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Posts posted by Leela
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Thank you both so much for responding. It is true that who knows what is causing what or what combination of things can cause what. My mom did have an echocaridogram in early August, along with an EKG - both normal. But if the CT shows nothing new, maybe we'll ask for another. She has really seemed to stump the pulmonologist, but thankfully he hasn't given up on finding a cause yet.
The respiratory therapy doesn't seem to be doing much for my mom either - she is struggling to maintain her weight the way it is. She is such a trooper though and I admire her strength, even more than I did before this horrible disease took hold, if that's possible.
Thank you guys again. You both and Tony have been through so much already and I marvel at your strength as well. I keep you all in my prayers. (((Hugs)))
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Prayers sent.
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Congratulations all around and Happy Birthday!
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Wow. That is certainly informative.
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My mom has been experiencing some chest tightness for a few weeks. She doesn't seem to have it when she's lying down. So she feels better at night and in the morning. As the day goes on, it tightens up. She has been struggling with SOB for even longer. Her onc. doesn't have any ideas on what would be causing these things as he says that air is moving well when he listens to her lungs. Her pulmonologist has tried many things (listed in profile) and she is now weening off Prednisone. The steroid does not seem to have improved the SOB at all, but has eased the constant tickle in her throat. She continues to go to respiratory therapy 2x a week.
Has anyone else experienced this? It just seems odd to us that lying down eases this. She is having a CT scan next week, which they have added her neck to this time. Just wishing there was some way to help her feel better in the mean time.
Thanks,
Lisa
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Your family is in my prayers.
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Welcome Mike.
To add your history to your signature, go to the top of the screen and click My Profile (it's just to the left of GOODSEARCH and FAQ's.) The place to enter your signature is about 1/2 way down the screen.
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Rainbow,
I'm so sorry to hear this. I'm glad it was peaceful and he is free from his pain. Peace to you and your family.
Hugs and Prayers,
Lisa
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Prayers sent!
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I agree with all of the above. Please only take the hall pass if YOU need it. We NEED positive stories. It gives more hope than you realize.
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Woohoo! Here's to 5 more.
Lisa
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Welcome Mary. You've come to a wonderful community full of hope and support. Please share your story. To post your info in your signature go to the top of the screen and click on My Profile - it's just to the left of the GOODSEARCH and FAQ's.
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I hope your dad get some help from the gemzar. Sending prayers.
Lisa
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Two important reasons to celebrate! Happy Birthday to you and happy one year survival to your mom. Cheers - here's to many more of both.
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What a beautiful story. I am in awe of your strength. Welcome back.
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Welcome, Val.
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Thank you for sharing this. I love to hear stories like this - it gave me goosebumps. I believe it WAS your mom.
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I'm so sorry, Rainbow. It is too soon. You all will be in my prayers.
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I'm so sorry for all you're going though. You and your family will be in my prayers.
Lisa
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Welcome, Marci. This is a wonderful community full of support and hope.
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Wonderful news! I'm so happy for you.
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I'm so sorry. You and your dad will be in my prayers.
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Congratulations! Wishing you many wonderful happy years of love.
Songs?
in GRIEF
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"I Hope You Dance" by Lee Ann Womack