[Lost my mother NSCLC Nov 4th 2015]

meme13, 

I'm sorry you lost your mother. I can only imagine the pain you are going through. Is there a favorite hobby or tradition that you two had? 

[Dad NSCLC Stage IV rallying]

Hi Christine, 

Someone asked about wedge pillows awhile back and I thought I would post that link here so you can see what some of posted. 

 

http://forums.lungevity.org/index.php?/topic/43182-pillows-for-easier-breathing-at-night/?hl=wedge

 

Best,

Cindy

[NED]

This is AWESOME! Thank you Bruce for sharing!! 

[Dad initial diagnosis poor]

Christine and Marie, 

Thank you for continuing to update us. I am so glad that you are getting some answers and feel better about your Dad's new treatment center. 

 

I look forward to continuing to get to know you,

Cindy

[Newly diagnosed]

Hi Joel,

Welcome to the LCSC message boards. I am sorry about your diagnosis. I know this is so very new to you. I want you to know that we are here for you as a group. LUNGevity also has a LifeLine program where we connect you to a someone who has had a similar situation who can mentor you and help be a guide. If you are interested in that please let me know. Here is the link to get started or you can email me directly, whichever is easiest for you. http://www.LUNGevity.org/LifeLine

 

We are here for you,

Cindy

calmendarez@lungevity.org

[Lost my mother NSCLC Nov 4th 2015]

Hi Meme13,

I am so very sorry about your brother. We have a grief forum in the message boards. Feel free to post there or you can stay here, it's up to you. How are you doing?

http://forums.lungevity.org/index.php?/forum/13-grief/

[Choosing Doctors]

Hi Diane, 

 

If you would like to email me the doctors information that you have, a staff member of LUNGevity can reach out to them and talk about our services and how we might connect in the near future. My email is calmendarez@lungevity.org 

 

Thank you for being an active member of LUNGevity's Lung Cancer Support Community message boards. 

 

Best,

Cindy Almendarez

[the insurance refuse to give my mom Tarceva]

cclin001,

I'm glad you were at least pointed int eh right direction. I hope your mom gets the medication she needs quickly. 

 

Best,

Cindy

[LUNGevity’s new Clinical Trial Finder allows people to be proactive]

“LUNGevity’s new Clinical Trial Finder allows people to be proactive in their diagnoses, providing access to critical information that can change outcomes for patients and allow those patients to participate in the research process,” noted Charlie Rudin, LUNGevity Scientific Advisory Board Chair and Professor and Chief of Thoracic Oncology Service at Memorial Sloan Kettering Cancer Center. “Clinical trials often offer patients access to the most advanced treatments that could help extend their lives."

http://www.lungevity.org/about-lung-cancer/lung-cancer-101/treatment-options/clinical-trial-finder

[Explore the new LUNGevity Clinical Trial Finder]

Find lung cancer clinical trials that match your individual situation. The LUNGevity Clinical Trial Finder makes it easier to find available clinical trials by type of lung cancer and geographic location, and provides information and links to the medical centers at which these studies are taking place.

 

http://www.lungevity.org/about-lung-cancer/lung-cancer-101/treatment-options/clinical-trial-finder

[Lung Cancer Awareness Month - Get Empowered]

Get Empowered this November!

by Katie Brown

 

http://www.lungevity.org/support-survivorship/get-connected/blog/get-empowered-this-november

[How to persue Diagnosis]

Hi Aaron,

 

I am sorry that you are feeling like no one is listening to you. Is there a Nurse Navigator you can talk to or maybe go outside of this treatment center to a different group of doctors? In a different city perhaps?

[Clinical Trial opportunity - Please Read and Apply]

Clinical trial recruitment for 3 ongoing Atezolizumab trials. Two of the trials are for stage IV non-squamous NSCLC patients and one is for stage IV squamous NSCLC patients.

 

http://www.antipdl1clinicaltrials.com/hcp/antiPDL1_clinical_trial_info/lung-cancer.

 

Contact information for the trial is below.

 

To Contact the Genentech Trial Information Support Line:

 

Phone: 1-888-662-6728  (US and Canada only)
Hours of Operation: 6am - 3pm PST Monday – Friday

Email Address: global.rochegenentechtrials@roche.com

[Step dad going through tests - not sure what to expect]

Hi Isaut, 

I'm sorry that you have to be here. We are here for you. Here is a great link to resources that LUNGevity has on the website. http://www.lungevity.org/support-survivorship/caregiver-resource-center/practical-resources-for-caregivers

I would like to mention that over the years that I have been able to connect with survivors, most of them mention that having one notebook that gets written in often works well. Whether it is for questions, taking notes based off of what doctors say, treatment options, next steps etc...That may be a good way to start. You may get an overwhelming amount of information all at once, so a notebook will help you come back to it when you are ready. 

 

If you have any questions please let me know. Please keep posting, I look forward to getting to know you. 

 

Cindy

[Want to donate some money]

Hi Banele, 

I am so very sorry for your loss. I can relate to the swollen heart. 

 

As far as donating, LUNGevity has many options on ways to donate that go towards lung cancer research. Here is the link for more information http://www.lungevity.org/donate Please let me know if you have any questions. 

 

Four-Star Rating Awarded to LUNGevity for Transparency, Accountability, and Good Governance http://www.lungevity.org/about-us/media-resources/news-from-foundation/lungevity-earns-top-score-from-charity-navigator

 

My healing thoughts are with you,

Cindy

[NY - Free lung screening]

NY - Free lung screenings are available to those who meet eligibility requirements. 
http://www.claxtonhepburn.org/se…/lung-cancer-screening.aspx

[Just Looking for Friends]

Hi Shanna, 

Welcome to the Lung Cancer Support Community message boards. I see that you are also a Texan! I am sorry that you have to be here. However I am glad that you have an amazing support team. We have a great group here. Please let us know if you have any questions. 

 

Also if you would like someone to personally talk to, LUNGevity has a LifeLine program that connects you with someone who is (or has been) in a similar situation. Here is the link to get connected: http://www.LUNGevity.org/LifeLine

 

I look forward to getting to know you. 

 

Cindy

[Are you a lung cancer survivor who was diagnosed at a young age (less than 45 years old) or with a family history of lung cancer?]

We need your help to continue the fight against lung cancer. Lung cancer is the leading cause of cancer death in men and women in the United States. Each year more than 200,000 people who have never smoked are diagnosed with lung cancer, many at a young age. Numerous lung cancer survivors have a family history of lung cancer or are affected at young age with no history of smoking, suggesting that genetics play an important role in lung cancer risk. Our team of highly reputable researchers in the Department of Genetics and Genomics at Mount Sinai is looking for people to participate in a study to help us better understand what hereditary risks may contribute to lung cancer, a crucial step towards improving screening, early detection, prevention measures and even targeted treatments.

 

Are you a lung cancer survivor who was diagnosed at a young age (less than 45 years old) or with a family history of lung cancer? We would like to study your DNA! If so, please contact our Mount Sinai research coordinator, at 212-824-8954.

[Daddy just diagnosed with lung cancer, which has matastasized to his liver and bones]

Eaw820,

 

How is your dad doing?

 

Thinking of you,

Cindy

[Paid survey opportunity]

Hi everyone! Here is a opportunity you might be interested in from Opinion Research. Here is their message:

We are interested in conducting some telephone interviews, this month, with people who have been diagnosed with Non Small Cell Lung Cancer, in order to gain some insight into your experience treating and diagnosing this disease, as well as your thoughts about possible future ideas currently in development.

We are offering $200 as a thank-you for taking the time to participate in this one-hour telephone interview. Of course, I promise that this is not a sales presentation, of any sort--strictly opinion research.

If you think you might like to participate, please get back to me at your earliest convenience.

Thank you, and best regards,
David Leonard
--
_____________
David Leonard
Director
pfc Opinion Research
New York, NY
Tel: 212.289.0087
Fax: 347.438.3211

 

[First ever ‪#‎LCCaregiver‬ Twitter chat Wednesday Nov 4th]

Join us for the first ever ‪#‎LCCaregiver‬ Twitter chat Wednesday Nov 4th, 7pm C/8pm Eastern. Save the date and join us the first Wednesday of every month!

 

[What do you think every lung deserves? Comment below!]

The Lung Cancer Project, LUNGevity, and the lung cancer community have teamed up to spark a conversation and spread hope for people living with lung cancer. Read more to find out why we changed our profile picture and why we are asking you to change yours too! 
What do you think every lung deserves? Comment below! 

http://www.lungevity.org/support-survivorship/get-connected/blog/every-lung-deserves

[Old Friends]

Bruce! Hi! Glad to see you back! Where's the yellow bus? 

[I am looking for support group in the La Crosse WI area]

Hi Bigmike, 

 

Please connect with our LifeLine program. We will connect you with someone promptly. Let me know if you would like for me to give my colleague a heads up that you will be connecting with the program. http://www.LUNGevity.org/LifeLine

 

-Cindy

[Texas - DFW Friends, will you be at the Breathe Deep DFW Walk?]

Hi Tom, 

 

Just take your time. I will be there around 9am. That's when registration begins. Here is the link to register for the walk http://www.LUNGevity.org/dfwwalk I look forward to seeing you Sunday! 

 

Cindy