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Liz13

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Posts posted by Liz13

    Update on Aaron

    in MEMBER UPDATES

    Posted

    Dear Aaron and Julia, I'm praying for courage, strenght and peace for both of you. I hope they start the radiation today and he gets releif immediately. I'm also praying for Aaron coming home for Christmas and for your doctor to find the perfect trial for him. You have always been in my thoughts and prayers and will continue to be there. God bless you both. Love, Liz

    Harry's having a Bone Scan done. (his first)

    in MEMBER UPDATES

    Posted

    I just had one. They injected me with something nuclear. Then I had to wait at least 3 hours. I ended up waiting more, but I was in the hospital at the time. The scan itself was like a CT. DIdn't take long at all. Then they wheeled me over by the computer and I watched it come up. It was cool. And she told me she didn't see anything. So the results are instant. I'm praying that all is clean. Dr. West has an article on Bone mets that Randy posted the link too. Do a search here for bone mets and find the link. Hugs to you and Harry, Liz

    I'm afraid Dad is giving up

    in GENERAL

    Posted

    Hi. I had a real hard time with treatment also, but kept fighting. Lost a total of 50 lbs. But have gained it all back and feel great. I felt bad for 4 months, then started coming back. Feel so normal now. Let him know. No treatment is death, for sure. Treatment is a chance to beat it. But it's not easy. Good luck. Hugs, Liz

    Venting - Not encouraged

    in LC SURVIVORS

    Posted

    Hey Puppy, I just finished my WBR on Tuesday. Now I just simmer for 6 weeks, then do another MRI to see if it worked. And I have no doubt that it did. I'm also following up with my oncologist on the 18th, because of 2 hot spots on my Pet Scan, but I think it's radiation damage and inflimation from last year. Not much more we can do, but wait right now. I didn't drive for 2 weeks, but never had another sysmtom. Now I drive. Almost off the steroids. 1/2 a day til sun, then 1/2 every otherday for a week. Can't wait for that. Hope you are feeling well. Lunch yesterday was great. Everyone sends there love. Hugs, Liz

    Tears instead of joy

    in LC SURVIVORS

    Posted

    Hi Sally. Your profile is a bit behind. Whats going on right noew health wise. Are you in remission or still being treatment? I know las you at x mas, I had goo=ne through 37 days of radiation and 7 weeks of chemo. Spent every weekend at the er and 9 days in the hospital. Lost over 50 lbs in 10 weeks. I didn' stop vomiting til Jan. 8th and finally started to eat food again. Terrible times, but yet wonderful. Deccorations were never mentions. Just where could we take mom, daughter, etc to eat something she would enjoy. Seteled on crab brisk and it was good.

    This year I my daughter a nice Tv, to make up for last year but know tree or decorations. We are coning to cook deserts for the neigbors. No It will be about life, health and the prosotta of hapyness.Liz

    Venting - Not encouraged

    in LC SURVIVORS

    Posted

    Do you have disability through work? Long term, short term. Do you have life insuance. Do no get fired, They will take it all away. Go out on FMLA, take work Disability, Keep your insurance. Pay through the nose. Do not let them take everything you paid into away from you. Stage 4 is automatic approval. I'd go back to Brain Met dx. That makes it stage 4. You tried to work but just can't do it. You need to get better. My work benifits were 67 % of gross wages. Thats 52,000 vs. 22,000. You do the math. FMLA. Gives you 12 weeks to figurer it all out and we will help you. Hugs Liz. See you Wendsday Eileen. Maybe Christian will join us. And Nova and Gilda. I'll make the plans. My house on Thursday. Love to you all. Puppy, Feeling any better yet? I sure do. Lets go play pool, I have the cue ball. Hugs, Liz

    Introducing Myself

    in INTRODUCE YOURSELF!

    Posted

    How is your voice? I went slowly hoarse, which in turn made breathing difficult beause I couldn't talk good and struggled to be heard. My left cord was parrallazed from presser. I had a injection in it on Jan. 31, that was to last about 3 months. To this day I can still speack well, Praise The Lord. Prayers for all of us and thanks givings. Liz

    Venting - Not encouraged

    in LC SURVIVORS

    Posted

    :oops: puppy..Just lost everything. Trying again but I am on ambian. Work screwed me. Took all of my insurance, Long term, Short term, Life insurance, medical. I had 250,000 life, no more. I had 950 a week short term, no more. Now I get 1100 a month unemplyment. Pay 392 for COBRA for 18 months. But I beleive that you can get a 29 month extension to get to medicaid, lost 10 months of benifits waiting for them to figure out how to get rid of me. Good news is I now am the proud owner of a right to sue letter from the EEOC. Just need the attorny now. Going to check with Lance Armstrong. They said to call back when I got one.

    SSDI approved mine in 3 weeks dated back to the day I was fired. First check in feb. I have also gotton other pension plans from my old union and another company I worked managment for. One is a flat paymeynent and the other money is mothly. I'm also working on my 401k, got to be a way to spend it. I'm looking for an investment for the kids, just in case, for like life insurance. Personally, I feel good. TIRED, WIREDED. STERIODS ARE TEARING ME UP. Bruises, knees killing me, can;t sleep. I also didn't loose much hair with chemo or lung radiation. I did take Bioten then. I'll start again after WBR. It's a hair and nails mineral. I started WBR on a Tuesday, It took 13 days to start falling out but only 2 for me to shave it. And I don't care who sees it. No wig, hat, rag.... I beleive that my brain mets are from last year that got by and when they are done I'll be back in remission. I'm a bit piturbed that I had to wait for sysmtoms to find them. I feel the a MRI should be a good 6 month followup. But this time, I'm taking over. After brain mets, no new chemo untill they show me the cancer. This is a little better. Sorry about the mumble last night. But, boy. I slept well. Love, Liz

    Venting - Not encouraged

    in LC SURVIVORS

    Posted

    Well, that sucks, Puppy. I've been looking out for you. I too, have been recently dx with 4 brain mets, largest 4cm. I am doing WBR 14, 15 out of 15 on Monday and Tuesday. Am slowly tapering of the Steriods. Also had a PET and will be following up with what "They" think are a few trouble spots. All in all, I feel pretty good. Ampy, muscle soars, bruises, knees are killing me, I was Nausea the first week, but that too has past. Lost all my hair. Axtually shaved it, couldn't stand the hand fulls. I do hope you feel better soon and can continue on your fight. I will be praying for you. How was the surgury recovery? Hugs, Liz

    Will it grow back?

    in GENERAL

    Posted

    I just started WBR today. I start Bioten yesterday. I did Bioten when I did chemo last year and I didn't ;ose my hair. Just trying to see if it will work with WRB. Will keep you updated. Doctor said about 2 weeks. I'm starting my bandanas now so everyone can get use to them. Hugs, Liz

    Update from Liz13

    in MEMBER UPDATES

    Posted

    Hello everyone. Just got released this afternoon and wanted to update everyone. I have had a few symtoms the last six weeks. Flashy lights, 3 times, numbness at right nostrail down to lower lip and back through tounge. About 1/2 inch wide. Had this 2 time in last six weeks. Only lasted 2-3 minutes and did mention to Doctoer. He thought that met symtoms would not go away. Wensday I got a migraine, which I've only had once in my life, years ago. Called doctor and asked for a MRI, more for eliminating, then beleiving anything was there. Scheduled for Dec. 4th. Thursday and Friday, just felT blaag. Remnites of headache. Staurday morning, another headache, lasts 3 hours, then blaag rest of day. Woke up Sunday feeling great. Went to church. At the end, I found a lizard stuck between the screen and window, so I opened the window to let it excape.

    Then God smaked me upside the head. Go to hospital now. Headach came roaring back, mouth went numb and went over to cheek, numbness down thumb and flashy lights. All on right side. Thought I was having a stroke. My paster saw me and insisted on hospital. So I went. Symtoms only lasted 3 minutes and haven't been back since. At hospital they did a CT of the brian and found 3 mets. Was very surprised that I didn't

    have more or worse symtoms. Admitted me. Started steriods. Monday I had a bone scan, which came back clean, thank God, and a MRI. The MRI showed 4 mets. 3 on left side and new one on right. The largest is about 3-4 CM. The doctor thinks that they are from last year. That the cancer had gone to the brain before chemo and radiation, but didn't show up in the MRI, because they were too new. I have a PET scan scheduled for Tuesday and I'm keeping my fingures crossed that there is no recurance in the body. I started WBR today and will continue for 15 days. Then I will wait 6 weeks and re MRI. If anything is left, they will probably do Gamma Knife?? Everything is happening so fast. But he thinks he can get a handle on it. Thanks for the prayers and keep them coming. I will keep you updated. Going to go look for info on WBR now. Hugs, Liz

    I just joined the lung cancer club

    in INTRODUCE YOURSELF!

    Posted

    I really hate to bring such sad news, but someone must. Trudy passed away last night. I don't know any details, but recieved an email from her sister, Midge, today. Midge is a friend of my mothers, and when I heard about Trudy, I invited her here. I know that you all had given her hope, courage and peace. For this I thank you. Midge said she would come later to talk to you herself. Hugs, Liz

    I just joined the lung cancer club

    in INTRODUCE YOURSELF!

    Posted

    I really hate to bring such sad news, but someone must. Trudy passed away last night. I don't know any details, but recieved an email from her sister, Midge, today. Midge is a friend of my mothers, and when I heard about Trudy, I invited her here. I know that you all had given her hope, courage and peace. For this I thank you. Midge said she would come later to talk to you herself. Hugs, Liz

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