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StevenP

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    StevenP got a reaction from Tom Galli in New member   
    Hello Tom, thank you for the welcome and I am glad I found your folks. For me it has been a long strange trip. I did stop chemo in late 2014 because I felt it was slowly killing me and ruining my quality of life. I ended up spending a lot of time in a hospital bed in 2015 which I do attribute to the chemo screwing up my immun system. Feeling like crap 2 out of 3 weeks in cycle. Fortunately, I have a wonderful palliative care team that help me understand my options. In Feb of this year, my docs came up with opdivo as a possible treatment. Fortunately, it didn't have the nasty side effects of chemo (just fatigue and some joint pain). In addition for a period,  I did experience some shrinkage of my tumors. After 6 months it stopped working and my docs took me off. They did find a clinical trail combining to immunos which I've been on for 3 weeks. Time will tell.
    steven
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