Guest Posted February 11, 2004 Share Posted February 11, 2004 Has anyone on the boards ever had this condition? I have it, and the pain is severe. I do not have swellling or the arthritis feature, but I do have the periostitis/neurological pain--which is a burning pain that is now nearly covering my body. It is bearable as long as I am awake, but as soon as I try to sleep, it awakens me. The Dr said there is nothing he can give me for it, but treatment (if the tumor shrinks) may relieve the pain. Is this true? I maybe sleep an hour or two a day, if I am lucky. I am not sure how long I can handle this. So far all i have been given for the pain is Tylenol with Coedine and now Ultram. Pls does anyone know what can help? I am getting desparate. Quote Link to comment Share on other sites More sharing options...
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