Laralyn Posted July 2, 2016 Share Posted July 2, 2016 I had HPV+ SCC in my head and neck in 2012, and was all clear until they discovered the same cancer in my lung toward the end of last year (2015). They weren't sure if it was a distant metastasis (although it has never returned in the original site) or a new primary, so they treated it as a new primary with chemo-radiation (carboplatin + taxol). The three month PET was all clear but the six month PET showed a few new, small nodules in the same lung and possibly a couple in the other lung. Specifically: New right pleural nodularity, for example measuring 20x8 mm posteriorly. The SUV max is 8.0. Additional nodules are seen in the right posterior recess, with intense FDG activity. New subcentimeter nodules involving the left upper lobe are nonspecific and measure up to 4mm. New nonspecific subcentimeter right cardiophrenic lymph nodes measuring up to 5 mm. These are not FDG-avid. I start meeting with doctors to discuss options next week. My oncologist would like to enroll me in a clinical trial with PF-06801591 (https://clinicaltrials.gov/ct2/show/NCT02573259). It's apparently similar to Opdivo but would leave Opdivo and Keytruda both open as options afterward. She mentioned that we could try taxotere but since I have neuropathy (had platinum chemo twice) she's reluctant to try that. I'm also changing my diet (going back to keto), taking supplements (cucurmin, etc.) and using cannabis oil. I sent an email to the hospital in Cuba that developed CimaVax to see if they're accepting new patients, since trials haven't started quite yet here in the US. I'd appreciate any other info you can pass along about treatments or clinical trials. Thanks! Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.