Linda661
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Posts posted by Linda661
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Used to, and still have the urge, but not the time. Just might give up my frustration with "clean" and stop the habit after reading your Inspirational dust post in another forum this morning: that was awesome and really makes you think about what is really important.
Linda
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I barely survived. Still don't get why the mattress won't work in a tornado for protection....less likely to break apart or just plain knock you out in all that whirling -- would think it would really help deflect all the debris...oh well.
Linda
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I was born in a suburb of Pittsburgh, PA. Lived in various suburban communities around Pittsburgh for 25 years. (Penn Stater and CMU'er here).
Linda
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Keep us posted and we will do all we can to support you.
Hugs, Linda
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Roger: While I don't currently have any useful kick-off advice I can give you, I just wanted to welcome you to this site. I can only support what you observed during "lurking," that these folks are a very compassionate and caring group that will do all they can to help you along the way.....perhaps one day as I learn too, I will be able to substantively (is that a real word?) help you too during my experiences.
Welcome, and warm hugs, Linda
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All my best wishes for your dad (crossing my fingers for him too...well, more than that actually). You take care of yourself there too, girlfriend......you make sure you get yourself better too in the middle of all of this.
Hugs, Linda
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Jaxanisa: You're in the right place for this -- it's OK to be scared and don't worry about whether your post is "positive" or not......we've all been there (and some of us are still there, like me...I am pretty new here myself). As others have said so far, don't pay much attention to the statistics right now, those are beaten bunches....lots of unknowns are hitting you big time right now; read as many related posts as you can that seem to relate to your mom's issues and post your questions as they come along. We'll be here to help you along the way.
Hugs, Linda
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You hit it right on, Rich.....that's exactly why I jumped in with joining and participating in this forum and I haven't been disappointed yet. Your post here just reaffirms that I should stay here and contribute for that.
Linda
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I want to follow-up on Sheri's thread about the addiction with another question: my mom also is exhibiting that desire from time to time and I agree that's a normal part of the process -- those statistics of "staying quit" (15%) aren't encouraging. Mom was put on nicotine patches upon initial hospitalization -- those quit in January/February sometime; now she is 3 months without smoking so far.
Right now, she is not in an environment where she really could take up smoking again easily and I think that helps somewhat right now. But, there are times she is posturing to me when we are out at the cancer center that she really "wants one".....sooner or later I wonder whether she will outright ask me to bring some in for her.....that part worries me a bit as the child and caregiver (especially when the steroid anger thing is running): she is an adult and I am not sure I can really stop her if she really decides to do that again, especially when she comes home.
Here's the other "rub" to this whole thing: I smoke (I won't go into my own quit times and everything that goes along with that -- right now my doc says now's not the time for me to attempt quitting again with everything that is going on for me). I don't smoke around mom and never will (and let's all hope my next quit day can reasonably be soon and this time it will stay). But you can see how sticky this could be.......how in the world am I gonna' be able to support her in this part, without the risk of just giving in to her in an emotional moment that will pass....yet it's her life....is this making any sense to anyone?
Any advice would be appreciated and would be fine as private messages -- I don't want to turn this board into a smoking cessation thing, but this issue is real concern of mine in supporting my mom through this.
Thanks in advance, Linda
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Ann, if this is really real, then cudos to that school district for calling "a spade, a spade" and going for it! Hilarious response to a really sad situation in our schools.
Linda
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I am just gonna' say "ditto" to what everyone else has said so far: please look into additional outside help that might be available for your dad and possibly your mom ..... insurance should cover it. Keep us updated on this so we can perhaps support to more specifics in your situation.
Linda
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Melinda: what an inspiration your update is -- my best to you and your family. Linda
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Welcome here. I just want to say that if you run into special issues in your treatment with your heart situation, I might be able to help you find connnections to info. via my connections with the Mended Hearts organization -- my dad (recently deceased) was a long-time president and member of our local chapter (got lots of his contact info. still around) and I happen to know the current president of our local chapter (my neighbor) ..... just keep posting your questions, and I'll do my best to support your needs.
Linda
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Just adding my heartfelt congrats to your great news! Enjoy sunny CA!
Linda
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Don, I am so sorry to hear this news. You have been so kind to me and my mom and even offered to visit her in St. Pete's recently (I wasn't online at the time of your PM and I just totally botched how to answer your PM to me...still learning what to do here) -- please, please let me know if there is anything I can do in support and I hope we do meet at Western WA Cancer Center sometime, if it has to come to that ...... I have followed your responses to others in here since I joined and I just know you must be really strong-spirited and will come through this one just tops.....nonetheless, I am serious....we are in the same general neck of the woods and apparently visiting the same center at times....keep in touch and I'll try to do my darnest!
Hugs,
Linda
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Be nice to your kids. They'll choose your nursing home.
....Every morning is the dawn of a new error....
The beatings will continue until morale improves.
Madness takes its toll. Please have exact change.
Ever stop to think, and forget to start again?
A conclusion is simply the place where you got tired of thinking.
I don't have a solution, but I admire the problem.
If at first you DO succeed, try not to look astonished!
Don't look back. They might be gaining on you.
Diplomacy -- the art of letting someone have your way.
If things get any worse, I'll have to ask you to stop helping me.
If I want your opinion, I'll ask you to fill out the necessary forms.
It's not hard to meet expenses, they're everywhere.
Help Wanted: Telepath. You know where to apply.
Budget: a method for going broke methodically.
Car service: if it ain't broke, we'll break it.
Shin: a device for finding furniture in the dark.
Computers are not intelligent. They only think they are.
My software never has bugs. It just develops random features.
Does fuzzy logic tickle?
Have a great day!
Linda
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Contributions: While I am still pretty new here, hopefully I am (and will continue) adding the knowledge of my experiences and how I am getting through them that might help others in their journey. Unlike others, I didn't lurk for awhile before joining, I just jumped right in as soon as I found this place: it was like finding an oasis in the middle of so much confusion. Sometimes I think my answers are awkward and not exactly phrased that great on some issues, but this whole thing is pretty awkward to me right now. Like Frank mentioned, the docs aren't very forthcoming with info. so I am struggling like so many others to do the best I can.
Gains: A couple come to mind immediately: (1) Every time I post, I appreciate seeing that people actually read what's put up pretty quickly; they may not have an answer to my particular questions, but folks here actively read posts to see if they can help (as opposed to other bboards where your post can sit for days, weeks, months, and get noone even viewing your message). It's a real feeling of support when you are desperately trying to find answers or some direction to set your sights on...even if folks can't answer your issue, they are caring enough to try by just taking a look at your posts. (2) The obvious gain is people's valuable experiences with exactly what I and my mom are going through -- This is only one example that goes beyond the wonderful friendship here: I was only in here 2 days when folks' feedback on an issue of mine saved our family $1,000 per month in expenses (because they knew how "the system" worked and I didn't); impressed the folks around here that I even knew the right question to ask to get it done.....I didn't, I got the question from here!
Sorry so long, Linda
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Just want to say welcome. Ask any question you come across and we will help as best we can.
Linda
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What a wonderful thing....I needed that today!
Linda
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Chocolate Carmel Torte.
If I were a genie and I could grant 3 wishes for you, what would they be?
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Hang in there Janice and keep us posted as much as you can -- what the docs or anyone says as a timeline ain't necessarily so, just know that. And you are right on that God has his reasons going on here......what I didn't know how to say before is that all our personal histories with our families aside, I swear this is the most sacred act we can do as caregivers: not to make too much of our own issues (we save those vents for folks other than the patient), just help another in their journey, wherever that will take them....and to be there through all the twists and turns along the way. Not an easy thing at all, but it can be done with "detached empathy" for our loved one -- putting ourselves in their shoes and just thinking about how we would want to be treated in that situation goes a long way toward sound decisions and actions along the way.
Best to you,
Linda
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I'd hate to have to answer to my boss or the advertisers for designing that display.
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OK, I am getting a bit intimidated by this topic as a newbie.....lots of responses flying all over the place, and I just hope I remember what the heck I am doing/saying here:
Somewhere along all these responses, I thought I picked up that some of the particular issues in the new proposed forum might be dealing with all the "paperwork" and such that comes with what widows/widowers deal with......that is a real concern and generally unique to spouses, but I hope that others would be welcome to comment if it got going: I have actually been dealing with those issues since my dad's passing on my mom's behalf (even before she got ill with LC).....it's a messy, messy thing and is a horrible, taxing process in the midst of just grieving the loss of a loved one.....widows and widowers will probably know what I mean when I say you can just feel like "everyone in the world wants a piece of you when you get up in the morning....they just won't leave you alone....it's like the whole world will take all of you away, if you let them." Sound familiar at all? That's what it has been like just dealing with the paperwork issue after a loss (and I am not even dealing with special emotions that come from the spousal loss issue) -- this area doesn't get a lot of support in the usual local venues, to my knowledge....it's pretty much as individual-specific as much as LC reality is and really could use "friends helping friends" through it. Just my additional two cents' worth for the ultimate evaluation process in the viability of this forum option.
And....to all of those who lost their loved one and aren't sure about whether to stay here or not: this makes me really, really sad as a newbie; most of you who have posted here in this thread with those comments I have followed in many posts since I got here......I am learning from you and watching the wisdom you are giving me as well as many others -- don't you ever think you aren't appreciated here!
If I was way off base with my new comments here, I'll just apologize now in advance...
Linda
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I suppose I am gonna' sound like I am "riding the fence" on this one......I can certainly see the value for widows/widowers in having a special place to support each other during the grieving process if folks don't feel like the existing grieving forum is meeting their needs. And I will add to this that if there is a way to make that happen, it would be most helpful to have it here, since many friendships are being made here along the way -- I think everyone might agree that you tend to want to turn to people you "know best" for that kind of support initially, rather than running off to a new support group where you don't "know" anyone -- you are already having to start over and doing that with "a new group of strangers" isn't making it any easier....not that we all really know each other over only the internet, but we do tend to have a bond, the more we share and support each other's experiences.
That said, extensive grief support may not have been the original intent of the administration here in creating and maintaining the site (I don't know). I am sure that every forum that gets added incurs additional expense and volunteer time to monitor and manage; so I will defer to those who administer the site as to what is really feasible: there may be limits that we may not all understand to what is possible to keep up with in here and not run the site and its overseers ragged.
Linda
Mom's neurosurgeon appointment today
in CAREGIVER RESOURCE CENTER
Posted
Oh Lori, I wish I had something of substance to add here....everyone has done an excellent job of saying all the things I would say, from the docs (and their documented positive statements) are your best help on an insurance appeal....to getting you named as power of attorney if possible with your mom 'cause, no, you are not butting in....what your mom wants is soooooo important here (I don't know squat about the SF banter, but it doesn't sound good so far) and thank goodness you have a home and a significant other/hubby that will support that.......
You and your mom are in my thoughts/prayers constantly since I joined here and have watched and responded to your trials....
Do keep us posted as you can.....you and your mom are special to me in my heart since I joined, for some reason I just can't explain.
Hugs,
Linda