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DebsSky

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Posts posted by DebsSky

    New...Scared and need reassurance

    in SCLC GROUP

    Posted

    Hi Kate:

    Just wanted to say welcome and to let you know that there is alot of hope. At first I was terrified all the time about my mother. Now it comes and goes, and she is doing quite well....far cry from when she started treatment.

    Keep your chin up and come here for support when you need to vent, get support, anything...we are here for ya.

    Prayers,

    Deb

    A long road and more to come

    in INTRODUCE YOURSELF!

    Posted

    Hi Pat:

    My Mother is going for her 3 month check on the 7th. She is NED, thank God! She received all the standard treatments as you can see beneath. She did not get rad. to her lungs as pulmonary function was a big factor and they did not want to compromise it anymore. She did receive PCI. (rad. to head) as a preventative measure.

    SCLC is very response to Chemo. and rad. and is the standard treament for SCLC. Your husband should be aware of how aggressive SCLC is, but how well it responds to treatment. If my Mother had not had treatment, she would not be here right now. We almost lost her back in September, then she had a 100% turnaround because of her oncologist's regime.

    Take care, prayers for you,

    Deb

    New here and Scared

    in CAREGIVER RESOURCE CENTER

    Posted

    Hi there and welcome,

    Sorry you had to find us, but glad you did. This is a group of caring people that will stand by you thick and thin.

    I agree with Shelly, knowledge is definitely power. Get well informed and read, read, read. That is your best defense and one that will help you through. There are alot of very knowledgable people on this forum, as well as, the "Ask The Experts" portion that are going through it.

    Stay postive and know that it can be beaten.

    Love and Prayers,

    Deb

    God will never desert us

    in HOPE

    Posted

    There is a great diversity among Christians in how they understand and express the Gospel. However I am not aware of anyone who professes to be Christian who does not say that God is love. Whatever else we might say or not say about God, it seems to be universally agreed that our God is a god of love.

    It is so easy to take our own experience of love and transpose it on God. When we do this, we diminish God's love. Because God is God, Divine love ought to surpass human love and be something truly worthy of the Divine nature. It ought to be greater than anything we have shared human to human. And of course it is. Where we can be let down and disappointed in human love, we need not fear anything similar happening in our relationship with God.

    One of the prime aspects of Divine love is Grace. God graciously overlooks our human frailty and ineptitude to accept us, love us and forgive us. Grace is blind to our shortcomings and totally accepting of us as humans, no matter who we are. And we cannot abuse God's grace. We are aware in human terms that we can take advantage of the kindness and benevolence of others and abuse the relationship. We can be so needy, demanding, and uncaring that we exploit our human relationships for personal gain.

    This can't happen with God. This is what makes God, God, and Divine grace truly gracious. We cannot abuse, manipulate, or exploit God's loving benevolence to the point of damaging our relationship. God is not human, subject to the frailty of human love. God is God, and there is nothing we can do that will have God withdraw from us. God's gracious love is the one constant that we can count on. It will never let us down, it will never disappoint. No matter what, God will never desert us.

    Thanks be to our God of Grace.

    I read this awhile ago and loved it. Thought I would share it with all of you. Hope you enjoyed it as much as I did.

    Love and prayers,

    Deb

    Asking for Prayers etc....

    in MEMBER UPDATES

    Posted

    Hi all:

    Hope this posting finds everyone well and on the way to NED.

    My Mother, God bless her, is heading to Edmonton on the 7th of June for her 3 month check and I have been scared to the point of NO SLEEP. I'm also hoping that the oncologist is not difficult in giving her a CT. Up here in Canada, it seems they think that x-rays suffice and I want them to do a CT. The excuse they give is that we should not dig for problems.....GEESH, :shock::roll: , this is only my MOM! Don't want to find problems, but would like to head off any as well.

    If I could be a bother to you all and ask for your continued prayers and thoughts for her, I would greatly appreciate!

    Thanks to all and my continued prayers and thoughts are with you all,

    Deb

    A History Lesson

    in SCLC GROUP

    Posted

    I totally agree with you too Doug. After my Mother's release from the Cross Cancer Institute, she was misty-eyed to see how many people traveled from far away places to visit, and how none of us three, (two brothers and self), had left her alone at any time during her hospital stays. She said that she would have died otherwise.

    I am just glad we were all there for her and she pulled through.

    Hoping a world of NED touches your life soon and stays, as well as, my Mother's taking up permanent residence,

    Deb

    PS...Thanks for the journal entries. They are not only eleoquent and humorous (at times), they are also, profoundly thought-provoking.

    Going back to work

    in GENERAL

    Posted

    I agree with Ry and Debi about the explanation of job gaps and the like. Can't be much help with the laws I'm afraid as I am Canadian.

    Good luck to you with the job, hope all is smooth sailing for you,

    Deb

    Mouth Sores

    in GENERAL

    Posted

    Hi there:

    My Mom used Dr. Akabutu's Mouthwash that the Cross Cancer Institute had made for her. Maybe check with her onc. about it's availablility in your area. I know it is specialized for cancer patients and it work's like a charm. My Mom never had any problems with mouth sores because of it.

    Deb

    Our Betplace

    in GENERAL

    Posted

    This is such terrible news, although if it had to happen, I am glad that she went peacfully with family with her.

    She was such a dear sweet lady and now angel. Whenever I come/came on the forum or think of it, she was always at the forefront of my mind. She had a gift for lifting spirits and she has a completely beautiful soul.

    I will definitely miss that fine lady that she was.

    :(:cry: Deb

    Nobody out there has used Topotecan? Little response to post

    in SCLC GROUP

    Posted

    Hi Jen:

    Can't be much help, but my Mom's onc. said if she were to relapse within three months that Topo. would be his chemo. of choice for her. He also said that if there is a relapse three+ months post, that he would go back to Cisplat/VP-16 for her.

    Sorry I couldn't help you much, but Mom's onc had a lot of good things to say about Topo.

    Good luck to you and I hope you get some "user" replies,

    Deb

    Crossroads

    in SCLC GROUP

    Posted

    Awww geez Kel:

    My heart goes out to you and your mother. I do know what you mean as when my mom first started treatment she ended up having seizures and a few ambulance rides later, they had us believing the worst and at that time I was hoping for peace for her, no matter how much I loved her.

    Keep the faith Kel, I will be praying hard for you two no matter what happens,

    Deborah

    still feel lousey

    in SCLC GROUP

    Posted

    Hi Bev:

    Sorry to hear of your troubles. My Mom has the exact same thing going on and she finished PCI mid-February. She has her next check June 7, so hoping all is good.

    My thoughts and prayers are with you and take good care of yourself,

    Deborah

    Confused Update

    in SCLC GROUP

    Posted

    Hi Sandy:

    I got that same "US, Canada" difference crap that you got from my mother's onc., but if I told him to do something, he did it. Your Dad's onc. is telling you the truth about the chemo. however, but if they picked up signs awhile ago, they should have been on it then. It's just negligence as far as I'm concerned if they don't get on it at first sign.

    GET YOUR DAD A DIFFERENT DOCTOR!!! They cannot deny you that just because we have a weird health system up here as opposed to the States.

    They may say it's a money making issue down in the States, but up here I think it's politics....gotta save those health care bucks and make all the politicians proud!!! Boloney!!! Alberta has just had a record fundraising year concerning cancer, so they can spend some on the patients I think!!

    When you do get a different doctor, insist on the kind of care you want for your father. I cannot even tell you how many times I have had to "go to the mat" in the Cross for things that my Mom needed, so don't be shy, do what you have to do to get good care for your Dad. And if all else fails, check into Calgary, they have a great Cancer Institute there.

    Good luck to you and your Dad Sandy, keep us posted,

    Deb

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