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Kasey

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Posts posted by Kasey

    5 years ago today...

    in HOPE

    Posted

    ...........and now we share a special date forever, Carol. We most certainly are kindred spirits. I'm celebrating twice as much upon hearin your news. Glad to have shared so much of these past 5 years with you.

    It's Official!!!!!!

    in HOPE

    Posted

    Well...............all your responses have brought me to tears for the third time today. The first ~ when I opened my eyse this morning. The second ~ playing bridge with gals I didn't know before this past summer. Somehow, not important how, the reading of scans came up. Happens that the husband of one of the gals read some of mine 5 years ago. That brought about the discolosure of my dx and prognosis. The women were awestruck and brought me to tears again. And now you guys. I am blessed many times over.

    Yes, Snowflake, you DID tell me so. And in spite of what you said, I WASTED 2 years in worry. My love and gratitiude to all LCSC members. You are all the very BEST!

    xoxo,

    Kasey - 5 year survivor - Stage IIIB 'inoperable' (yea, right!) lung cancer

    It's Official!!!!!!

    in HOPE

    Posted

    5 years ago today I was in the operating room at the National Institutes of Health undergoing an 8-1/2 hour life-saving surgery. I was dx'd in Sept. '04 and given no hope of surviving beyond the spring of '05. I actually count my survival from that Sept., but my very favorite surgeon said HE counts from his surgery. So I get to celebrate twice! I already did back in the fall, but today I will celebrate big time!

    So..........here's hope to all you newbies and thanks to all who've been with me anywhere along the way as I traveled this road.

    Fred and I have encountered a few bumps in the road since Thanksgiging which is a story for another time. But today I want to shout out a thanks to Katie for this site, to DonnaG for responding to me, and mhutch for giving me the info to get me to where I could find hope and help. You guys are all awesome and my true heroes! Thank you.

    Kasey - 5 year survivor - Stage IIIB 'inoperable' (yea, right!) lung cancer

    5 years today...

    in LC SURVIVORS

    Posted

    I MISSED this!!!!!!! SHAME on me big time. I will have to celebrate now and make up for lost time. Big time congrats, Jamie. You are awesome and represent all of us so well. Thanks you for being all you are AND for being my friend.

    xoxo,

    Kasey

    Neulasta Question

    in GENERAL

    Posted

    Hey ~ thanks Diane, Denise, Ned, and Susan. I knew you guys would come through. The BEST you are! I will pass this first hand info along to Chuck. I'm sure he says 'thanks' as well.

    Kasey

    Neulasta Question

    in GENERAL

    Posted

    A good friend of ours had his first shot. He is suffering bone pain, which I know is a side effect. His question is - how ong does the pain last??? I know you are out there with the answer. I'm not sure if it eases up or not or just stays for the long term. Any insight is appreciated by me and him.

    Thanks,

    Kasey

    A Particular Reason for Caregiver Burnout

    in CAREGIVER RESOURCE CENTER

    Posted

    Wish I were there to deal with some of the issues you have, Barbara. I could talk up a real storm about the bed and all. I am a Christmasy(?) kind of person, but I've got the coal ready to shovel out to all those scrooges. I hope this Christmas weekend comes with some peace and lots of love and togetherness for you, Bill, and the rest of your family. I'm still awaiting my phone call! Remember what you said.

    Merry Christmas, Barb. Put all the 'stuff' aside today and spend it in love.

    My love to you,

    Kasey

    An annual Christmas Wish

    in GENERAL

    Posted

    Many here do not know of Dean Carl. He was one of the founding members here and a man gifted with words and kindness and insight and wisdom. I was not a member when this was posted, but upon knowing him here, I went back and read every one of his posts. This one I find especially meaningful and have posted it each year since I've been here. It is a much better Christmas with than I could ever come up with. So in memory of that wonderful man, I post it again for all this year.

    DeanCarl

    OVER 500 POSTS !

    Joined: 05 Oct 2003

    Posts: 652

    Location: San Diego CA

    Posted: Tue Dec 23, 2003 3:07 pm Post subject: My Christmas Wish List

    --------------------------------------------------------------------------------

    When I was a kid I used to give my folks a Christmas wish list each year. We weren’t rich by any means, but some how some way a lot of what I wished for I got. So, in that spirit, here’s my “wish list” for this Christmas:

    My Christmas Wish List.

    For the newly diagnosed and those who have recently had a recurrence: May your fears be calmed, your strength renewed and your hopes be realized.

    For those in the midst of the battle: May your determination never falter and your days be filled with victory.

    For those who have lost loved ones: May your memories bring joy rather than pain and your days be filled with the spirit of those who have touched your lives.

    For those in remission: May your joy fill the lives of those around you and be a light for those that follow.

    For those who are nearing the end of the fight: May you find the courage to walk the path you are on and to see the glory in each new day.

    And for everyone who has so touched my life since I found this place: Whatever your situation, where ever you are may this Christmas season bring you all that your heart desires.

    Dean

    _________________

    9/21: dxd Squamous Cell Carsinoma (malignant). Stage IIIa. Mets to lymph nodes in and around RT lung. Tumor blocking airway to RT lung. Partialy colapsed RT lung. Diagnosis confirmed by bronchoscopy

    10/6: Bone scan. Results: Negative

    10/19: Testing done. Cancer in-operable (heavy involment of mediasternal lymph nodes), incurrable (maybe ).

    Decided on no chemo or heavy radiation. I'm going to live life while there's life to be lived, one glorious day at a time!

    Life is not measured by the number of breaths we take, but by the moments that take our breath away. (George Carlin)

    Back to top

    My husband passed away yesterday...

    in GRIEF

    Posted

    Oh Christina Marie..........I am so very sorry and saddened to hear this news. It is hard to imagine ~ had no idea this was coming. You are far too young to be a widow and your dear husband was far too young to be taken by this evil disease. Please know that many of us are here for you. We are here to prop you up when you feel you just can't do it any longer. May you be filled with wonderful and loving memories to help you through this difficult time. And when ready ~ come and tell us all about the love of your ife.

    Kasey

    A Particular Reason for Caregiver Burnout

    in CAREGIVER RESOURCE CENTER

    Posted

    Oh Barb....gosh, my friend, I just don't know what to say. The snow today is wicked and I am feeling lonely for/with you. I am so worried for Bill, BUT I am also worried about that hand of yours too. I know you know to not neglect yourself through all of this. It is so easy to do, you know.

    I hope Bill has gotten a room and is being properly taken care of. I can feel the frustration of not getting to the hospital. I surely hope you don't try to venture out in this storm. It is already close to a foot deep here.

    Only those who've truly walked this walk can even begin to understand what you are saying. Those of us here understand and truly do 'get' it. It is such a helpless feeling to be able to do not much. I am feeling that right now. I always circle my wagon with yours ~ and today is no different ~ snowstorm and all. We alre all right here with you, Barb, listening, hearing, supporting you.

    I am going to PM you my #. I hope you will not hesitate for one millisecond from calling it just to breathe at someone who cares. No need to say one word. If better for you, send me your #. I don't want to overstep ~ just want you to know someone is around to listen/chat/ cry/ whatever you need ~ whenever you need.

    My thoughts and prayers are on the snowflakes blowing toward NJ, Barb. Go out and catch them.

    With much care and friendship,

    Kasey

    I had a bad fall.

    in MEMBER UPDATES

    Posted

    Boy, have you been missed by all of us, Donny. I sure hope your path to recovery doe not take very long. What a time of you've had. Sorry just doesn't cover it, ya know? Let's hope it is now all behind you and little by little you progress and are feeling well. Now........next time you are away so long, how about having somebody let us know so some of us (ME) don't have more hair turn gray worrying!!! But reallly I know your poor wife had no time to worry over us. I'm sending you a great bug hug and give her one from me too.

    Kasey

    Y'all remember me? Time for an update.

    in GENERAL

    Posted

    I am so proud of you, Mitch. I recall ALL your posts about your mom and smoking. I do see your pic on FB. I am there, but never say a word. But here I can shout it from the rafters ~ WAY YO GO. GUY! I'm so glad you posted for new folks as well as us 'oldies' too. Give mom a great big 'atta girl' from me. I'm glad she can take that huge step to help her friend. Happy holidays to you both!

    Kasey

    Stage 2 NSCLC Adenocarcinoma primary lung tumour

    in GENERAL

    Posted

    Hi Christie,

    Donna (from above) is my hero. When I joined here she gave me info to get me to where my life was saved. You see, the docs here had written me off. My last Christmas (according to all the docs here) was to be the Christmas of 2004. Well..............here I am on my 5th bonus one! This can be overcome. Read our stories and ask questions. Be your own best advocate. And most of all ~ keep the hope that this is a beatable diagnosis. I'll look forward to your updates.

    KAsey

    brain mets

    in MEMBER UPDATES

    Posted

    Well, Anne, that is just a fine howdy-do :cry: . Any mention on gamma knife for the two small mets? I don't know a lot, but thought for less than 4 and small, that could be an option. I'm just bummed about this and the pain down your leg. Life turns into one big crap shoot for us all and I'm sorry you're getting more of it lately than most. I'm thinking of you, Anne, and I'll hang onto the hope that this hurdle will be yet another one you jump right over.

    Kasey

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