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TracyD

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Posts posted by TracyD

    Darn

    in NSCLC GROUP

    Posted

    Jim,

    Sorry to hear this last treatment didn't work longer, but glad to hear you're getting into a clinical trial.

    I just love your attitude, gotta keep going. You give me (and many others I'm sure) such inspiration.

    Good luck on your new treatment.

    Tracy

    I'm having a pity party...BYOB

    in GRIEF

    Posted

    Carleen, you have every right to wallow in it. You've been through so much, having to leave yours and Keiths home is just wrong. Please don't give up your house without consulting a financial advisor, there are other options, some of which have been mentioned by the good folks here.

    I am praying for you.

    Tracy

    First chemo done

    in MEMBER UPDATES

    Posted

    Well, it has been four days since my first chemo and I am just now feeling like I can stay awake long enough to put a coherent sentence together. The doc. warned me that I was going to be tired, but this is not tired, it is like trying to move through mud. Today is the first day that I feel pretty good again, too bad it's almost one hundred degrees out and I really can't be doing much. I have lots of friends and family lined up to help with the kids so I have been able to rest a fair amount. I pushed it a bit yesterday with the shopping as my little girl is turning 5 this weekend and I'm having a bunch of little girls over for a princess party. So much to do.

    The chemo went really well, It started on time and went smoothly with no adverse reactions to any of the meds. My very favorite Aunt Kasey was there with me and we made the best of a lousy situation. We just talked and laughed and ate, and ate and ate. A good friend of mine even drove 1 1/2 hours to bring us lunch and to visit.

    Thank you all for the support and thank you Aunt Kasey for being there for this "first". When I think of all the firsts I have experienced in my life, most of them were happy moments to be cherished. While chemotherapy is not one of those happy moments, I will cherish the memory of how you came to be with me for what might have been one of the most difficult moments in my life.

    Tracy

    Starting chemo tomorrow

    in MEMBER UPDATES

    Posted

    I received a call from my fellow at MGH last night at 8:30, she told me my brain MRI was all clear and that's it a go for chemo w/Avastin on friday morning. I' really nervous, but my wonderful Aunt Kasey is flying all the way from PA to sit with me and hold my hand (Isn't she the best?)!!

    By the way, this is the same fellow who offered me watch and wait as a possilble treatment. Did I mention that when I spoke to her about my scans she told me that I would have to wait to get the results of my MRI until friday, that it could wait until treamtment day as the only difference would be wether or not I would get the Avastin? I told her then that I did not want to wait, and that I wanted to start chemo mentally prepared and that I did not want to wait until the morning of to find out that this thing might have gone to my brain. I would be a mess during chemo and I don't need that. I guess she got the message as she did call me. I thanked her up and down for calling and now I might have to rethink my feelings about her. She's bright, just really inexperienced.

    So begins round #2.

    Tracy

    Better luck next time

    in MEMBER UPDATES

    Posted

    Well, it wasn't the news we were hoping for. Slight progression in most areas, tumor and pleura, and a new 2mm nodule in the left lung :(

    So, off of Tarceva (goodbye rash!) and hello Carbo/Taxol/Avastin (hello baldness!) We had suspected this might be the case due to the increased aches and pains in my side, probably caused by the tumor growth. I can't say we were prepared to hear it, but we had tried.

    I am having an MRI of my brain on monday, and if it comes up empty, I start chemo next friday. In the meantime I have my whole family here with me this weekend (except for Kasey, whom I would love to hug right now) so I am surrounded with people I love.

    Quick story. I saw a new doc today as my guy is on vacation, and I also have a new fellow. The fellow comes in, tells me bad news (really badly too), and then offers me watch and wait as a possible treatment, even with the progression! I tell her "I'm 39 years old, I was diagnosed 4 months ago, this was my first treatment, why would I choose to forego treatment?" She tells me that some people need a break, that for some, slow progression is okay. OMG! We said thanks, but no thanks. She also kept saying dumb things and then saying "that came out wrong didn't it?" I feel bad, she's nice, but she's new and she shouldn't have seen me alone. The doc covering for mine came in after and I loved her, she never mentioned anything so crazy.

    Sorry for the vent, but really! Thanks for all the support folks. I'm off to recenter myself (have some wine) and gear up for the next round.

    Tracy

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