StrahDawg Posted May 24, 2013 Share Posted May 24, 2013 Well it's been awhile since I've been on here and not sure if that's a good or bad thing. Today was my 90 day check up and I just wanted to say NED! I've been on the crizotinib now going on a little over a year and a half. The drug for me has been very tolerable other than mild fatigue and the swelling mainly in my feet and hands. My Onc prescribed lasix and that controls it pretty good. The other reason I'm posting is that in 90 day's at my next scan he want's to add a brain mri to my list of scan's. He mentioned that it's only precautionary and that there has been some evidence that the crizotinib doesn't prevent spread to the brain and that there's some new and better drug's that might help me. I know it's a good thing that he's pro-active but I've been feeling so well and active that it freaked me out a little. I trust my Onc but today I kind of went in with the attitude of trying to get the dose lowered and instead got more test's and the feeling of uncertainty/confidence that the crizotinib is going to continue to work. Quote Link to comment Share on other sites More sharing options...
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