Cmeyers79 Posted October 6, 2018 Posted October 6, 2018 I know it's been out there for only a little bit. Curious how long people are getting and results experiences. I've been on it for 4 months now. 90% to remission. My doctor says anywhere 2 to 5 yrs
Brandi Posted October 7, 2018 Posted October 7, 2018 Hello! I've been on Alectinib for 5 months and have had a complete response. I don't know if anyone has told you about the ALK positive facebook page, but there is a TON of activity on there and it has been extremely useful to me in this journey. Very supportive - just like the people here but specific to ALK. https://www.facebook.com/groups/ALKPositive/ Let me know if you have any questions. Best, Brandi
Cheryncp123 Posted January 24, 2019 Posted January 24, 2019 I have been taking Alecensa for 16 months now with no progression and all side effects that I had in the beginning are gone.
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