randy. Got to say that it rather stunned me just seeing all the loss from one year compiled in one place
.Praying that one day we have zero losses from this dx.
Linda
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Amy:
As RandyW said, things might not be as bad as they sound. A bit of care in the hospital did wonders for our family with relief from pneumonia symptom issues.
It comes down to waiting for test results and feedback from the doctors on exactly what's going on.
Hang in there -- we'll be here waiting with you.
Sending prayers for your family as well,
Linda
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Congratulations Ernie -- what a wonderful accomplishment!
Linda
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Ernie....you're hot on what I'm trying to get at. I've been struggling really hard to try and come up with a really good way to get to "the bottom line" in words without misinterpretation here and I'm failing miserably at it at the moment; you're information about the documented scientific proof of the existence of the placebo effect is one important piece to that "bottom line" picture. Doesn't anyone find it interesting that drug companies must prove that what they've got produces benefits greater than the placebo effect? I do. That effect is no accident.
OK...just after I posted to another moments ago that I was gonna' lay low here
..... Love 'ya guys,
Linda
P.S. I agree on perhaps starting a new thread if we are going to continue this.....none of us meant to monopolize your query Aaron.
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LOL, well, I'm glad your profile is working the way you want it to now.
I'm laying low on that poll thread about now
... I've got so much more I could say there (that's actually very encouraging), but it's hard to put into words what I'm trying to really get across; it needs to be easier to understand without misinterpretation...attitude really is not a positive/negative thing at all, but I just am struggling at how exactly to say it better.Very hard when it's only words on a computer screen with lots of time going on between responses.
Anyway, glad I could help,
Linda
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At the end of your profile where you have the [/9], literally type in [/size]....that should do it.
Linda
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At the beginning of everything you want a smaller size, put ; and, at the end, put .....
My profile has size as 9 so you got something to reference on how the different sizes look.
Linda
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Destructive (with those sharp claws!)
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Great to "hear" good news! Wishing your mom well on getting improvements for her arthritis.
Linda
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I'm so glad you don't have that alone feeling anymore. It is rather comforting to know that we each have support from all over the world for help in the journey, at any moment we need it.
Take care,
Linda
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Right on Ernie. Because the first 5 are changing and evolving all the time as treatment information/knowledge changes. The 6th one (positive, unwavering attitude) holds steadfast in it's intent to overcome and adapt no matter what's going on in the day to day flurry of uncertainty inherent in the first 5.
Linda
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Connie:
I'm so glad you posted an update -- I've been wondering how things were going for a bit now.
I'm hopeful that the doctor appointment will provide a solution on the breathing issue and pain level. My own mom got super fatigued and just chose to sleep alot before we ever even got a dx. and that part (the avoidance) is bothersome when it comes to getting some real comfort and quality of life help going.
There are palliative measures out there to help with this. It's all gonna' depend on what your mom will allow based on what the doctor has to say.
All the best to you. Do keep us posted and let us know how we can help along the way,
Linda
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Ummmm....do I dare say anything in this one? Oh sure (statistics background and all
)......I agree with Bill and others that attitude DOES matter to what can be to a BIG significant degree. I'll tell you why, based on my statistics background:
When we do what's called regression analysis (that's using past data to try to predict the outcome on another sample facing a future outcome that we're studying) there is ALWAYS a "leftover value," if you will, that comes out of the analysis -- a bit of prediction "error" that didn't make our predictions 100% (how big that error is depends on the quality of the study design and the questions asked too)......
What we search for in this analysis is to explain as many things as possible to fit a line of expected outcome.......OK, I don't want to get too complicated, but good researchers go nuts if they see a lot of what are called "outlier observations" -- those suckers just don't conform to the line of expectation to predict an outcome on; too many outliers and the researcher better go back to the drawing board and re-do his/her model of prediction.
ATTITUDE is a huge factor in this battle that researchers don't typically put into study design to make predictions on -- they actually can't do that well. For a fighting spirit attitude to accurately reflect in research results, it absolutely must be believed/internalized by the person (i.e. not lip service...real "I'm gonna' beat this thing" alive and well in a person). Saying the fight is on and living/feeling it as so inside are two different things....no one else can really tell the difference (they aren't in the other's skin to know the difference), only each individual knows the truth of that.
That said, it doesn't mean anyone would "fail" by not having the "right attitude" either -- there are how many other factors at play in that outcome prediction? Many.
Nonetheless, if folks don't get anything else out of what I just said, a deep and abiding feeling of beating this thing (no matter what the world tries to throw up there as a barrier to that) does do wonders -- we're out to prove that here.....one day at a time.
I could prove that attitude matters further via a long discussion on the workings of quantum mechanics and their influence on reality, but let's just save that one for another future time
.All the best to everyone.....what you believe matters immensely and there is science out there to support that -- never, ever give up on the dreams you have for yourself,
Linda
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I haven't read this particular book, but I have read several others in my years that tell the same tale you describe. It is why I haven't worried about my folks' passing and am at peace with it (have been all along). This kind of knowledge is very comforting and I hope others will get the book if they've never run across this sort of information before.
Linda
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Cute
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Rochelle:
I'm so glad to hear that you're doing a little better these days. I haven't heard the song yet, but how you described it's meaning to you makes perfect sense to me.
Linda
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I'm bumping this, since the way you're doing your updates aren't getting you to the top of the list for folks to easily find your new news these days.
I'm so glad they finally got a dx. I looked it up as I had never heard of it before...I was encouraged to see that tx success is very, very bright.
Hang in there and keep us posted.
Hugs,
Linda
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I'm so sorry you are going through this. I found it to be the same way in the journey as a caregiver....you have to hand-hold and see to it that everything gets done properly, no matter who out there is supposed to be doing it for you in their professional responsibility role (that included folks who said they would help too in my journey). It's real eye-opening, disheartening thing to deal with, but it must be done. In my experience, no one but you will end up making sure that everything is in order.
I wish I had better news on that front, perhaps others will.....I had to follow-through on all details behind every professional out there....very, very hard and caused lots of tears along the way.
Keep us posted. You hang in there and do what you must, but just know that we are all here supporting you as best we can from a computer screen.
Linda
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Let's see.....
I worked as a camp counselor at the local YMCA when I was 16;
Worked as a secretary for a long-distance telecommunications company when I was 17;
Worked as a teaching assistant for several professors during my college years, mostly in statistics, operations management, and strategic planning areas;
Worked as a research assistant at an institute studying robotics, helped publish a research paper on the future of robotics in the home (oh did those rosy predictions so not happen
);Worked as another research assistant to a company helping them devise a sales cost-benefit strategy for a robotic product they had developed;
Worked on the manufacturing floor as a dept. head and a process control person for a couple of companies after that (one really large textile company and one a really small critical care product manufacturer);
Went the self-employment route after that: first doing small project work with my dad in his consulting business, then on my own....lots of different projects happened during those years; ended up doing a lot of grant writing and management consulting in the non-profit world until I had to quit working beginning in 2005.
Linda
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I'm thankful for your regular onc. and so very glad you said your e-mail peace to the naturopath -- that behavior was simply uncalled for and does so much emotional damage when we need every scrap of fight in us we can get.
Getting that news happened to me with a doc. during my mom's initial tests and dx (fortunately not in front of my mom) -- it had devastating physical consequences on me that very well could have landed me in the hospital myself as a result of the impact that statement made on me....just when I needed to be strong and to gear up for the fight. It's just unforgiveable in my book to do that to someone!
Do take care and keep us posted. I think of you guys often here,
Linda
. You were right though, Jen's dad really does have a youthful sparkle about him (so do you Jen, by the way).
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... I've got so much more I could say there (that's actually very encouraging), but it's hard to put into words what I'm trying to really get across; it needs to be easier to understand without misinterpretation...attitude really is not a positive/negative thing at all, but I just am struggling at how exactly to say it better.
)......
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);
Sich and Dehydrated/Chemo
in GENERAL
Posted
Mary:
I personally have experienced swelling in arms and legs as a result of dehydration from hours of physical exertion in heat, not due to chemo. regimes (I am not a cancer patient) -- edema can happen from it. What caused my swelling was that the amount of liquids I took in after I was already dehydrated at any given time were more than my body could rehydrate appropriately with. I haven't seen a chemo. regime mentioned in here yet that doesn't mention dehydration as a constant concern to be watchful of.
Now, this is from my personal experience with it and I would hope that others with more directly applicable experience will chime in here shortly. What I did when this occurred was to encourage myself liquid intake in smaller quantities at any given time, but very often (even if I didn't feel thirsty) -- the swelling dissipated itself within a day or two from doing that.
Hope this helps somehow,
Linda