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Liz13

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Posts posted by Liz13

  1. Dear Gracie, I wasn't able to comfort you when Carlton lost his battle with cancer last month. I was becoming completely over whelmed myself with everything that was going on with you. I did follow your story and you are very brave and strong for what you have gone through and what you continue to go through. I can't imagine not breaking down once in a while. And it will take a while to heal. You've had your heart ripped out of you body. Without antsteshia or bandages. When we lose our lung it takes months for us to heal. Why should you heal faster? Because there's no scar on the outside? Your scars and pain are inside and can only be seen by those you share with. And that's us. I'm going to be praying for peace for you. You have strenght and courage. Just peace. I want you to see that Carlton is all around you. Evrytime you look at your girls, you will see him. Everytime you hear that special song you will feel him, everytime the sun shines on your face, you will feel his touch. Let him warm you up inside. Let everything go to God and let him worry about the details and you just soak up Carltons presence, as it is all around you. Hugs and more hugs, Liz

  2. Dear Heather, Words can not express the pain I feel for you and your boys at this time. I am sorry that Gerald has lost his fight with this angry, angry beast. But he made us proud. So, so proud. He was so strong and courages. I hope he found peace at the end.I walked the steps with him since last September and have been asking God to show us all our roads to follow. He was so lucky to have you with him on this journy. While I have my parents and my children near, I wish I had a soulmate/bestfriend to go through this with. Your love for him could be felt all through cyber space. Every time you spoke of him. I know that he could feel it every time you walked in the room. I will continue to pray to God for strenght, peace and courage for you and your sons while you continue to travel this most difficult road. And I hope that there is sunshine, flowers, rainbows and birds singing when you come out the other side. Hugs, and more hug, Liz

  3. I have been seeing a lot of post recently about people worring at scan time. I know I do. Terribly. I was trying to put it into words yesterday. It's like when I had my first child. I swore I would "never" do that again. Then time goes by and I forget the pain. And then I got pregnate again. And everything was fine. Till the first labor pain starts. Then it all came flooding back. The scans are a lot the same. Everything goes along and then all of the sudden it scan time. And it all comes flooding back. The pain, the treatment, the sickness, the worry, the fear. And just like that baby, there is really nothing we can do about it til it's over. I would actually be more concerned if I didn't worry at scan time. Then I might not be taking this as seriously as I should. What we need to do is control it. And some of the folks here have some great suggestions. I personally just get freaked out and depressed. Perhaps others could share their tips with us. Hugs, Liz

  4. Lilly, I am so sorry for the loss of your cousin, Gloria, yesterday. I can't imagine the impact this has had on you. I'll be praying for strength, courage and peace for you as you start this new treatment. I also want to thank you for chosing a clinical trial to particapate in. It's people like you that give the future generations more hope. I too, will be praying for healing for you, if it is God's plan. Keep yourself healthy and hold those children close to you. Hugs, Liz

  5. The nurse just called. The doctor looked at my scans this morning and said I was stable. I'm beginning to like that word. "Stable". Has a real nice ring to it. Usually they wouldn't call, but the doctor is going on vaction tomorrow and I refused to wait til April 3rd to hear. Told him he had to call me by today. Smiling from ear to ear. Peace, strength and courage to all. Hugs, Liz

  6. I am sorry for the pain that you are going through as the 1st anniversary is approaching. I am praying for strength for you and also peace. I know when people ask me how I'm doing, I say "Great", "OK", "Fine" and "Peachy". Never anything bad. It's just a standard reply and come's naturally. I think that's probably what these folks are doing. They don't know what else to say. Please try not to let it get to you. The folks here know and understand your pain. Try to let the rest go. It is so much easier that way. Don't let their careless remark's affect you. As for your step dad, I'm next in line!! Hugs, Liz

  7. Please be careful about going out to walk so soon. I went to Walmart a week after getting out of the hospital and started coughing. I had no place to sit down. My mom had to run and get me a sitting cart. But the coughing fits, (or maybe just the bad, bad pain from them) stopped after about 2-3 weeks. Waiting for more good news. Hugs, Liz

  8. Wow Jessie, That's a tough one. First let me tell you how sorry I am that you have to go through any of this. I hope you don't ignore your own pain while you are preparing your children. I don't have any experience in this, just shooting from the hip here. I would try to be as honest as possible, without being too specific. Right now they're not going to undestand a lot, but eventially they will. Being truthful will help in the long run. Not knowing what your background is, it's hard to say. Perhaps they know about God and heaven. I would prepare them that she will be getting sicker. And try to help them make the time left special to both your mom and them. I will be praying for courage and strength for you during this time. Hugs, Liz

  9. If I had it to do all over again, (and no, I'm not voleentering) I would have continued exercising until I couldn't. I didn't when I started and soon got to the point where I couldn't. Near the end of my treatment I was sleeping 10-12 hours a day and taking 1-2 naps a day. I was so exhasted all the time. After treatment I started regaining my strength back little by little. Stand by your mom, encourage her when the time is right. I'm hoping she will start feeling batter soon. Hugs, Liz

  10. Hi Heather_T, Just my 2 cents. Throw out everything you've been told and trust your body. You have been to hell and back. I know that because I've been there myself. You've had more treatment than me. I don't think my body could have handled more. Trust yourself. Your not anywhere near a wimp. Most people couldn't handle what you have been through. Do what you need to do. And have faith. Your coming out the otherside now. Hugs, Liz

  11. Dear Kasey and Becky, Thank you so much for your kind and patient replies. I was feeling sorry for myself Friday night. I think waiting on this CT result is wearing on me. But I recieved a large attitude adjustment this weekend. A special thanks to Eileen and Barb for that. I do know that Gracie, Heather and Flowergirlie would not want me to feel guilty over what is happening in their lives. And I know there is a lot I can offer to everyone on this board and in my life. I am living proof there is life after chemo. This illness has truly been a blessing of sorts for me, mentally. I have learned so much about myself and about the world. I have a lot of experiences to share, love to spread and hugs to give. So get in line. I'm joining the real world again. Becky, I've got my big girl panties back on, though I may need a reminder now and then. And Randy, thank you for the warm blanket. I know you sent it anyway. Hugs, Liz

  12. I have enjoyed this site tremendously ,the little bit of time I post here. When I first found it I thought it was great and that I'd be able to help people here. Turned out I read a whole bunch more then I post. And I get more depressed every day. And I can't stay away, because its like a crystal ball and I'm seeing my future. And then we take out the dice and roll them. I watch Fred die, then Carlton die, now Gearald is dieing, and flowergirls husband. They are all younger then me and we were all diagnoiused at the same time. I feel up in the air. Can't really encourage someone new, cause I'm just a baby myself. Don't want to scare them off by telling the truth.I want you to know that even if I don't post on your greiving post, I am reading, crying, and praying you. I just cant embrace it yet. It's to soon. I'd like to turn this topic into the lc surviver topic. I need a place to go, but I really don't want to hurt any survivers caregivers that are here. It's hard to talk about my true feelings while you are going through so much pain.And it may get mean, no snow balls and warm blankets. Not all sweet And it could get ugly. Hugs, Liz PS : Feelings are the same this morning, just better typing when I don't have Ambien in my system. Sorry to the ones who stumbled through this this morning.

  13. Dr. West addressed this before. I don't remember if it was here or on ocntalk.com. In general, I don't believe he thought it was a real risk compared to the risk of low cell count. But I could be wrong. Still suffering from chemo brain. Try a search.

  14. Laurie,

    Tell "Hubby" I'm glad he decieded to try chemo again. I understand why he was hesitant. The last thing I want to do is go through all "that" again. Only the person that has gone through it can make the desision to do it again. I hope that this treatment does the trick and he's done with the chemo soon. Praying that the side effects are minimal and the "Kick a**" is strong. Hugs, Liz

  15. Hi Barb, I started to feel the side effects about 10 treatments in. Get carafate for soothing the esauaguse and miricle mouthwash to numb everything. I think it was raidisplex I got for the skin. If your insurance isn't great you can get aquaphour over the counter. Enjoy the food that you like now, because you'll be eating creamed soups soon for a long time. I didn't start eating good again till about 3-4 weeks after treatemnt. Keep your chin up. It will get better. Hugs, Liz

  16. I started getting a 1/2 hr massage 2 x a week about 5 weeks ago at my chiropractors office. My insurance pays for it. Imagine that. It's called thearapy when it's in a Docters office. Since then I have felt my scar healing, my numbness leaving and my muscles come alive from my surgery. Going to 1x a week now. And you all are so right, we certainly deserve it. Check your insurance. I've been going to a chiro for years and they never told me. This is a new guy and I was just goofing around and asked if insurance would cover it. They checked and they do. Whooooo!!!

  17. My guess is that if needed there is probably a patholigist on call. When I went in I was to have my upper lobe removed. CT and PET both indicated stage 1. After opening me up they could feel (see)the cancer was larger then expected with possible lymph node involvement. They did biopsy right there. When they were confirmed cancer, they closed me back up. They knew I would have to do chemo and radiation, so why weaken me with the surgery. They don't want to do surgery unless they are really sure of getting it all. The thing you want to hear is "We took it out". It devastated me to hear they couldn't, because I knew what that meant.

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