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Longest on alectnibib without progression


Cmeyers79

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I know it's been out there for only a little bit. Curious how long people are getting and results experiences. I've been on it for 4 months now. 90% to remission. My doctor says anywhere 2 to 5 yrs 

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Hello! I've been on Alectinib for 5 months and have had a complete response. I don't know if anyone has told you about the ALK positive facebook page, but there is a TON of activity on there and it has been extremely useful to me in this journey. Very supportive  - just like the people here but specific to ALK. https://www.facebook.com/groups/ALKPositive/ Let me know if you have any questions. 

 

Best,

Brandi

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  • 3 months later...

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