Sue C

We recieved great news from the oncologist! Lyn's PET scan shows no new disease! The"lit up" area is less than last scan and the docs say that's still from the radiation ( only 1 month from last treatment). Her pain is gone, energy is increasing, life is good!! Next MRI is in 3 months and next Pet is in 4 months. Thanks to everyone for your support and prayers! We're expecting 2 grandchildren this summer,2 years ago Lyn missed the birth of our first granddaughter, she won't miss out this year!

Kim, We are so sorry for your loss. Sue & Lyn

Joan, I'm still finding my way around here and just read your post. I'm so sorry to hear this. We'll keep you in our prayers.

We saw the radiation oncologist this morning and are scheduled for her CT and mapping/markings tomorrow. She should be able to start treatment next week. The information I have come across on this site has been a blessing! I feel more prepared when we meet with docs and I think the stomach kicked feelings have lessened because I am able to digest tretment plans and explanations. For this I will be eternally grateful! On a computer question, how do I list our journey so far, I see so many of you have? Thanks again Sue

Thanks for all your replys! We'll be able to be a little more prepared as we start our new journey. I'm sure I'll have tons of questions as we go along, I'm glad I found you all.

Ry, Yes they did remove nodes during the mediastinoscopy, however there was 1 they couldn't get due to where it is.

I'm here for support, questions, support and more support. My partner of 12 years was diagnoised in April 2005 with non small cell cancer adenocarcinoma. Quit smoking in '88.There was a small mass in the upper left lung, and they found 1 positive node in the A/P window.She had an upper lobectomy in May 2005. She underwent 4 cycles of Carboplatin and Taxol. All scans were looking good till this Sept when a PET showed a "slight uptake" in the lymph nodes in the A/P window. She had a bronchoscopy, which did not get "enough" tissue to give a "good "diagnosis. She underwent a mediastinoscopy in Nov and they removed a "few" nodes in the same area but were unable to remove one that was in the area of the Aorta/Pulmonary artery area. It is about 1.7 x 1.8 cm. We meet with the radiologist this week for treatment plan. Oncologist wants to start her on Tarceva after radiation. When she had her original surgery the doc said, we'll remove the upper lobe, have the chemo and you'll be off to live your life. Guess we were very niave. We have tons of questions, does this recurrance mean survival rate is less than 5 years? Do we start a new 5 year countdown for survival? Any help would be greatly appreciated! Thanks Sue