Don
-
Posts
157 -
Joined
-
Last visited
-
Days Won
4
Content Type
Downloads
Store
Profiles
Forums
Gallery
Blogs
Events
Posts posted by Don
-
-
Thanks ZTWEB, it was good talking with you and hearing you laugh when I know your in pain over your father. When your dad is ready to talk I will be here and you feel free to call anytime you want. Well am off to the doctor today and then off to pick up my new herd of buffalo's. Life is what we make it.
God Bless
Don
-
Glad to see this Karen. I have been pushing Gamma Knife on the board for over 2 years now. I had gamma knife and today there is no sign of the tumor and no side effects like WBR. If you have any questions about the procedure feel free to ask. The worst part of it is afterwards they keep you on a high dose of decadron to keep swelling of the brain down. You will have some headaches but nothing to write home about. Good Luck and God Bless You.
Don
-
Peggy, God Bless You.
Don
-
Peggy
Dont wait for me to be upset with your reply because am not. Got a laugh out of it.
You're not really giving your opinion to discuss this issue your just being argumentative.
People are alot more educated today about smoking and if you smoke yes I think you are stupid. Only replying to being stupid about smoking and just smoking. I along with many others did not know it was that harmful when I started. The govt US Army even gave us cigarrettes with our meals.
When it comes to treating a patient even the doctor has a choice who he treats and does not treat. If you dont think that is fair talk with the insurance compaines and when they dont pay enough the doctor transfers them to another doctor. Most doctors will not have the enthusiam to treat you for cancer if your gonna sit there and continue to smoke. I believe that is their right.
And for your last comment about me judging I was not doing that I was giving my opinion. Maybe I have stronger feelings about this because I am a patient and not a caregiver. You will never truely understand or anyone else for that matter the feelings of a cancer patient until you are a cancer patient. I am very sorry that you lost your husband to cancer.
Now if you still have a problem with me you can PM me and blast me all you want but please stay with the issues and don't judge me for my OPINION.
Don
-
I meant to address schmaydee not Dave. Sorry for that.
Don
-
Karen,
No Letty is pet wife LOL. Alvin is my pet squirrel.
Both of them are the kindest most loving I could ever hope for.
Don
-
Hey Dave
The docs have finally agree that the Decadron has eaten the ball joints in both hips for me. I have had a shot in each hip to help me (another steriod) but come winter I will have both hips replaced. I have elected to wait since we are in the middle of horse show season now. I have to climb on a big bucket to get on the horse and I take vicodin to help with the pain. Not the smartest thing to do but I love riding my cutting horses. Your problem sounds somewhat like mine based on how you have a hard time walking like me. Reminds me of the movie Men In Black and me being the bug walking in the Edgar suit.
Don
-
Well now am happy to see I started some reaction here. Its ok Cindy so say its not as easy as DON says it is. Its ok Larry to say I am being judgemental because I am. Does this upset me, no. I see on so many of stories or under someones name, believe in Christ, trust in the Lord, Only God makes it possible. They are all correct. When my wife and I quit we made a promise to the Lord that we would quit. Why, because we believe in the faith of the Lord and we dont want to break that promise. I will not have to answer why I broke my promise because my faith carries me each and every day. What about the moriphine that I lived on 24/7 for over 4 months. Do you think that was easy to stop. Or the sleeping pills, or flexeril, or the patches for pain. Yep was easy to do because I let the Lord have it. By some of the statements it ok to smoke or break down for a cancer patient is kinda like a junkie. Is it ok for them to have a relapse. No. Would we be so easy on our kids for doing drugs, NO.
If we want to change how people feel about Lung Cancer and we as smokers did it to ourself, then we need to show people we are fighting and changing the world not telling someone it is ok. rmm17 sent me a email saying she was not offended by my words and she felt the same way I do. She has 2 17yo brothers and they all need their mom now more than ever. The mom needs to set the example here for them to remember.
In closing, I am sorry if I offended anyone but if you smoke then am not sorry, I will stand by this, but I will pray for you and if you need me I will call you and try to help you. But will I listen to you light up a smoke while we are talking, hell no I will hang up in your ear.
God Bless all of you and please remember, God makes all things possible.
Don
-
Well I know I will get a big slam dunk for this but as you read this remember, we all have our right to our own opinion. I think you mother is stupid for smoking after the doctors have given her all of the treatment and time to help try and cure her. She has a better chance than most SCLC patients and to continue smoking is a slap on the face to them. Maybe her doctor should refuse to treat her and then what would she say. Yes I smoke for 35 years and quit 3 weeks before I was told I had cancer and both my wife and I are smoke free for 3 1/2 years. Why, because we figured out we as people are smarter than the smokes. Your mother needs to be reminded daily of those that have died fighting and not given any slack. Well now that I have had my say go ahead and slam me for this comment but as a previous smoker, a SCLC patient and a survivor I will not change my mind. The question I have for your mother is if the cancer comes back and it will, who will she depend on then when she threw her chance away?
Don
PS: Yes I was stupid for smoking and I wish someone had talked to me this way and told me how damn fool I was for smoking. There is no excuse.
-
Hello Warren,
You need to tell us what types of chemo you have had, what chemo you are on now, how many treatments of each. Will be alot easier to find you some answers then.
I had etoposide with carboplatin for 6 sessions and 15 days radiation to chest at same time 2xday.
about 6 months later I had topoteacan for about 5 months.
Gammaknife for brain tumor
Have been cancer free for over 2 years.
God Bless
Don
-
-
A dear friend of my wife's and I that we met here on the LCHelp site has gone to heaven. SharKats (Sharon) passed a couple weeks ago and her husband told us that they controlled her pain and she was at peace with God and ready to go home. Both her and her husband have cnacer at the same time but remained fighters. We will miss her.
Don & Letty
-
From carpets to pillows even have the matterres clean will improved the air quality. My sensitivity to dust is very high now and I get alittle nervous when I feel this dust and up goes anxity. Am not saying this will solve all your problems but I think when you mom smells the fresh air from the Oreck she will relax more. I feel so sorry for her cause you can tell she is scared of being alone, what will tomorrow bring and a hospital care gives her more comfort. Bless you for taking such good care of her and may God look over your mother.
God Bless
Don & Letty
-
My wife purchased an Oreck Air Purifier and it works wonders. It really does clean the air and then circulates the purified air. Was well worth the money spent. My wife has noticed less dust on the furniture also.
-
Hello Carleen,
I haven't written much on this website, it's been my husand, Don. You'll see it's his name here but it's me, Letty, his wife writing this time.
You know Carleen, when my Don was diagnosed with SCLC, he took every precaution about big item spending, and all for me. He did everything to make sure I wouldn't have problems with selling things, dealing with issues, paperwork, lawyers, etc. ANd I have come to believe that is how an Angel works.
I truly believe that sparing hardships for each other is what it's all about when dealing with the sickness of cancer.
For you, it would bring much happiness to have a baby. For your hubby as well. The thing I see is that with all the time you've spent taking care of your husband, your baby will take that much as well.
Do you want to have all of your free time to help your husband and the worry of that alone is enormous.
Good thing you have the sperm collection.
For your Keith, gosh, its so hard to know....
We know a couple with a 2 year old son. The dad has lung cancer and it's in several areas including the bones. Yes, he's doing well now, but who knows for later? ANd I know it breaks his heart seeing his son and thinking of the time he'll miss with him later in life. Sometimes it makes him angry.And then other times it's like he resents having a child. It's too emotionally unstable for him...and the drugs, steriods etc., can make him crazy and then it's worse. And for his wife, well she has a full day with their child and her husband. If he gets very sick, she's worried about that because their child demands so much attention is sooooo many ways.
Guess all in all, it's totally a personal decision.
But I think in lots of ways it's a thing of the "heart" that makes you want your child now. But if one or the other needs all of your attention, then you are in a difficult position. And a person can only handle so much. Right now you are having a very tough time emotionally handling what is happening right now. I would be the same.
REally think about it. In my mind waiting is better for you right now. For the both of you. Having a baby on the way should be a happy time, not one that might have you wondering or regretting your decision because of stress etc., emotional upsets...so many things.
Look to God to know deep inside what to do.
Sincerely,
Letty Laughery (wife)
-
Ice Cream was real good for me.
Don
-
Hello,
I posted this info on another thread so will do so here as well.
For info about brain tumors look at:
And for info on Gamma, cyberknife & other forms of brain tumor treatments
This IRSA.org site also has info about WBR and lots of other info as well. Can help locate hospitals and centers that specialize in gamma, etc., for the treatment of brain tumors. Phone numbers to call for info., and lots more. A good site for good info.
God bless all of you patients out there.
from Letty (I'm Don's wife).
-
Sorry, entered wrong website address for more info.
on brain tumors.
Should be:
For Gamma Knife,cyber knife, & info WBR etc info: www.irsa.org
The IRSA. org site can help locate hospitals and centers that specialize in the procedures for Gamma, etc. and doctors names are listed.
From: Letty (Don's wife)
-
Melindasue, you did good.
-
I have been talking with one of our members Nancyf267 and she started Radiation 2x day for 15 days last week. Also this week she starts chemo etoposide/carbo so we all know she is going to need some support. May our prayers be her support for her new journey.
God Bless
Don
-
I think lots of people are pushing for PET Scans for early screening.
-
Here is another place to get info:
www.abta.com American Brain Tumor Assn.
My thought is that so many of us are living past the 1-2 year mark and the effects of WBR cannot be determined. Myself I had Gamma Knife but only because my rad onc sent me to nuero clinic for evaluation. I wish more people would get that option. I was told by my doctor what the effects of WBR could be and what could happen. Was not a pretty picture. Gamma Knife worked for me.
God Bless
Don
-
My vote would have to be National Lampoons Christmas. Letty and I was talking about that tonight as we watch Alvin jump from sofa to lamp to coffee table back to my lap LOL.
-
I found that using plastic forks, spoons, and knives help. Hope things get better for ya.
God Bless
Don
It does Work
in SCLC GROUP
Posted
Yesterday I had my 6 month review with my onc and am getting ready for June scans. He seemed very pleased and really made my wife and I happy. After 3 1/2 years of fighting SCLC he informed us yesterday that I am cured. That with SCLC if it doesnt reoccure within 2 years of clean scans they now consider you cured. What great news. To celebrate I went to Gainesville Tx and bought 7 buffalo that I will be training my horses on. I feel so good now but I know 5 years will be even greater and so on after that. My testing now is once a year after the scans in June.
I want to thank all on this board that whether they were talking to me or someone else it help to keep my spirits up and continue the fight. It is a battle that can be won. Remember in the beginning I was given less than 1 percent chance of making 2 months. My wife was tolded several times that I might not live till morning. I am very grateful that my doctors were honest about things which gave me something to fight for. Most import was the time I spent in thought with our Lord Jesus Christ. Through him I received the strength to fight each day and fight through those long long nights when everyone is asleep and your laying there wondering when and if the morning will ever come. I know the battle and being scared and always wondering if this would be my last holiday, would I ever see my friends again or break horses again. The answeres are yes I will.
Now I am going to say something that I hope will help everyone. Go make peace with the Lord. Believe that he died for your sins and that he always knows best for you. Now the easy part, if you believe and put all you trust in the Lord tomorrow if you wake up here in your bed remember to love all those around you and if you dont wake up in your own bed then you are in heaven and your gonna attend the biggest family reunion that you have ever been too. Now let the pain and worry of cancer go away and trust in the Lord.
With God all things are possible. But, you must believe without question or hesitation. We will all meet in heaven.
Love all of you and God Bless.
Don