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Robert Macaulay

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Robert Macaulay last won the day on September 10 2019

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    Qualicum Beach
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  • Status
    Lung cancer patient/survivor
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  1. Hi Everyone Just quick update met with both docs yesterday and this afternoon and from my CT last week radiation is off the table as he said it would do more damage than it would do good as i have had two previous doses.There is still progression from the last scan in August to the one last week.So the new treatment starting later this month will Carboplatin and Gemcitabine on separate daysevery three week for four cycles, Then as usual the Ct scan.Glad to be back (OUCH) In the treatment cycle although she did give me some strong warnings on the Gemcitabine side effects as blood transfusion is possible if Anemia gets bad. Treatment #3 here i come😎 Bob
  2. Kleo Could it be one location of the tumor from different angles.?
  3. Ron Thanks for the info this might be similar in my situation also, as it looks like SBRT is on the cards for me at this time in November.?
  4. Kleo I seem to be fortunate so far it cannot find my brain.😎 Have CT scheduled for first week in November and then the following week meet with Dr Zapper for his schedule and the next day with the Onc for the cocktail schedule, Will be intrested to hear what it entails give me something to do till the end of the year. lol Take care Bob
  5. Intresting update on Durvalumab this week https://www.astro.org/News-and-Publications/News-and-Media-Center/News-Releases/2019/PACIFIC-survival-rates-explained-Lung-cancer-sprea
  6. Tom She mentioned radiation option in that area again and she will discuss that option with the team next week, If i get anymore radiation i might be candidate for Los Alomos New Mexico. I am fine with what ever plan they come up with and that the cancer has never spread thanks to Durvalumab and feel in very good health as the side effects are in decline from that drug. .Seven hours straight sleep last night. Bob
  7. Tomm I have no idea what my PDL-1 expression is, Have heard it mentioned numerous times over last year but never bothered as such.
  8. Opal My thoughts are the Durvalumab done one excellent job of stopping any progression and they have caught this possible recurrence at the original site early so i have no concerns there and from what i read there are lots of treatment options for recurrence at the original site.Thinking her plan is to let this settle take another CT then needle Biopsy followed by pet scan and then hopefully targeted therapy depending on the results, Those decisions are up to the doc and as long as the are giving me treatment i am happy. The break is just fine by me. Bob
  9. Well i just returned from my meeting with the Onc this morning and the news is there seems to be a possible reccurence at the original tumor site since the last scan in April this year.She is going to discuss this next week with the team and most likely a pet scan to and do further checks and she will put me in touch with a Pulmonologist. Sound familiar. All the other pictures taken except that one area were fine on the ct scan.I was well aware of the odds with taking Durvalumab and onward we go with plan C in the near future. Que Sera Sera Bob
  10. Tom Is that valid at Wallmart for discount. lol I would like to take this opportunity to thank Imfinzi for supplying me the drug and clinic at no charge. I never thought this thread would become so popular this last year thanks to the people on this forum who contributed and all those that viewed over this time. Special thanks to Kleo who was a great support in the beginning of this journey and alas had to stop the drug.I believe it was because she did not receive the Durvalumab goody bag.😎 Thank you Kleo and all the best on your new path. Going forward thanks to everyone and it is my hope we all can benefit from this drug in the coming months and years. Going to take a break now and will update on my future scans ,The word is it could take up to eight weeks for the side effects of the drug to wear off. Bob
  11. Thanks Michelle Just heading out the door for the last one, Twenty six consecutive infusions and now Durvalumab will be a thing of the past. What next.😎 Que Sera Sera Bob
  12. To Cathy Macaulay from Michigan (No Relative) Thank you for the phone call last weekend and you will get the meaning on my favourite Duvalumab tune for the last year. https://www.youtube.com/watch?v=-v7XSLY_jhc Bob
  13. Joe Do you get your blood work done at Life labs.?
  14. BC JOE Welcome aboard on your duvalumab journey nice to have a fellow Canadian from across the straits any questions fire away and it is worth the time to read all the posts on this thread.. Bob
  15. Tom That was another point in posting that a individual was NED after seventeen infusions with Durvalumab and was very pleased sadly she had to discontinue which can happen anytime during the drug as the doctor pointed out to me last September.
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