HI everyone. My name is Meredith, 27 years old, and I have/had small cell cervical cancer. As far as support forums go, I have very few options, as this cancer is only rarely found outside of the lung. So I thought I might try here because my cancer has basically been treated the same as small cell lung cancer. I do hope it's OK if I post here?
My story: IN march of 2005, I was diagnosed with small cell cervical cancer. Quite rare. I had a very large tumor--9cm--that was initially treated with high doses of cisplatin and etoposide (6 rounds, 5 days a week, every 21 days). The tumor shrank dramatically and hysterectomy was attempted, but at surgery it was found that residual tumor was slightly attached to my small intestine (not mets per se). She closed me back up. I was referred to another oncologist who has treated sclc, but not small cell cervical. I got more cisplatin and irontecan, plus internal (2 times) and external radiation (5-6 weeks). Two months after completion of all treatment (mid-January), I had PET/CT scans which showed no evidence of cancer anywhere. Yeah! But more scans are coming in 2 weeks, and I'm scared. This cancer likes to come back, just like its lung counterpart.
I know there are more chemo options for me if it has come back, but I just dread it! I had so much chemo and radiation that I just felt like dying for several months. I still have a lot of stomach pain from the pelvic radiation, very scarred vagina and cervix (which means sex is out of the question), and pretty bad peripheral neuropathy in legs, feet and hands.
It's been very tough. I can't have any children--that was pretty devastating to hear. And I'm quite young, and I felt like there was so much ahead of me, so much I haven't done.
I think I need support the most. My family is great, so wonderful, but it's so hard talking to them because I know it makes them so sad. I try to avoid it, even though they ask me to talk to them, to share things.
Thanks for reading! Hopefully it's ok if I can be part of this group to get support and information.