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Lisa Haines

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Lisa Haines last won the day on December 3 2020

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About Lisa Haines

  • Rank
    Over 100 Posts!
  • Birthday August 18

Profile Information

  • City
    Rockport
  • US State (if applicable)
    MASSACHUSETTS
  • Country
    USA
  • Gender
    Female
  • Status
    Lung cancer patient/survivor
  • Interests
    I am a Mom to two grown sons and two little Chiweenie "Rescue" Pups who we adopted in 2012. I'm also a Wife, Daughter, Friend, Cancer Survivor and now a very Happy "Nanni" to two precious grand-daughters who came into my life 2 and 3 years after my cancer diagnosis. They are both a "Dream come True" and are the "littlest" LOVES in my life. They are also my greatest HOPE and INSPIRATION in my Cancer Battle. I have Stage IV NSCLC Adeno (KRAS +) with no other mutations. I started my battle on 3/27/15, with a brain tumor and pulmonary embolism and it was all a sudden shock. I never had any symptoms of Lung Cancer, still do not - never had a cough or any pain, only a sudden onset of "vertigo" which was actually from the brain met. I am happy to be NED as of my most recent scan in February 2021 -- I am thrilled to be doing quite well. My treaments have included: Cyberknife (for the brain met), Chemo (Carbo and Alimta), Radiation and Immunotherapy (Opdivo). Currently OFF all Treatment and have been stable since August 2016 -- 4+ years and counting!
    I recently celebrated my 6th Cancerversary and I am now very much looking forward to getting back to living LIFE again! I am now fully vaccinated and making plans to go visit my son in California this Summer!

Recent Profile Visitors

1,000 profile views
  1.    Lisa Haines reacted to a post in a topic: NSCLC 22years old
  2.    LouT reacted to a post in a topic: Pulmonary embolism
  3.    LouT reacted to a post in a topic: NSCLC 22years old
  4.    LouT reacted to a post in a topic: NSCLC 22years old
  5.    LouT reacted to a post in a topic: NSCLC 22years old
  6.    Sandy N reacted to a post in a topic: NSCLC 22years old
  7.    Sandy N reacted to a post in a topic: NSCLC 22years old
  8.    jack14 reacted to a post in a topic: Introducing myself
  9. Lisa Haines
    Ale - I am very happy to help and I sincerely to wish you the VERY best!
  10.    Lisa Haines reacted to a post in a topic: NSCLC 22years old
  11.    Deb W reacted to a post in a topic: Introducing myself
  12.    ConcernedSib reacted to a post in a topic: NSCLC 22years old
  13.    ConcernedSib reacted to a post in a topic: NSCLC 22years old
  14. Lisa Haines
    PS: I never had a mutation that was targetable myself, I have KRAS v12G and there is not treatment specific for that or any great clinical trial. However, I had a excellent response to Immunotherapy and I am now NED and just celebrated my 6th Cancerversary earlier this week. There are many Stage IV patients living long lives and being treated as if we have a "chronic" health condition. I HOPE you too will have a wonderful response to your treatments. My outlook started with Grim as I also had a brain tumor and pulmonary and it all came on with no warning or symptoms. You can click on
  15. Lisa Haines
    Dear Ale I am very sorry that I somehow missed reading your story! Please know that many of us here are doing well with Lung Cancer even those of us who are Stage IV. It does however break my heart to think of someone as young as you (22) having to go through this. It is never easy but you are so young and for me that always seems to make me feel very sad and that it's very unfair. I hope very much you will do well with your treatments and know it can take time to find the one that works best for you. You have come to a wonderful group and you'll find lots of su
  16.    Lisa Haines reacted to a post in a topic: Pulmonary embolism
  17. Lisa Haines
    I learned I had a Pulmonary Embolism while going through testing for my brain tumor (which was how I first learned I had Lung Cancer back in March of 2015). I had absolutely no symptoms or warning and it was a total shock and I was so lucky it had not caused me any damage. It was found when they did my very first Chest CT Scan to look for lung tumors. At the time I was already in the Hospital because of the brain tumor and they immediately put me on IV Heparin. When I was discharged a week later I was put on twice daily Lovenox Injections and then later that year switched to Xarelto whic
  18.    Lisa Haines reacted to a post in a topic: Introduction...3.5 cm Right Lower Lobe mass
  19. Lisa Haines
    Shella, My thoughts to out to you and I I know fear and upset of learning you may have cancer. My cancer came on with very little warning (if you lock my icon you can read my story). Thankfully, today almost six years after being diagnosed with Stage IV Lung Cancer that had spread to my brain I am now (NED) No evidence of disease and "living life" with a chronic health condition, as are many long term cancer survivors. I wish you the very best and hope ALL your tests go well and that you do NOT have cancer. If you do, please know you've come to a wonderful group and LUNGevity
  20. Lisa Haines
    Wishing your Dad the very best! I had hip replacement surgery in September after months of pain and having to use a cane to get around. I put it off for a long time because I was scared (not a fan of surgery) and then of course had to wait for Covid to decline so I could have it. Best thing ever and now I'm back to walked well and not living in horrific daily pain! I truly hope your Dad can have his surgery and a better quality of life! Lisa
  21. Lisa Haines
    So happy that you took it upon yourself to have a screening and that your cancer was found at an early stage. I never met the criteria for a screening and never had any warning or symptoms and by the time mine was found it was Stage IV! Happily with all the new treatments and Immunotherapy (my life saver) I will be celebrating my 6th Cancerversary next week and I am very happy to also be NED! (No Evidence of Disease). There are many more of us every year -- Stage IV Survivors living with Lung Cancer! I wish you the very best and hope you too will do well! ~ Lisa
  22.    Lisa Haines reacted to a post in a topic: Alert: lymph nodes may swell after COVID vaccine.
  23.    Lisa Haines reacted to a post in a topic: Moving my Mom to Hospice
  24.    Lisa Haines reacted to a post in a topic: One shot down, one to go!
  25.    Lisa Haines reacted to a post in a topic: Freshly diagnosed, not super excited about it
  26.    Lisa Haines reacted to a blog entry: Trekking The Green With Seventeen
  27. Lisa Haines
    Unless my team is playing I always root for the "Underdog" and in this case KC was favored by 3 pts, so I want to the Bucs, but I'm also a huge fan of "The Gronk" and being from New England it's hard not to want to see Tom Brady win another ring. I think Patrick is an amazing QB and will have many good years to come. I was surprised the Bucs won by such a big spread. It was just not a good day for KC! Congratulations to Tampa Bay, yesterday they played the best game and that's why they are now the Champions!
  28.    Lisa Haines reacted to a post in a topic: Really quiet board
  29. Lisa Haines
    I get more upset daily and more and more people are getting the vaccines and finding ways around it! I am sick and tired of being left out here in MA and finding out there is NO SUCH as "any waiting lists" in my town, they do not even plan to have one (ever). ARGH! This vaccine rollout is extremely unfair and I'm so stressed about it ! ARGH! Good Luck to all! No one here in MA seems to care and you can bet I'll remember that at the next election!!
  30. Lisa Haines
    Dear Curry, My heart goes out to you and everyone who is diagnosed with Stage IV NSCLC (even hard to hear it in your case because you are so young). Sadly, Lung Cancer can strike anyone at any age and more and more of the newly diagnosed patients are young and healthy with no know risk factors. If you have lung you can get Lung Cancer. I can tell you that I am a Stage IV survivor and will be celebrating my 6th Cancerversary in March of 2021. if you lock on my icon/name you can read my story. I had a very grim outlook, but I'm doing well and as of my last scan I am now NED (N
  31. Lisa Haines
    Thank you and THANKS to everyone who is reaching out to their state Legislators and everyone we can to do ALL we can to make Lung Cancer a TOP Priority.
  32. Lisa Haines
    As another Stage IV patient, I would absolutely want this IF this were my case. As for coverage, does your MOM have a Medicare Part D RX Plan, as that is where this would be covered. IF Not, she may be eligible for assistance with the drug maker, but if she had Part D, it should be at least partially covered. She also can enroll, next October which is the next open enrollment period. But, she may face a penalty for not enrolling when she was first eligible. I would check into it now, just in case there is anyway she may be eligible through another special enrollment period.
  33. Lisa Haines
    I've had two bronchoscopy one in 2015 and one in 2016 and in both cases I was totally out. Both procedures were totally painless and I woke up feeling fine and was discharged an hour later.
  34. Lisa Haines
    I am so happy to know Heidi, all thanks to our LUNGevity virtual meet ups. And I love the #WhiteRibbonProject, it's amazing and doing great.
  35. Lisa Haines
    I sent an email to the State this morning to have them explain to ME "exactly" where I am on the list and WHY it appears that as it stands right now I'm at the very end of their Phase IB list which would potentially be in late February. I have read and heard so many News stories over the past few days about vaccines being wasted and how many states have plenty to give us ours now but that some of the planning is absolutely awful. I know it's been said that many health care workers do not want it, then pass it up to the next please and move on .Additionally when I was in Oncology last
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