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recce101

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  1. recce101

    NED, check in!

    I'm okay, and I'm sure Cathy and family are too — we're up here in the central valley at several hundred feet elevation. And I doubt if she was inclined any more than I was to drive down to the beach at 3 a.m. looking for damage. Actually, there were just a few places with any damage, and I find it strange that some weirdos felt shortchanged. Just 4 more WBR sessions to go, and actually feeling pretty good this morning. No headaches, just some fatigue. It will still be a while before it's time for another MRI to see how things are going. Aloha, Ned
  2. I imagine he secretly, or maybe not so secretly, hoped she would shower with him! Ned
  3. I really appreciate all the positive thoughts and good wishes, and I'll be sure to keep you updated on any side effects from the WBR (that's whole brain radiation, Eric) as well as what benefits I get later. Much Aloha, Ned
  4. I never thought I'd be writing this, but I am. Tuesday night I had some troubling symtoms which, when added to some other concerns I've had the past month, convinced me to go to the most fully equipped ER on this part of the island. Spent 6 hours there Wednesday, had an MRI that was clearly positive for brain mets, saw my medical onc Thursday morning, radiation onc that afternoon, and started WBR the same day. Did the second WBR session Friday, and there will be 8 more over the next week and a half. Still feeling pretty good. If you really want details, I started a thread at GRACE with a rather long post — at this point there are 33 messages in the thread spread across 3 pages: http://cancergrace.org/forums/index.php ... l#msg64692 Aloha for now, Ned
  5. recce101

    very scared

    Hi, welcome to LCSC. I know you don't want to hear any of this, but my guess is that even if a doctor thinks the hazy area is suspicious for cancer, it's probably much too early to confirm that with a biopsy, and you'll be in "watchful waiting" mode for what seems an eternity. That's one of the "bummers" aspects of this disease. But early stage lung cancer is generally curable, so contrast that with the fact that many or even most of the patients here had no clue there was anything wrong until our cancers were already at an an advanced/incurable (though manageable/treatable) stage. Bottom line, there's a good chance this is nothing, but even if it's something, it's not the end of the line. Color me blunt but wishing you the best along with much Aloha, Ned
  6. Hi, welcome to LCSC. As you may know, PCI is generally recommended for anyone with SCLC, and this article from an oncologist at GRACE (Global Resource for Advancing Cancer Education) explains why: http://cancergrace.org/lung/2010/08/07/ ... ng-cancer/ While you're at GRACE, you can browse the numerous articles and comments and forum threads about SCLC and PCI, and ask your own questions which are typically answered by a lung cancer specialist in less than 24 hours. Best wishes and Aloha, Ned
  7. ts said: Cathy, I definitely agree with that. I'll take it even further, and even though I can't prove it scientifically, say that being on a tolerable treatment and feeling relatively strong can be just as effective against the cancer as being on a rougher treatment and feeling lousy. For that reason, I've never hesitated to tell my onc I'd like to ease off a bit (either in dosage or schedule), and he's always accommodated my preferences. That approach has worked out well so far, and as they say, you can't argue with success. Here are a couple of rather long discussion threads between me and other patients/caregivers and some of the GRACE docs: http://cancergrace.org/forums/index.php ... l#msg18528 http://cancergrace.org/forums/index.php ... l#msg38110 And getting those calories in is important, even more important than a so-called "balanced" diet right now. Here's something I wrote back in 2007 about my eating difficulties while on Taxol: viewtopic.php?p=316878#p316878 I'm sending you a PM also. Aloha, Ned
  8. Hi, Helen, welcome to LCSC. You're certainly on the right track with a good attitude, prepared questions, notebook, info in your profile signature area, etc. When you find out the type and subtype of cancer and what treatments are being considered, post the details and you can get tips from the community which collectively has seen it all. Another great resource is cancergrace.org (GRACE — Global Resource for Advancing Cancer Education). GRACE is led by Dr. Howard "Jack" West, a Seattle oncologist who is an internationally-recognized expert on lung cancer and who gives high priority to promptly answering questions online. A lot of us are "dual citizens" and have the same usernames there as here. Best wishes and Aloha, Ned
  9. Hi, Jean, welcome to LCSC. Plenty of people are surviving with cancer in both lungs, and I'm one of them. You can learn more than you ever wanted to know about my story by following the link at the bottom. What treatment has been recommended? Do you know the type of cancer — small cell lung cancer (SCLC) or non-small cell lung cancer (NSCLC)? And if the latter, do you know the subtype — adenocarcinoma (most common), squamous cell carcinoma (less common), or large cell carcinoma (not common)? The treatment is a bit different depending on the type. Lungevity/LCSC is terrific for support, coping tips, and similar help. For more "medical" information I suggest you visit cancergrace.org (GRACE — Global Resource for Advancing Cancer Education). GRACE is led by Dr. Howard "Jack" West, a Seattle oncologist who is an internationally-recognized expert on lung cancer and who gives high priority to promptly answering questions online. A lot of us are "dual citizens" and have the same usernames there as here. Best wishes and Aloha, Ned
  10. Hi, Tony and Sue, welcome to LCSC. Key West Judy and I have been internet buddies since she first joined in late 2007, at which time I'd been the proud owner of a 3B diagnosis for 16 months. How's that for semantics? Anyway, my story (see the link below) and associated side-stories will give you far more reading than you ever thought you wanted. Best wishes and Aloha, Ned
  11. I missed the show too, but will be looking at it online. Looks like the unfair bias that we have discussed so often is slowly being chipped away, thanks to Katie and many other advocates. Ned
  12. Annette, you won't believe what I did. I started reading down the list, breaking up at every one, but then the last one didn't seem all that funny and I wondered where the punch line was. That's when I realized it was your signature!! Ned
  13. recce101

    David Fourer

    You might enjoy looking at David's online photo album: http://www.flickr.com/photos/dfourer/ Ned
  14. Chrissy, I haven't had radiation, but your description of esophagus pain sounds very much like what others have experienced while undergoing radiation to the upper chest. Your mom's radiation oncologist can prescribe a special mixture sometimes called "magic mouthwash" which one drinks shortly before mealtime and which makes eating more comfortable. Yes, it's a common problem, but it can be relieved at least to some degree. Good luck and Aloha, Ned
  15. It's good to hear froml you, Marianne. Keep those posts coming! Aloha, Ned
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