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shineladysue

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Posts posted by shineladysue

  1. Nicole,

    I just want you to know that I will be praying for your mom and for your family to find the strength to get through the next part of this journey. Mostly, I will be praying for a very successful new treatment plan and one that won't be so hard on your mom. Please keep us updated.

    Hugs,

    Sue

  2. What a wonderful job Joel did in his commercial. I have dropped by here to share some more very good and encouraging news about Cyberknife. My Mom , Gwen Jones, had her Cyberknife a little over a year ago and had her Pet Scan this week . The results of the Pet Scan were *drum roll inserted here*.. NED.. yes, there was no evidence of disease anywhere. To this day, my mom gives special thanks to Joel for giving her the courage to try Cyberknife. Mom had had two wedge sections prior to this procedure with recurrences after both. Due to her COPD, age (82 on Dec. 19th) and other health problems , she was not a candidate for a third surgery. She had to go for treatment 6 days ( would have been 5 , but machine went down the first day :() It was a bit hard on her and she suffered extreme fatigue, but it was doable and here she is over a year later receiving a normal scan with NED..

    Thank you Maryanne and Joel. Joel, I won't ever forget the fact that you took the time to talk with me on the phone and gave me the information and reassurance which was passed on to my mom. God Bless you and may you continue to have many many more cancer free years.

  3. Thank you so much , Judy! This is such wonderful news for my mom and my family , but it also should have the potential to give hope to many others like her. I hope that others who might benefit from cyberknife will read this. We are indeed celebrating.

    Hugs,

    Sue

  4. Our mom, Gwen Jones, got her Pet Scan results today and *insert drum roll here* she is once again NED. There is no evidence of disease anywhere. This is just wonderful news for us and I hope these results will give hope to others. A brief history .. my had two wedge sections with recurrence after each and this is the results one year after her cyberknife. Maryanne and Joel have shared Joel's cyberknife success and we want to add yet another success in favor of cyberknife. All cancer cases are different , but in certain cases cyberknife is certainly an option that one might consider. Thanks to everyone who has been there for mom and my family with your support. Mom looks forward to celebrating her 82nd birthday on Dec. 19th , knowing she has just been told she is cancer free. Thank you God!

    Hugs,

    Sue

  5. Hello Everyone,

    It's that time again and the scanxiety is setting in , as usual. Our (Bonnie Jones & I) mom, Gwen Jones, will be having her PET Scan tomorrow , Dec. 6th at 7:30 am... Please , please send prayers, positive vibes, cross fingers etc... Her last scan , on June. 7th, showed her to be NED. We are praying for NED to continue to live with her. I will let you know the results when we get them , sometime at the end of the week.

    Hugs to all,

    Sue

  6. Lillian,

    I'm sorry I wasn't here when you wrote this post, but I do want you to know that my heart goes out to you and yes, we do understand. This is the one place where you will always be able to come and find understanding friends.

    Hugs,

    Sue

  7. Love this forum and love celebrating your mom's 6 year anniversary date, with all the good news that goes with it. This is the kind of celebration that gives hope to others.. Onward to the next 6 and many many more.

    Hugs,

    Sue

  8. Ronnie, my heart goes out to you because I know how painful and those memories can be. Ironically, just two days ago, I suffered a total meltdown . I lost my husband over 4 1/2 years ago, but it still happens when I least expect it. I was in the den , where he stayed during the last two years of his life. I took one glimpse of the sofa there and I remembered how he used to end each day by saying " Good night, I love you honey, I'll see you in the morning". I remember thinking then... what will I do when he is gone and I no longer hear those words... just thinking about that and I started crying so hard , harder than I have cried in a long time and I could hardly stop. It was scary, really scary... Most days I go along pretty well, but there are those triggers that remind me how close to the surface the pain and loss still is... Be kind to yourself, Ronnie and know that those moments are normal. I oftentimes , still relive those last hours and minutes. :( Each time, it feels like it just happened. I'm not sure how we deal with that. I've never been to counseling, perhaps I should . Perhaps others will chime in on this subject. Sometimes , just knowing others have these things happen is reassuring.

    Hugs,

    Sue

  9. Thanks for your update on Marisa, Lily. I've thought about her often. I'm glad she is able to enjoy life as she has chosen to live it. God Bless her.

    Sue

  10. Judy, I know just a little about Tarceva because Mike was on it for a short time and my mom was on a short time as well. The one thing I know is the rash can become bad enough to cause a secondary infection ,so you definitely want an antibiotic ointment like clindamycin ( sp) . Of course, that won't be a problem with you.. it wouldn't dare. The only other thing I know is that my mom needed the "magic mouthwash" because she had soreness in her throat , mouth etc. And... diarrhea.. lots of immodium on hand. I remember Mike's doctor telling him exactly what to do if that became a problem.. it seems that if you do exactly what they tell you, when it initially happens, that it nips it in the bud and is manageable after. All this sounds awful doesn't it, but ya know for most people it is very doable and I'm booking on you being one of those people. You have done so well on alimta and that is one that is intolerable for many. I have a feeling that you are going to do just fine and I'm praying you will be one of those who has miraculous response to it. I'm only allowing positive thoughts in my head, where you are concerned. Let us know when you get started.

    Hugs,

    Sue

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