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lilgna

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Posts posted by lilgna

  1. You have found a wonderful place to share experiences and gather HOPE, and inspiration.. The people of this board will give you insight and courage, and information, that can only be shared with those who are experiencing this dreadful disease. I hope you find good results, for your health and good thoughts for your heart... Blessings. gina

  2. I just refuse to be a statistic. I have never been one, I have always, reached outside the box. I have strove to be someone that doesn;t have limitations, or fit into lifes sterotypes. So I look at this disease, this way, that I refuse to fit into the mold of 3-5 years. I will fight to stay and prove them wrong. I have already exceeded the expectations. PLEASE oh please. do not get caught up in how long...Focuse on exceeding that and living really living, like its just a chronic illness...and who knows a CURE just may be out there and I want to be here when it arrives..Best wishes to you....gina

  3. Scans came back. stable. Yipee.... although, I still have a mild worsening of the pericardial effusion, which they are going to echo tommorrow, the STABLE thing is awesome and at last, after 4 months, I can kinda breathe a little easier than before.. I know you all understand. We are all a little apprehensive, until, its all good.... So many thanks, for all the prayers, and good wishes, and once again, you guys pulled me through. Million thanks, lets all have great news from now on, it has been a long dry spell without, alot of good news..... Blessings to us all.... gina

  4. Tomorrow is the second scan after ..4.. Alimta treatments, I did not have all the great results, after the first scan, so I am more nervous, than usual, if it is possible..... I always feel better when I come here, and ask for you all to think of me, and have had better results, when you all were there... doing so....So if you can I have a scan tomorrow in the morning.. please hope, with me, for the best of news...The best of results for every one of us. Blessings....gina

  5. Tann, I am so sorry of your news, progression sucks, I know. but you know. with the attitude you have and all of us pulling for you, it is so powerful. Good luck I am on Alimta also, some fatique, some SOB, some nausea, but not enough to keep a fighter like you down. blessings, gina

  6. Like all the others have said, Today is the worst part of it, tommorrow, the new fight begins...If alimta doesn't work for me I am giving the Avastin thing a shot, heard great things about it...Be tough..you have had your share , no doubt, just have to find the right bullet for you, its coming.. Prayers.... gina

  7. ......well for the third time since Febuary, I am having a thorencentesis, to remove fluid in my right lung.. They are talking now, if it comes back again to consider a talc procedure, sounds yukee.. with a chest tube and all for several days, but has anyone had one done? And , it so, did it resolved the fluid issue for good? HELP.. I hate the idea, rthe hospital and all, and the needle removal is not all that bad, but I am gettting tired of this too. This time it went almost two months in between the built up of fluid. Any help will be aprreciated. gina

  8. Thanks to everyone for your help. I have finished two complete rounds of Alimta. I guess I am just in a panic, because the response was not what I wanted or expected, really. I have taken a BREATH, and decided to wait until they scan me again, in July, if no better result, I will move on. Tarceva, in my research, should still be an option, I am not sure where the Dr got this info, but I will challenge. thanks again, your support pulls me through... gina Hey WENDY, I think of you also. Best to you all...

  9. Well the results of my CT scan were a little disappointing... After reading others Alimta results, I am more concerned than ever. It appears I have had a slight improvement in a few areas, lymph nodes, but the nodule has slightly increased, as well as some other areas (lymph nodes.) No mets anywhere, else, had bone scans and brain as well as full Ct scans, Thank God for no mets.... But Dr. told me I would not be a candiate for Tarceva, because my disease was large, I never thought it was Its a few lymph nodes with no Mets, that must be good, I thought, but I was wrong I guess. Dr wants me to research clinical trial just in case the Alimta does not work, that was un-nerving, will keep me on it throughout, unless I have a large progression. I was very slow to respond to Carbo/taxol first round, but when I did I was in a stable mode for over 18 mths. Maybe thats whats happening now? I expected better results, and I am very disappointed, and slightly afraid, second progressions can be difficult to stop. HELP anyone else have similar results, everyone seems to have so much shrinkage and improvement. I do feel better Dr said that is worth someting to the reports... your reponses will be so appreciated.. gina

  10. way to go Charlie, I just got number two alimita yesturday... No mouth thing, but I do rinse with salt water two -three times daily, a little nausea, on day two, but not bad. I will get Ct scans on the 31st. hope I have a great result. like you have, I feel better than before I started for sure. great news. thanks for the update... gina

  11. Thanks everyone for your posts.. Got my answers, Tuesday. Most symptoms are just side effects of this treatment, according to the DR. The pain she said was the treatment working, the SOB, was effusion AGAIN, so today I had 500cc drained off, But I should feel better soon... Thanks again, everyone I am hoping for the great results you got Charlie, and Justakid, Wendy, you always encourage..... gina

  12. First, prayers are sent for you... But I hate those STATS thing myself, we are all diffrent, please disregard it and pursue, treatment to restore, his well being. Who knows, miracles happen every day...

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