lilgna
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Posts posted by lilgna
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Took the first treatment last Wed. The steroids, nearly got me, rapid heartrate, awake at night, feeling weird all over. I have been slightly nausea, with some stomach woes, fatigue, but the really weird one. has anyone experienced SOB with this. My ribs ache and the center of my chest,also Feeling better today, eating more, does this improve each treatment? Should I expect the same next time? Help.... When do you get back to normal, or do you? thanks, gina
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YOU go Charlie, for many, many more years.....gina
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Cathy, Sorry to also be late coming in. I am so truly sorry, for your recent news, but like you would tell us, remain calm, one thing at a time, BREATH< none of this cannot be treated. In the meantime, I will pray hard for your recovery and peace of mind.. gina
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Poggie, I am so sorry for your mother, please tell her we are wanting the best for her, and hope good things are coming shortly. Blessings, gina
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So very happy and relieved, Beth, Keep up the fight. gina
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Nothing is imposible, and let it be said, we all hoping it will be relieved very, very soon.. This is scary but only a small set-back Prayers for you both....gina
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Not to ruffle anyone, but I am a sunshine believer also. The sun , yes can hurt the skin, but I have been in it all my life. But I think it brings out the "feel-good inside" we all need to fight.......I am not ashamed to say during my first chemo, I sat in the sun throughout a heated Georgia summer, until I looked quite healthy. Even my bald head, which had never viewed the sun, But we must be careful too....
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I am so happy you have returned Frank, in one piece, fom your ordeal.. I am sorry I knoe I am late responding... I have been in clinical hell--o myself. But you were missed.. gina
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Thanks to everyone who took the time to reply, I started the three day steroids, today, tomorrow, I get the poison, and then every three weeks, like you all described. I will remain positive, I want for us all, a complete remission, long term... I will pray for us all... lets hope this drug maybe is the answer...gina
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After several weeks, of well You all know what. The DR. has decided to start second line treatment with Alimta. The effusion was drained off my lung, and was not malignant, Thank God.. So the lymph node progression is still all we are dealing with. However for precaution, I am getting a bone scan Friday and I had a Echocardigram for some very small effusion percardial side. So pray the bone scan is OK>> It was confirmed to be very small in the percardial window, Thank God.. So maybe this Alimta will do the trick.. Seems like alot of this board is taking it. Any suggestions, complaints, heads up, will be appreciated. I am very disappointed, obviously, I was STABLE, for 18 months,but the BEAST returned... PRAYS, please. gina
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Thinking only good thoughts for you Melanie. Prayers for great results....gina
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David and family, My heart goes out to you all, I will pray for better days coming. I understand your feelings about your family, I to, always apologize for this interrruption, I have caused in our lives. But like my family, I am sure yours feels like it is no burden to them to love and care for you. Please continue the fight, knowing we are here, in spirit to support you, and may God bless you all. gina
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First the best of luck on your upcoming DR appt......, the anxiety is So much when I enter the onco office, and right before scan time and right before the reults, and sometimes in the early hours of dawn....when no one else is awake.. the fear arises... I understand andI think it is because our very security, sorta of, has been yanked right from underneath us, that we just know it is never completely secure again..
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Well mine did come back somewhat quickly, within three months of my last treatment, I had a head cover and thicker, but grayer, but hair, It is now down past my shoulders, and somewhat unruly at times. Chemo does make changes.... Glad to hear we all have similar experiences, Blessed are we that endure.......gina
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Great news, Wendy, go you..... Celebration time.... gina
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I will be praying for Charlie's scans to be the very best.. Hang in there, gina
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Prayers for the very best reslts... gina
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Beth, Your post is so sad, and I am so sorry it is so bad fo you.... I have been waking up every hour almost, for over two weeks, but I do get back to sleep. But I know what that is doing to me, so I cannot imagine how hard the day is for you. Hoping for a sound slumber, and no pain now for you....gina
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Cannot give an answer but would like to offer up my thoughts and prayers, hoping all turns out well..... gina
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Thanks to you all for your thoughts, I did have a ultrasound guided thorencentisis on Friday, at first they could not find anything, then, they saw a very small pocket, and drained it. It was not too bad. The radiologist did it. Only got like 130 cc very little, but enough to evaluate I guess, Now I will pray it is nothing more than infection, not reoccurrence. This really stinks, as you all know.... Thanks again, today I am sore and still a little under the weather, but tommorrow is a new day..Your concerns are so very helpful.....gina
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Hi and thanks to everyone for their prayers and good wishes. However, I am not returning with good news... I am crushed after being stable for so long.. I first have some growth in the three to four lymph nodes that have been hanging around since original DX. The original tumor is still gone but these little pests, now have decided to grow. I also have some pleural effusion, that they wish to address. They said there is an outside chance that the effusion is actually infection that have caused the lymph nodes to look larger. So they must drain it to find out if it is infection or whatever it is. I have been steadily sick since December with little time, when I felt well, so maybe... I will pray for that I guess. Worst scenario, is back to the chemo room for more poison. I do not have to tell you how I feel about that, But, I will do whatever I have to I guess.. I refuse to give in or up to this horrid thing...The good news is, it has not gone anywhere else. It is till the same three to four lymph nodes, ( sometimes 3 show, sometimes 4) so when given lemons, must make lemonade I guess. Actually I am so damn sick of lemonade... Any suggestions for second line treatment would be greatly appreciated.... And as always your prayers are so welcomed.. Thanks again, gina P>S> this drain thing anyone that has had it done please let me know...how bad...
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My scans are due again,...... and oh how much anxiety that causes ..... but this time I really am worried. I was diagnosed with strep throat Friday and have been feeling awful, plus, it is compromising my breathing, all the congestion, which is probably a little sinus also, plus I just worry anyway. You all know what I mean.. But if you can give a quick prayer my way I would so appreciate it. Thanks agian for your support, I truly believe it helps.......gina
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Cathy I am so praying for you The very best luck on your vaccine... gina
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Please do not despair, we have all been where you are, I think. I chose to look at this disease very simply... If you ain;t living with it, you are dying from it... Since I prefer to live, well you know the rest.. It is NOT easy and I get very nervous at scan time, and when my stomach hurts, when anything seems out of whack. I lie awake many nights comvincing myself it wil all be alright. And some days it really is.. I chose positive thoughts, and positive actions. I feel I win over cancer every time I do. And you know what we all win everyday we are alive.. Cancer loses... Stay positive if you can .. things will look up.
Where's Frank?
in GENERAL
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Frank, Thoughts and prayers coming your way... I understand, I too, have had some clinical woes, that just go from one thing to another... Hoping your up and around very soon..... gina