shelliemacs
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Posts posted by shelliemacs
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PLEASE consult another doctor right away. There really is no time to waste with those symptoms.
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PLEASE consult another doctor right away. There really is no time to waste with those symptoms.
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Hi I am in the same exact boat you are with my mom who was diagonosed 2/7/03..we found 2 brain mets on 5/9/03 and she under going radiation for her brain and chemo for her chest tumors. I have been helped so very much from this board than with any family member or friend because these people live it every day. Take strength from everyone here who is living your same nightmare. Its awful and it sucks and this should not be happening to our loved ones but unfortunately it is. So do what I am doing, come here for advice and info. Be your moms medical advocate and get informed. come here daily for hope and a shoulder to weep on. Vent to us cause we have broad shoulders and can take it. I find now one minute I am feeling positive and 18 seconds later i am filled with despair over possibly losing my mom and best friend all at once. I can't fathom my life without her. She is my mom and I would in a NY minute trade places with her to take her pain and fear away. There is no magic way to deal with this, no special thing to make you feel better that we can say. its a pain no one should have to live through. but were all doing it together here. please email me if you ever just want to get your emotions out. I live them too.
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Hi I am shelly, my mom is new to LC too. only diagonosed in 2/03. we found out last week that she has mets to the brain as well. We are looking into Gamma Kinfe radiaiton. to treat them and get rid of them hopefully.
I know exactly what your going through. I am my moms medical advocate as well. Its a terrible thing to have to bear, but we would not trust anyone else to do this right.
here, you will find as i have lately, un-wavering support for you and your mom. These people here I have found in just the last week or two. Are the most supportive, most caring and most loving people anywhere. You have found the right place to gripe, cry, yell, scream, vent, and become informed by those who live it and are going through it.
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My mom had terrible awful pains in her legs with the chemo (taxol) it lasted about 3-4 days. She was on darvocet and the told her to mix a chemical called GLUTAMINE from a co. called Baxter Health care with it. THe glutamine is supposed to help tissues repair themselves quicker and inhibit tumor growth. It really didn't do much for my moms pain though.
she has had 3 rounds of chemo all 3 weeks apart and it starts again 5/19/03. But she has had great reduction in her tumor which started out at 17 cm by 10 cm, it was massive and now its 80 % reduced.
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Egg salad is a good idea, i never thought of it. I will try that tonight. Thank you
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mom just got back from todays radiation. The radiologist said he doesn't want to give any false hopes but he feels her chances of the RAD working on the brain mets will be ok. He did mention the Gamma Knife if this RAD does not work fully. I was hoping for that. She said she fealt ok today too. She is still having allot of difficulty getting solid food in because of the weight of her original tumor bent her esophagus allot. She is very horse but she has been since January. She is getting real sick of the meal replacement shakes too. I have tried almost every one. even thinning them with skim milk.
she can eat ice cream but it makes her flemmy.
Anyone have suggestions. i can get mashed potatoes and yogurt into her now. i think she needs real protein though.
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here is a little good news, i think it is anyway. After last sunday when my moms hand stopped moving we found the 2 brain legions on wednesday. the onc. put her on steroids the same day and today (monday) she could move her fingers again. she says their still a little weak, but hey their moving.
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Does anyone know exactly what lights up on a PET scan. My mom had one done 3 weeks ago and there were 5 blotches on her scan. The doctor said only two were tumors. The one we knew about in her chest behid her heart and a small one near a lymoh node.
the doctor said thw other 3 blotches were her 2 kidnesy and her bladder. Why do they light up and how can he know they have no cancer in them? has anyone else had this happen.
shelly
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my mother was diagonosed with NSCLC on 2/9/03. she has had 2 rounds of chemo (Taxol cocktail) 3 days ago (5/1/03) her left arm went numb and she could not move her fingers. we thought it was a mini-stroke or side effect of the cheom. she was supposed to start radiation yesturday and when we went in today for the arm her oncologist ordered a MRI that showed two legions on her brain. She had a PET scan last week that showed two tumors in her chest. Today I found out PET scans dont see the head and even though her main tumors shrunk considerable in her chest it doesn't stop it from spreading to the head.
now she cant have chest radiation because the tumor is behind her heart and to radiate through her heart would do severe damage to it. But they started aggressive radiation on her head for the tumors they found today. They are telling us 14 radiation visits should kill those tumors.
my question is whats the chance that it will kill the head tumors and does anyone really have long term survival for the crap disease.
her onc. is still telling us he can treat her but is he giving us false hope. I am desperate to help her but I am helpless. her chemo for the chest tumors starts over in two weeks.
to watch someone you love go through this sucks and i just want to throw up. WHY DID GOD FORSAKE HER!!!
good cancer dr. in upstate NY
in INTRODUCE YOURSELF!
Posted
have any of you in your vast knowledge of dr.'s network know of a fantastic onc. in the Albany NY area. My mom has a good one now who she likes but I would like to have a name of another just in case we ever need a second pair of eyes or a second pair of hands stiring the pot??
she see Dr. John Ferraro now of Upstate Imaging Onc. group. he came highly recommended but hey 2 is better than 1 right??