Deb W

Tom - the new oncologist is working out just fine, thanks.

I have not heard of using Tabrecta and immunotherapy combined together. I did have Keytruda with Carbo and Alimta, then Alimta and Keytruda, then Keytruda alone. The Keytruda was stopped at the end of December and now I'm starting Tabrecta - actually today. My oncologist did say that Keytruda might be used again in the future, but he did not offer it with Trabecta.

Thank you.

Thanks so much for your well wishes! I did get the results and there are no mets to the brain! I can't even describe the relief I feel today! The Tabrecta should be delivered today. Thanks again everyone. Deb

Yes, be sure to call every day! Update on mine...it turns out the person working on my case went on vacation. Novartis approved the trial sample on March 22. The pharmacist at my medical center was shocked that they would drop the ball like that. I'm told it will be delivered on Friday. Fingers crossed. Lexi, thanks for the link! Deb

I think Pharmacy is the issue. I spoke to my oncologist and Novartis was supposed to have Fed Exed it to my home on Friday per my oncologist. My oncologist was surprised to learn I didn't receive it. He's checking on the status. I am hoping to get an answer today. I do know they approved the 4 week free sample. Not sure what happens after that...the copay is unbelievably expensive.

Hi friends, I have been waiting almost 3 weeks for this drug. Is that common? Deb

Hi friends, I'm going for the dreaded brain MRI this afternoon. Asking for good vibes and thoughts my way. 🙏 Deb

Sib, I was told by my oncologist that Tabrecta has an added protective benefit for the brain when compared to Tepotinib.

Welcome. I think it's worth it to be treated. There will be side effects, but we're all different in what we experience and how we tolerate them. I think your father will let you know how he wants to move forward. I am a stage IV lung cancer patient and survivor. I was diagnosed in 4/2020. My last 3 scans have been clear. I'm not going to say it was a walk in the park with side effects, but it was so worth it! All the best to you and your dad. Deb

Hi Gary, I went through a period of time where I had pain in my legs - no swelling and the pain went away over time. I didn't experience severe side effects (microscopic colitis) until after 7 months of treatment. I think we're all different as to how this drug affects us. I would definitely ask your doctor. How long have you had the swelling and pain? Deb

Hi Jack, ? This drug was approved for METex14 skipping: http://media.emdserono.com/2021-02-03-FDA-approves-TEPMETKO-for-Patients-with-Metastatic-NSCLC-with-METex14-Skipping-Alterations

Hi Tom, I had a recurrence and PDL of less than 10% and Keytruda worked for me. Good luck. Deb

Hi, The FDA approved a new drug for METex14 patients: http://media.emdserono.com/2021-02-03-FDA-approves-TEPMETKO-for-Patients-with-Metastatic-NSCLC-with-METex14-Skipping-Alterations

Hi, I have MET Exon 14 skipping. I was stage 1B in 3/19, had surgery ULL lobectomy and had clear follow-up scans. In 4/20 I was diagnosed withI stage IV, recurrence micro metestases. I have been in remission since August. I did not learn of the MET mutation (2nd opinion oncologist found it) until after I had already been put on carbo/alimta/Keytruda (changed oncologists). They felt it was better to continue with this plan since it was working. I have been on a maintenance plan with Keytruda,but now after 7 months I've developed colitis so I'm on hold with the Keytruda. I have b