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shineladysue

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Posts posted by shineladysue

    Kickin' butt (can I post that?) and takin' names

    in NSCLC GROUP

    Posted

    Wow, that is wonderful news . I'm really happy for you. When you get the chance, I hope you can come back and further tell us about these medications your mom is taking. That is such an incredible story of stage IV nsclc and 90% reduction.. Please dont' keep this information to yourself. We want to "kick butt " too :wink: .. lol God Bless you

    sue

    First Radiation treatment

    in NSCLC GROUP

    Posted

    Cappy,

    Mike has gone through a series of 10 radiation treatments on 2 separate occassions. The first time around , he had absolutely no side effects. This last time around, after having had many other treatments of chemo etc, he had burning of the esophagus, stomach upset etc., but the doc gave him meds to help with both . The meds helped and the side effects were short lived. Our best to you.

    sue

    Starting navilbean next week - anyone on that?

    in NSCLC GROUP

    Posted

    Carrie,

    Mike was put on Navelbine just two weeks ago. He is taking it alone. His onc . is putting him on it at this time because it is known to be a little milder. He had recently been through quite a bit with Taxotere and then radiation and he was still suffering burning from the radiation. He's giving him a chance to recoup a bit. So far he is doing rather well with it. He seems to have a lot more energy than before. Our best to you.

    sue

    Lucie's Second Chemo - Part IV

    in NSCLC GROUP

    Posted

    Hi Lucie and Don,

    I don't often post, but I want you to know that reading about Lucie's progress always gives me a good feeling. Don , you and Lucie seem to always dwell on the positive. I also want to add that warmth and caring for others radiates from your posts. I'm so glad to hear that Lucie is tolerating her chemo well at this point and it is always good to know that if this doesn't work you have a back up.

    Every case of cancer is so different, but my husband Mike seems to be following in your footsteps for treatment these days. Taxotere was working for a while, but it quit for him. He is now on Navelbine... 2 treatments so far and tolerating it well. His onc. also said we will keep Alimta in mind as an option . He laughed as we left and told us our reading assignments were to read about Navelbine and Alimta. My best to Lucie. Will keep monitoring her progress.

    God Bless you both.

    Sue

    Facial Symptoms Related To Your Cancer ?

    in NSCLC GROUP

    Posted

    Bill,

    As has been mentioned here , vena cava syndrom will cause swelling in the face. Having just witnessed this in my husband's case, I can tell you what happened. It seemed like it was almost over night that his face became very swollen, he became reddish in the face(flushing), the jugular vein in his neck protruded, his arms and hands were very swollen, plus he had purplish marks across the top of the abdomen. A scan was done to determine the cause and it was determined it was all due to pressure on the superior vena cava . To correct this condition, a stent was put in the vein and 10 radiation treatments followed to shrink the tumor. Just putting in the stent alone, relieved the symptoms. By that evening his face and arms were nearly back to normal. I'm not sure what you are looking for in particular, but I hope this helps.

    sue

    The Nicotine Monkey is back...

    in NSCLC GROUP

    Posted

    My husband quit just before his original dignosis in 2001. He quit cold turkey and has never looked back. His surgeon and pumonologist both told him that it was imperative to quit to aid in healing. I didn't quit for another 2 years, when my own breathing wasn't as good, and Iwas diagnosed with COPD , emphysema. I went to www.whyquit.com and I can tell you that the education and support that I received there made all the difference in the world. God Bless you.

    sue

    Rob passed away this morning

    in NSCLC GROUP

    Posted

    Tess,

    I find myself at a total loss for words to tell you how Mike and I feel at this time. Our hearts go out to you and I want you to know that you and Rob have been in our prayers during these precious last days. May God give you the strength and comfort you need to get through the days to come. Our heartfelt condolences to you and your family.

    Luv and Prayers,

    Mike and Sue

    MORE good news!!!!!

    in HOPE

    Posted

    Hi Kelly,

    This disease will surely put you on an emotional roller coaster, but we all live for the good days. We hang our our hopes on the miracle of prayer. I want you to know that Mike and I are praying for your mom and your family.

    God bless you

    sue

    Texatere

    in NSCLC GROUP

    Posted

    Hi Jennifer,

    I just wanted to say that my husband is currently on Taxotere and has been since the beginning of April. After 3 treatments there was shrinkage in all tumors-that's the lung, lymph nodes, left adrenal gland and 2 nodules in his left lung were smaller. He has had 2 more treatments and will have a 3rd on August 9th , followed by scans. He has tolerated it quite well so far, but it does make him tired. The doctor told me to paint his fingernails and toenails with nail hardener. He said the nails can become brittle and come out. We were also told his skin around the nails may become dry and to use a good lotion containing aloe to help. None of these things have happened , but we are prepared. :wink: Our best to you. God Bless you.

    sue

    Update on Rob's pain

    in NSCLC GROUP

    Posted

    Tess,

    I am truly heartbroken to hear the latest news about Rob. He sounds like such a wonderful person and you are as well. I want you to know that Mike (my husband) and I are keeping you in our prayers. Thank you for sharing and we pray God will keep you in his loving care.

    sue

    Is the Iressa is working when the pain keeps getting worse?

    in NSCLC GROUP

    Posted

    Tess,

    You and Rob have been in my thoughts. I am so sorry to hear that Rob is suffering like he is. I'm thinking about the fact that he told his doctor he is doing pretty good right now. At that point in time , he was feeling "pretty good", but later when he wasn't feeling so well. Perhaps, he should call and tell them that the pain is unbearable. Hopefully , there is something else that can be done for pain management. I know my husband tends to say he is better than he is at the doctor also. I always go in with him. He likes it that way because I can sometimes remember to tell the doctor things he forgets. It's also good to have two of us remembering what the doctor said. 2 heads are better than 1. :lol: I'm not familiar with Iressa or the use of antidepressents, but I would opt for something to manage the pain. God Bless you both . Know that Mike and I are praying hard for you.

    sue

    This ain't fun

    in MEMBER UPDATES

    Posted

    Hi Bruce,

    I'm new to this board, but not new to the cancer rollercoaster... It sure does reek havoc with your emotions. I think we all need a break from time to time, but it sure is nice to know that you have friends to return to. Everyone here understands the need to get away for a bit, I'm sure.

    Bruce, I am sure the most recent report threw you for a loop, but I can sense that you are a real fighter. You can do this . Keep us informed of your future progress.

    My prayers are with you

    sue

    Mixed News for Lucie

    in MEMBER UPDATES

    Posted

    Hi Don and Lucy,

    I'm new to the family here, but I've been here long enough to know that the two of you are very special people and real fighters. Reading over your histories is a real inspiration to my husband and I. Want you to know that you are in our prayers . Luci, please know that you are not alone. We are with you and Don every step of the way.

    God be with you

    sue

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