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LexieCat

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LexieCat last won the day on June 11

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  • City
    Sicklerville
  • US State (if applicable)
    NEW JERSEY
  • Country
    US
  • Gender
    Female
  • Status
    Lung cancer patient/survivor

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  1. Hi there, and sorry to hear about your dad’s diagnosis. I have no idea how anyone can suspect SCLC without biopsy results (unless maybe they looked at them in the lab immediately after the bronchoscope). I’m not familiar with either of the hospitals you mentioned, and we really can’t give recommendations here, but if it were I, I’d try to find one that is an accredited Comprehensive Cancer Center. You can start searching here: https://www.cancer.gov
  2. Voice problems are not inevitable after mediastinoscopy. I didn’t have that problem at all. I’m sorry to hear you’re dealing with this. I suspect Tom is right and it has to do with the intubation rather than the procedure itself.
  3. I is. Currently being carpetbombed with chemo.
  4. ENT= Ear, Nose & Throat specialist. A pulmonologist is the one to see about lung nodules.
  5. Nope, none. I've never had any symptoms of lung cancer. Recently I've noticed a mild cough and less lung capacity than I had, but it's a year later (from when I was diagnosed as Stage IV) at this point.
  6. I agree with Tom. They are concerning, but seem to be concentrated in the one lobe. Lobectomy is relatively simple surgery, and if these do turn out to be cancer, it might be easy to treat. One step at a time.
  7. We really can't make recommendations, and I doubt anyone here has any knowledge or experience with treatment for this particular type of cancer. I'd suggest contacting the National Cancer Institute--they might be able to point you in the right direction: https://www.cancer.gov/contact Incidentally, I'd crop that photo if I were you--it has your dad's personal info on it.
  8. I'm not sure how helpful we can be in terms of his treatment--I've never run across anyone on these forums with a glomus tumor--as I said, I don't think it's technically lung cancer, even though he has a mass there. I think you're going to have to talk to the oncologist about it.
  9. Here's a VERY long thread on Durvalumab. I haven't taken it, either. https://forums.lungevity.org/topic/44842-durvalumab/ I DID have four rounds of Carboplatin and Alimta, along with Keytruda. I had very few side effects, which were pretty tolerable. I did get hit with fatigue; any nausea was easily managed with the anti-nausea meds (I recommend you take them ONLY when you start to feel queasy--I took them regularly the first time and had the worst, most painful constipation in my life); and brain fog that bothered me only while I was working. I had a legal job that required a lot of complex analysis and just couldn't keep up with it. Sounds like they are planning pretty standard treatment for you. I didn't have radiation--the location of the tumor was such that the docs felt it would cause too much damage to my esophagus.
  10. I'm pretty sure that's not what's considered lung cancer, though there are rare instances when it appears in the lung. I looked over your early posts and noted you said his biopsy showed "malignant focal spindle cell of lung." I had to look that up, too, as it's very rare. Maybe that's why the consult with Mayo clinic. Where did you read/hear about "glomus tumor"? Has someone diagnosed him with that?
  11. No other mets is great news! Keep us posted--really glad to hear she's having a good response so far.
  12. I'm not sure I've heard of adding two immunotherapy drugs (outside of a clinical trial), but I could be wrong. I'm certainly no expert. Can you find out the name of the second immunotherapy drug? Did the oncologist have the results of the PET scan? Any signs of any other mets? Glad you were able to get her back to NY with you!
  13. I'm so sorry for your loss, Judy--especially that you feel it was painful or distressing for him. You did the best you could for him--sometimes the obstacles are simply beyond our control. It sounds like he had a good life--that, at least, is something to be thankful for. But I don't blame you for feeling angry about the hospital's failure to abide by his wishes. Sending you many hugs and good wishes.
  14. Does he have a pulmonologist? They are the experts on anything lung-related and might be able to treat those symptoms. I'd try to get a referral if he doesn't have one.
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