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ngc4au

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  1. Like
    ngc4au got a reaction from Mally in Update...Praying for NED   
    We got the results and while it wasn't NED it was FANTASTIC news.  He has greater than 50% shrinkage in the lung and in some lymph nodes greater than 75% shrinkage.  He will do 6 more chemo treatments and meet with the radiation oncologist tomorrow.  His chemo schedule is 1 treatment once a week for two weeks and then a week break.  We are so pleased and thankful for the news!  
  2. Like
    ngc4au got a reaction from Susan Cornett in Update...Praying for NED   
    Really great!!!  He was prescribed 10 mg of prednisone 3x a day and oxygen at level 3. He is on 10 mg once a day now.  Also, ( this is the best part for him and us) he goes out everyday and works around in the yard for a little while...something he adores doing!!!!  His hair is coming back in really fast and with the prednisone he has gained about 5 pounds...he lost about 20.  We are all so thankful.  He has a follow up appointment with radiation next week and then in September with his chemo oncologist and pulmonologist.  Thank you for asking!!!!
  3. Like
    ngc4au got a reaction from LaurenH in Update...Praying for NED   
    Really great!!!  He was prescribed 10 mg of prednisone 3x a day and oxygen at level 3. He is on 10 mg once a day now.  Also, ( this is the best part for him and us) he goes out everyday and works around in the yard for a little while...something he adores doing!!!!  His hair is coming back in really fast and with the prednisone he has gained about 5 pounds...he lost about 20.  We are all so thankful.  He has a follow up appointment with radiation next week and then in September with his chemo oncologist and pulmonologist.  Thank you for asking!!!!
  4. Like
    ngc4au got a reaction from Steff in Update...Praying for NED   
    Really great!!!  He was prescribed 10 mg of prednisone 3x a day and oxygen at level 3. He is on 10 mg once a day now.  Also, ( this is the best part for him and us) he goes out everyday and works around in the yard for a little while...something he adores doing!!!!  His hair is coming back in really fast and with the prednisone he has gained about 5 pounds...he lost about 20.  We are all so thankful.  He has a follow up appointment with radiation next week and then in September with his chemo oncologist and pulmonologist.  Thank you for asking!!!!
  5. Like
    ngc4au got a reaction from Tom Galli in Update...Praying for NED   
    Really great!!!  He was prescribed 10 mg of prednisone 3x a day and oxygen at level 3. He is on 10 mg once a day now.  Also, ( this is the best part for him and us) he goes out everyday and works around in the yard for a little while...something he adores doing!!!!  His hair is coming back in really fast and with the prednisone he has gained about 5 pounds...he lost about 20.  We are all so thankful.  He has a follow up appointment with radiation next week and then in September with his chemo oncologist and pulmonologist.  Thank you for asking!!!!
  6. Like
    ngc4au got a reaction from LexieCat in Update...Praying for NED   
    Really great!!!  He was prescribed 10 mg of prednisone 3x a day and oxygen at level 3. He is on 10 mg once a day now.  Also, ( this is the best part for him and us) he goes out everyday and works around in the yard for a little while...something he adores doing!!!!  His hair is coming back in really fast and with the prednisone he has gained about 5 pounds...he lost about 20.  We are all so thankful.  He has a follow up appointment with radiation next week and then in September with his chemo oncologist and pulmonologist.  Thank you for asking!!!!
  7. Like
    ngc4au got a reaction from Tom Galli in Update...Praying for NED   
    Thank you!  He doesn't sleep flat.  He is going to the pulmonologist Wednesday.  I just hope the doctor gives him some hope that these symptoms will improve.  My father is used to being "busy" and now it takes a rest break to put on his socks.  He is so discouraged.  If he could just breathe a little better...it would make all the difference.  He started using his nebulizer and inhaler today.
  8. Like
    ngc4au got a reaction from Tom Galli in Update...Praying for NED   
    So, my father has completed this last phase of treatment.  He had a CT and has some fluid and lung damage due to the radiation.    Lots of lung damage.  His next CT is in September with contrast.  He is going to see his pulmonologist to see about a plan for the lung damage.  
  9. Like
    ngc4au got a reaction from adv_sports in Update...Praying for NED   
    Update on my father...yesterday (Feb. 21) was his last chemo treatment with 7 radiation treatments to go!!!  I heard a recording of the radiation oncologist meeting and he said his lungs sounded clear (fingers crossed)!!  When he got home he ATE!!!  He has been unable to eat very much at all...he kept a small glass of baking soda water and took tiny sips to eat any food.  His follow up CT scan is scheduled for April 3rd and I am praying for NED!!!  He was not a candidate for surgery, so, I know that is probably our best hope and it is mine.  I haven't seen my father in at least two weeks.  I am a guidance counselor with a 9 year old and the FLU is terrible here.  We are both (me and son) terrified of bringing a germ to him.  I am hoping we will get to see him this weekend.  My sons has a runny nose and slight cough...so, we may wait a few more days.  It is so difficult.  I am so nervous and optimistic about him feeling better.   He was so physically strong and enjoying working outside before.  My mother said yesterday it will just make her day if he feels like going outside and sitting on the porch.  It is truly the little things. 
    Praying for NED!!!
  10. Like
    ngc4au got a reaction from Meloni in Update...Praying for NED   
    Update on my father...yesterday (Feb. 21) was his last chemo treatment with 7 radiation treatments to go!!!  I heard a recording of the radiation oncologist meeting and he said his lungs sounded clear (fingers crossed)!!  When he got home he ATE!!!  He has been unable to eat very much at all...he kept a small glass of baking soda water and took tiny sips to eat any food.  His follow up CT scan is scheduled for April 3rd and I am praying for NED!!!  He was not a candidate for surgery, so, I know that is probably our best hope and it is mine.  I haven't seen my father in at least two weeks.  I am a guidance counselor with a 9 year old and the FLU is terrible here.  We are both (me and son) terrified of bringing a germ to him.  I am hoping we will get to see him this weekend.  My sons has a runny nose and slight cough...so, we may wait a few more days.  It is so difficult.  I am so nervous and optimistic about him feeling better.   He was so physically strong and enjoying working outside before.  My mother said yesterday it will just make her day if he feels like going outside and sitting on the porch.  It is truly the little things. 
    Praying for NED!!!
  11. Like
    ngc4au reacted to Susan Cornett in Update...Praying for NED   
    My fingers are crossed for NED results for your dad! Keep us posted!!
  12. Like
    ngc4au got a reaction from Mally in Update...Praying for NED   
    Update on my father...yesterday (Feb. 21) was his last chemo treatment with 7 radiation treatments to go!!!  I heard a recording of the radiation oncologist meeting and he said his lungs sounded clear (fingers crossed)!!  When he got home he ATE!!!  He has been unable to eat very much at all...he kept a small glass of baking soda water and took tiny sips to eat any food.  His follow up CT scan is scheduled for April 3rd and I am praying for NED!!!  He was not a candidate for surgery, so, I know that is probably our best hope and it is mine.  I haven't seen my father in at least two weeks.  I am a guidance counselor with a 9 year old and the FLU is terrible here.  We are both (me and son) terrified of bringing a germ to him.  I am hoping we will get to see him this weekend.  My sons has a runny nose and slight cough...so, we may wait a few more days.  It is so difficult.  I am so nervous and optimistic about him feeling better.   He was so physically strong and enjoying working outside before.  My mother said yesterday it will just make her day if he feels like going outside and sitting on the porch.  It is truly the little things. 
    Praying for NED!!!
  13. Like
    ngc4au got a reaction from LaurenH in Update...Praying for NED   
    Update on my father...yesterday (Feb. 21) was his last chemo treatment with 7 radiation treatments to go!!!  I heard a recording of the radiation oncologist meeting and he said his lungs sounded clear (fingers crossed)!!  When he got home he ATE!!!  He has been unable to eat very much at all...he kept a small glass of baking soda water and took tiny sips to eat any food.  His follow up CT scan is scheduled for April 3rd and I am praying for NED!!!  He was not a candidate for surgery, so, I know that is probably our best hope and it is mine.  I haven't seen my father in at least two weeks.  I am a guidance counselor with a 9 year old and the FLU is terrible here.  We are both (me and son) terrified of bringing a germ to him.  I am hoping we will get to see him this weekend.  My sons has a runny nose and slight cough...so, we may wait a few more days.  It is so difficult.  I am so nervous and optimistic about him feeling better.   He was so physically strong and enjoying working outside before.  My mother said yesterday it will just make her day if he feels like going outside and sitting on the porch.  It is truly the little things. 
    Praying for NED!!!
  14. Like
    ngc4au got a reaction from Tom Galli in Update...Praying for NED   
    Update on my father...yesterday (Feb. 21) was his last chemo treatment with 7 radiation treatments to go!!!  I heard a recording of the radiation oncologist meeting and he said his lungs sounded clear (fingers crossed)!!  When he got home he ATE!!!  He has been unable to eat very much at all...he kept a small glass of baking soda water and took tiny sips to eat any food.  His follow up CT scan is scheduled for April 3rd and I am praying for NED!!!  He was not a candidate for surgery, so, I know that is probably our best hope and it is mine.  I haven't seen my father in at least two weeks.  I am a guidance counselor with a 9 year old and the FLU is terrible here.  We are both (me and son) terrified of bringing a germ to him.  I am hoping we will get to see him this weekend.  My sons has a runny nose and slight cough...so, we may wait a few more days.  It is so difficult.  I am so nervous and optimistic about him feeling better.   He was so physically strong and enjoying working outside before.  My mother said yesterday it will just make her day if he feels like going outside and sitting on the porch.  It is truly the little things. 
    Praying for NED!!!
  15. Like
    ngc4au reacted to Tom Galli in Carboplatin and Taxotere   
    Ngc4au,
    Midpoint recollection about side effects during chemo and radiation?  My chemo side effects stayed the same throughout treatment.  They were cyclic and predictable.  Radiation was different.  At the midpoint of my conventional radiation treatment, I experienced no side effects.  In week 3, the sky fell.  My skin on my chest turned red and hurt like a bad sunburn.  My throat became dry and sore and I developed a non-productive, near constant cough.  And, my energy level fell off the table.  I remember my week 3 experience because these side effects prompted a non scheduled session with my radiation oncologist.  She gave me medication for my sunburn and a strange cocktail of cough syrup for my cough but told me nothing would easy my declining energy level.  By my sixth week of concurrent treatment, I was bed bound save for my daily trip to the radiation session.
    Midway through my radiation treatment, the duration and my position on the table did change.  The table was rotated re-positioning me and the duration of the session was reduced by about 9 seconds.  I was told this was the original treatment plan.  This did not effect my side effects in any way.  It took about 2 weeks to recover from my initial chemo and radiation treatment.
    Stay the course.
    Tom 
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