Guest Jonathan Posted May 8, 2003 Share Posted May 8, 2003 My uncle was diagnosed a year ago with a neuroendocrine tumor that is sitting on his small intestine and pancreas. He was treated with carboplatin taxol and vp-16. It went into remission for five months, but recentely came back. They have now put him on doxirubicin and streptozocin. I am confused. What is a neuroendocrine tumor? Is it a type of pancreatic cancer? Is it common? Has anyone heard of this before? The reason i am posting here is because I saw a person named john's prefile and he shows that is his mom had a neuroendocrine tumor. I do not know how to contact him, so if he sees this message I would appreciate him emailing me at te11t@aol.com Thanks Jonathan Quote Link to comment Share on other sites More sharing options...
john Posted May 8, 2003 Share Posted May 8, 2003 Are they treating it as pancreatic or Gastrointestinal cancer? http://www.mskcc.org/mskcc/html/5491.cfm http://www-pp.hogia.net/carpa/neuroendo%20en.html http://www.ncbi.nlm.nih.gov/entrez/quer ... t=Abstract It is pretty confusing, because some neuroendocrine tumors grow slow and others are more aggressive. Find out from the doctor if the tumor is undifferentiated, poorly differentiated or differentiated. How did they determine it was neuroendocrine? I imagine they did a somatostatin receptor scintigraphy (Octreoscan) or other scan for for somatostatin receptors Neuroendocrine tumors are supposed to be rare, but it seems like more people here have them. SCLC is a neuroendocrine tumor Quote Link to comment Share on other sites More sharing options...
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