cat127 Posted April 9, 2008 Share Posted April 9, 2008 OK folks, I'm turning to you as you are far more the experts than I. Two issues Kelly is having that are problematic. One the Dr. has not seen before - wait, no, she said he hadn't had either issue with his patients. First, I know I've read about here. I think NED, you might be the one that had this. Her rash on her hands and feet have now turned into "a thousand little paper cuts". I told her I had seen that here, though it was not something I would have predicted. Did you say you used some sort of tape NED? Can you elaborate for me so I can pass it along? The other is pain in her mouth. At first I thought it was thrush, which her GP agreed with and then so did the oncologist's PA, though she did so over the phone. The GP prescribed a rinse and the PA a pill, and there has been no change. In medicine, if the cure doesn't fix it, then that ain't what it is. So to speak. She'll finish out the pills, just to be a good compliant patient, but the Dr is sort of stumped. At this point, this could be what leads to a dose reduction or a two days on one day off schedule. But we are hoping that either she adapts and the pain goes away, or someone here, clearly a bigger patient pool than her Dr alone has, has also had the problem and has an answer for us. As Kelly told her Dr today - "I have a cellar full of really GOOD red wines, and with this pain, I can't drink them. I refuse to accept that I can never drink this wine!" He asked her would they 'go bad'. She said not these wines, but whether I can ever drink them is an issue. Plain and simple, it is impacting QOL for her. She can't eat things because of the pain, and lost 9 lbs in one month. She also had bad diarrhea now sort of under control and then vomitted for several days due to an antibiotic and becoming, as I teased her, Pavlov's dog. She saw a pill, she threw up. I don't think the weight loss will continue at that rate given the end to the vomitting and the diarrhea under fair control. But she needs to be able to enjoy her food (and her wine). So - any input on the cuts or the mouth? All advice greatly appreciated! Quote Link to comment Share on other sites More sharing options...
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