barbara5452
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Posts posted by barbara5452
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Congrats, need to hear that stuff....
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All of the above, fell off the wagon a few times myself. Just brush yourself off and get on the wagon again.
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I agree to slow. But dont always blame it on the doctor they only give the work to their office staff and it is their responsiblity to get things moving. I work for a doctor and know this. With my new recurrence I called every day to make sure those girls were getting what the doctor told me he was going to do, and I feel if I hadn't it would have taken longer. You are your best avocate its your body dont accept anything but the best....
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I got a job!
in HOPE
Good luck with the job, what a rewarding career, helping others.....
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Wendy you are so right, I hate it. And I feel we are looked down upon and that is not right, who says the smoking caused it or all the chemicals in the meat and vegetables we eat. Who knows, Im sure the smoking didnt help but is it totally to blame ? P__ss
on them all......
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You are in my prayers, but you must allow your Mom to fight her battle until she is ready not to. That is what is keeping her going, I know when my mom was with hospice they told us it was very important to let them do what they wanted to and have their independence. Your in my thoughts....
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My thoughts and prayers are with you and your Mum.
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I had the surgery and I like others found it rough, but do-able. My advice go the extra limit no matter how it hurts and regain your strength. I had my surgery in early Sept and returned to full time work the middle of November...Best of luck
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Hi Beth, as said previously alot of hope here dont give up yet.....
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Dont know much about what your dad is getting ready to go through with that type of radiation to that area. But my mom has throat cancer and given 6 mos 3 times, she lived 6 years....
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Great news, I was thinking anxiety. So glad it was good news......
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Great new for you both, Joel you are inspiring me....
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Frank, as others have said you were one of the very first to reply to my posts. Its been like you have devoted yourself to reply to every single post and with so much positive engery for all of us. I pray that the Lord give me just part of the strength that you have to get me through this, and I say part because I know others need a piece of that too......
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Great news Deb, tell Alan to keep the good work up and that he is setting the stage for me as my radiation starts on 2-5-07 and I like to hear good news.
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Went to onc. yesterday cyberknife cannot be done after reviewing my tests. Reg. radiation can and will start on 2-5-07 for about 6 weeks. Radiation to mediastinum which will include lymph nodes not yet involved and part of the left and right lungs just as a preventitive in case microscopic cells are there. No liver or adrenal involvment. Just the one mass. Also they are going to add chemo while I am taking the radiation. Im so scared. I know alot of you have been through the chemo but I dont read much about chemo/rad together and that is what scares me. And I dont read much about people having the mediastium involvement so I feel I dont have much to go on. They told me due to the area being radiated I will get very sore when swallowing and I worry about my calorie intake. And that the esophogus may get restricted and I would have to have it stretched. Too much information at one time having a hard time dealing with it. I worry about not being able to work and loosing our home things like that. Hope I am strong enough to get through it and hope it will work....
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What great news,
Keep those spirits up and take your well deserved 3 month break...... -
As I read your post my eyes welded with tears and I found myself in a good much needed cry. We try to stay strong for the others around us with our heads in the sand only to not upset the ones we love around us, but yes we feel afraid, angry and sorry for ourselves and wonder almost continuously about the cancer, how long we have, and how to prepare the ones around us. Yet just as you said someone will post something and it gives us the uplift we need just as we need it. This is a wonderful site, and Bill you are wonderful for speaking what we all feel.
Thanks
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Final biopsy of mediastinum, 6 different types of cancer cells found, small cell, oat cell, large cell, adenocarcinoma, squamous and neuro endocinoma. Small cell and oat cell treatable with chemo, others by radiation only one problem due to area heart valves and heart radiation not an option. When I left Dr's office was looking at approx. 30 chemo treatments due to not being able to radiate the area, 1 hour later Dr calls and I qualify for cyberknife radiation. GREAT NEWS. Now things are looking up or so I feel. Need info on anyone that has had cyberknife, how many treatments did you have and did you have any side effects ? I assume chemo comes after cyberknife. Cancer no where else just this one mass in mediastinum right now Im feeling pretty positive about things. I go Thurs. for consult with onc. where cyberknife will be done. Im starting a plan of action which is a good feeling. I never knew you could have several different types of cancer in one area. Dr very positive about things which makes me positive.
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We all like hearing the good stuff. Congrats !
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Between Aaron and Bill theres always an interesting read. LOL You both say what some of us are afraid too. Keep it coming........
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Tracy hope you are better today, you spoke the words that I feel, my daughter of 17 seems to be handling things well. Leaves me notes daily that she loves me and its all gonna be okay. My son of 24 is the opposite, does not want to talk about it avoids any conversations about it and has stayed away and dug hisself into his work. Which hurts me because he calls his dad but never asked to speak with me. I know people handle things differently but I feel the kids go through just as much as we do. I wonder will I be around to be a grandmother, all that you said is just what we all feel at times. The yo-yo back and forth with our emotions are the worst. Whether we smoked or didnt Im finding it really doesnt matter it is what it is, and we all have to fight and fight even though we sometimes want to give in to the beast. Im positive today but who knows what tomorrow will be. I cant tell anymore......
Together we will all hang in there.
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Wonderful news, The kind I like to hear.....
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Made it through the Pet scan report states, Large hypermetabolic mass lesion 4.2 x 3.6 cm in the rightward mediastinum and right paratracheal region with malignant SUV values 8.7. This appears to be a singular abnormality as noted above. No abnormality in the liver or adrenal glands. Lung zones also appear to be clear. The next day had biopsy, was horrible, the first cancer in 2004 the needle biopsied through my back, this time they went through the from at an angle to miss the lung. Three attempts made, 1st Dr only got blood, numbness medicine did not numb deep enough, second attempt got only a few cells, Dr ready to give up, I begged him to please make one more attempt and to give it his all I want this part completed, he said Im game if you are. It was awful but he dug until he got enough tissue. Was given demerol immediatly for the pain. Im very sore today. Called my pcp doctor for him to get the frozen section results. Results same cancer as before noted poorly differentiated, which concerns me from what I have read it does not respond well to treatment. Im scared to death. Go to meet with my pcp on Monday to discuss options and go to my original surgeon on Wedsnesday, any one else been label with a cancer poorley differentiated. More nervous now than I was before.
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Your words of hope really do help, and day by day I seem to accept things better. There are so many here that have already been through what I am trying to prepare myself for and yet you still have words of encouragement for me. All of you are wonderful and I cherish your kind words. With all of you being so understanding it makes it a little easier to bare the road ahead, I guess acceptance is part for the fight, its there and cannot be changed my goal is to be here posting tomorrow and many years from now and I hope that I have the the gift that all of you all have and that is to bring comfort to someone who is going through the battle in their own minds. Tomorrow
is the PET scan and Weds is the biopsy. Those of you who believe in prayer add me to your list as I have for many of you.
Thank you all so much.....
Keep those spirits up and take your well deserved 3 month break......
Update on Mom's heart
in MEMBER UPDATES
Posted
Glad its behind you all now, best of luck and prayers for tomorrow......