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Robert Macaulay

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Robert Macaulay last won the day on September 10 2019

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    Qualicum Beach
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    Lung cancer patient/survivor
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  1. JC63 It's PT 112, platin pyrophosphate. It is less toxic than cisplatin or carboplatin and is in clinical trials. The trial is https://clinicaltrials.gov/ct2/show/NCT03409458?term=Pt112&cond
  2. Yes Some types of chemotherapy can damage your inner ear. These include platinum-based drugs such as cisplatin (Platinol) and carboplatin (Paraplatin), Had it last week but not with the single dose of Gemcitabine. Expect it to return next week on cycle #2 on carboplatin and Gemcitabine. Bob
  3. MarieE If the water and couple tylenol for couple hours do not help, and temp starts up to 100F OR 38C time to see a doc.
  4. MarieE The key in this situation is to stay hydrated and as long as he can get water down the rest will follow. Bob
  5. Hi Everyone Just quick update met with both docs yesterday and this afternoon and from my CT last week radiation is off the table as he said it would do more damage than it would do good as i have had two previous doses.There is still progression from the last scan in August to the one last week.So the new treatment starting later this month will Carboplatin and Gemcitabine on separate daysevery three week for four cycles, Then as usual the Ct scan.Glad to be back (OUCH) In the treatment cycle although she did give me some strong warnings on the Gemcitabine side effects as blood transfusion is possible if Anemia gets bad. Treatment #3 here i come😎 Bob
  6. How about this one Is Chemotherapy included in the treatment plan with SBRT.? Bob
  7. Kleo Could it be one location of the tumor from different angles.?
  8. Ron Thanks for the info this might be similar in my situation also, as it looks like SBRT is on the cards for me at this time in November.?
  9. Kleo I seem to be fortunate so far it cannot find my brain.😎 Have CT scheduled for first week in November and then the following week meet with Dr Zapper for his schedule and the next day with the Onc for the cocktail schedule, Will be intrested to hear what it entails give me something to do till the end of the year. lol Take care Bob
  10. Intresting update on Durvalumab this week https://www.astro.org/News-and-Publications/News-and-Media-Center/News-Releases/2019/PACIFIC-survival-rates-explained-Lung-cancer-sprea
  11. Edward This link may help https://www.mayoclinic.org/tests-procedures/pet-scan/about/pac-20385078
  12. Edward After the biopsy if cancer is present and if it is they will send you for a pet scan to get the big picture of your whole body and then stage your cancer and depending on all the results make a plan going forward. As for interpreting ct scans i leave that up to the experts never did that class at school to busy handicapping horses.Any questions just fire away there is always someone here who can help. Bob
  13. Edward Your meeting next week with the Pulmonologist who will make a appointment for you to have a biopsy to take a sample for testing from your lung to find out if cancer is present and also test your lung functions if you maybe a candidate for surgery depending on the results if cancer is found, Or refer you to a oncologist for A treatment plan.I assume something showed in a ct scan that got you this far.. Hope this helps many have been there done that on this forum. Bob
  14. Tom She mentioned radiation option in that area again and she will discuss that option with the team next week, If i get anymore radiation i might be candidate for Los Alomos New Mexico. I am fine with what ever plan they come up with and that the cancer has never spread thanks to Durvalumab and feel in very good health as the side effects are in decline from that drug. .Seven hours straight sleep last night. Bob
  15. Tomm I have no idea what my PDL-1 expression is, Have heard it mentioned numerous times over last year but never bothered as such.
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