K and Kids
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If it can be, it's crossed and lots of prayers coming your way.
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Thank you so much for your prayers.
I was just on the phone with my sister and she had heard from Mom in the last couple hours. Dad was taken to the emergency unit and had a large amount of fluid drained. The word is that he is not doing well. I am not sure whether it was the emergency room docs. or his oncologist who said that the daughters should be called ... but that is what happened. Mom had gone home briefly to get some things and was returning to the hospital as they were trying to find him a bed. I am not sure what the plan is but I know Mom wants him home if the verdict is to do no more.
I know you will continue to keep Mom, Dad and our family in your thoughts and prayers. Things are so up in the air and I feel (as my sister does) pretty helpless at this point. I will try to update you as soon as I know more.
with all our love and thanks,
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I am so sorry that Cat is going through this and alone. My prayers are with her and best wishes for success with the radiation procedures.
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This is a second hand report based on my coversation with Mom yesterday early morning.
Dad is still very weak and needing a great deal of physical help. Mom says as long as they don't have to make a Dr's appointment and get out of the house she is able to handle this. It just take Dad forever to do something because he has to stop and rest inbetween even the simplest tasks. This has got to be so hard to watch.
At Dad's appointment earlier this week the Oncologist wanted to do another Thorocentisis(sp?) ASAP. He called to schedule it for that day or the next and found that the doctor doing the procedure is totally booked up and won't be able to do it until Thursday next week. I understand that I am not a medical professional but this does not seem right to me. Mom says that Dad is waking up at night and sitting on the side of the bed trying to catch his breath. She said she may have to call and tell them to figure out a way to get this done. The doctor also ordered oxygen for home and it was to be set up yesterday. From what I gather the main unit is placed in a central location in the house and then Dad can move around as he needs to from room to room. I hope this helps.
Dad is now taking an appetite stimulant so hopefully he will find it easier to eat. This has been a big problem and I am sure it contributes to the weakness. There is just too much going on for the poor guy and he is being a real trooper. Mom appologized for being a baby and venting about the situation and I told her that she had every right to vent and she was NOT in anyway being a baby. This is what it is and they are both handling it the best way they know how. I am so proud of them and so sad that they have to be dealing with this horrible situation.
Thanks for your continued prayers. We sure feel them.
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Beth,
I am hoping for a smooth operation with a great fix and quick recovery.
Lots of prayers coming your way.
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You have been and will continue to be in my prayers, Cat.
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I agree that the next hall pass needs to be for something fun. Prayers to you for two successful surgeries and speedy recovery.
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Will do.
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Peggy,
Thanks for posting this update and thank you and all the dear friends on this board for your continued support.
I have been trying to call every day to keep tabs on how things are going. I have spoken to Dad as of yesterday and he is pretty honest about feeling weaker each day. It is very hard knowing how much Mom is having to do for him now and not being able to be there. Thankfully, there are a couple friends who have come to the rescue and have been a good support to Mom and there for Dad too.
Thank you all for your prayers. I haven't posted much since my return but I try to read the posts here when I get a chance. My thoughts and prayers are with you all.
I'm so glad to have been able to spend a week with Mom and Dad. The hardest part is being so far away and not being able to just be there when I am needed.
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That is wonderful news for your both.
Prayers for continued "feeling pretty good" for Lucie and even feeling GREAT!
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Definately keeping you in my prayers.
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Wow! I sure needed that.
Thank you Dean Carl.
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Have a safe and enjoyable trip.
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Dean,
Just wanted to add my best wishes for you. I am glad to hear that you are enjoying your birds and computer poker. Holding you in my thoughts and prayers.
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Well, technically I am going out of town for a week but since I am heading to CA to see Mom (Paddy) and Dad (Dave) ... I can still be found.
I am heading out tomorrow afternoon and will be back the following Sunday. Dad is hanging in there with the radiation. He did have to have a plasma transfusion last night. There is always something, poor guy.
Both kids are going to stay here with their daddy and Grandpa Al (daddy's dad). Finances just did not allow me to take them and I think it will be good to be able to be there for mom and dad. Heaven knows I will miss my muchkins. Grandma and Grandpa will too. This has been a tough decision(sp?).
So you know where I will be and who I will be with ... but you don't know what I drive .... do you need to?
Later
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That is wonderful news! I will keep you and your father in my prayers for his upcoming surgery and recovery.
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Hi TAnn,
I tried to post yesterday but something funky was happening. Anyway, you have been on my mind and in my prayers. I am so sorry to hear the latest news. It has got to be scary.
I will continue to keep you in my thoughts and prayers.
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Happy Anniversary and Congratulations.
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A big thank you from me too.
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I will keep you in my thoughts and prayers.
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That is great Don. It is very important for the caregiver to take care of themselves too. I'm not drinking a toast but I will do a little dance in your honor. Yipee.
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Sharyn,
My thoughts and prayers are with you. The past two weeks or so have been a similar rollercoaster ride for my Dad. Your parents are so blessed to have you with them through all of this.
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Hi Amy,
This is a tough one for me, especially lately as I don't feel like I have been in touch as much as I would like to be or should be. The time change for us is a hitch ... me in MI and mom and dad in CA. Recently my husband has gone to an early shift and is also going to school one night a week and doing homework the other nights. So if I want to see him I kind of have to follow his schedule at night. This makes catching up after the kids go to bed a little difficult with family and friends in CA. What an adjustment.
The other part of this is finances. Things have become a little easier but not enough to where I could have made a trip to CA with the kids this summer. That is really hard.
Now with the new diagnosis, it is even more difficult because there are all these questions as to when I should make a trip and if I can make a second when I need to etc. I do have a trip planned for a week the beginning of October. It is without the kids and Jeff so that is going to be hard in some respects. It just wouldn't work to take Maia out of school and Scott out of pre-school and their activities right now. Also 1 ticket is manageable ... 3 is not. Talk about feeling torn between two places.
The good thing is that I have had a great deal of support from my friends here in MI. They are willing to take up the slack when I am gone and get the kids to their activities etc. Jeff's dad is going to come and spend the week here to take care of things at home so that will be good for the kids. I don't know what kind of changes or adjustments Jeff is going to be able to make to be here for the kids but we'll have to see what happens there. The prayers from this end of the country have been many ... both mine and my MI friends. That all helps.
In short (or long as my post might be) it is tough. I think we all handle it in the best way that we can. Sometimes I think I am doing fine and then I find out that I am really not. Sometimes I feel good about the communication that I am keeping up and others I do not (like the last two weeks). I hope that I am some support to mom but it is hard not being there physically.
I certainly feel for your situation and identify with your concerns. This is a rough situation to put it mildly.
Hang in there.
Prayers for you, your dad and your family.
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That is very good news.
As for the "white coat" syndrome(sp?), I think you would have every reason to get this way given your experience and what type of office you are in.
A little better news for Paddy and David
in GENERAL
Posted
I just wanted to pass this along before I took off for my son's field trip.
My friend, Nancy, called me to let me know that she had spent 2 or 3 hours with my mom and dad last night at the hospital. She was there when Dad's GP came in.
There was a large amount of fluid that was drawn off the lungs but some still remained as going any further at that time would have caused more serious problems. So today they are going to try and get the rest and also infuse something in to prevent the fluid build up. Not sure of the name or anything but I did hear this mentioned much earlier on in Dad's diagnosis.
Nancy told me that Dad was pretty "chipper" and talking even with an oxygen mask on. He even said something to the effect ... I thought I was a gonner this morning but I am glad that I am not...... so that shows that his humor is working. Also Dad's GP has stepped up to the plate before to get things taken care of (the last time was for the 3rd thorocentisis) and he is not afraid to make sure Dad gets what he needs and pronto. He is addressing Dad's blood sugar level (being too high) as well. I guess insulin was given and they may need to give more but at the same time Dad's appetite has been almost non existant so he is addressing that too. When dad mentioned that when he does feel the desire to eat it is not always the best stuff for his sugar, Dr. Barron said not to worryabout that and to eat what he wants. They will take care of it.
So my heart feels a little calmer. Having and angel friend (actually I have two who are working over time for me) to be a surrogate daughter right now is a blessing.
I hope to speak to Mom and Dad tonight if I can get a phone number for Dad's room. Will pass along all your best wishes and also update you too.
Prayers for you all.